deteriorating

hey, this is my first time on this forum, my mu has had cancer for over a year now, and i don't really have anyone to talk to. so i think this is my best option. so last november, my dad came home and told me and my brother our mum had cancer. i felt like my world was ending, it was the worst thing that could possibly happen, my brother said it was karma. nothing bad had ever happened to our family, so this was life coming back and hitting us hard i guess. 

during the summer, my mum's marker level was down to about 10 points, so that was great news, we thought everything was going to be okay, but recently, she has just been getting worse. the doctors won't operate because she has had too many surgeries, and they stopped chemo because that wasn't doing anything. in the last week, her appetite has been going down, she doesn't speak or smile much. and she needs help walking. 

im so scared, my dad, i think, has already lost faith. he keeps saying that she is deteriorating, that she's just getting worse. i really don't know what to do. 

i feel like i am the only person who is going through this. and already, this forum has started making me feel a tiny bit better as i sit here and write down what has been kept bottled up for months. 

 

 

 

 

  • I totally understand how your feeling and use this forum as a way of not being alone I lost my mum just before xmas due to skin cancer that spread to her brain but I also have my sister who has terminal cancer it has spread to her lungs and bones watching someone change from being so full of life to spending most of there time sleeping from being bubbly and out going I try so hard to ignore the negatives that people bestow upon us this is both health professionals and family.We try to live as everyday is our last and have tried to make memories 

    keep strong my thoughts are with you xx

  • I know  how you feel I was taking care of my wife untill her last breath was taken that was 3 months ago.I was alone almost all the time I did not know anithing about the on line community. You must take advantage of that wonderful community. Take care of you self

  • Just after I posted last, my dad and brother came into my room. My dad wanted to give us an update on our mum. Her liver is failing, and below her eyes are going slightly yellow from signs of jaundice. The doctors think she is going to die. There is no set date, and every day at school, whenever someone comes into the class, I worry someone is coming to tell me my mum is dead. My mum is now not able to walk at all, she can't speak, only ate a spoon of food yesterday, and couldn't spit out the toothpaste my dad brushed her teeth with. I couldn't bring myself to say I love you, I would have burst into tears, and that would make her cry too, which hurts her. My dad isn't going to work, all their friends are coming to say goodbye to her, and all my friends at school know everything. Tomorrow I am going on a sports trip, leaving Sunday, coming back Thursday. I have been preparing for this trip for 5 years, but if I miss my last moments with my mum, is it worth it? It is what my mum would have wanted me to do, I am the athletics team captain, they depend on me for athetics, do I go or not?

     

    I am so sorry about your mother and sister. Stay positive about things, that usually helps me when I get sad

  • Only you can make the choice whether you stay or go you have to do what feels right I have been doing a degree at uni the end is in site but I don’t no if my heart is in it any more and am so close to saying enough but I am trying to complete it but like you I want to spend as much time as I can with my sister like you I feel conflicted I just hope that if I have to make the decision it is the right one I think we have to pick what feels right and go with it there is no fight or wrong decision 

    take care sweetie talking to you has made me realise I am not alone x

  • thank you for making me smile, i've decided to go on the trip. my mum is feeling better, so hopefully everything will be okay when I get back. 

    take care too, tell your sister to stay strong from me xx