Dealing with family

My husband and I have been married for almost 20 years. We have been dealing with skin cancer since 2004, and we have been dealing with it internally since 2015. Now, it has spread internally, and we are just adjusting to the reality that this is a terminal illness. He had a transplanted kidney and pancreas, but those transplanted organs are dying now because he needs to get his immune system back to help fight the cancer. He had his left leg amputated below the knee back in 1999, and he just had his entire left arm and shoulder amputated in 2017 due to the cancer. He has to have dialysis three times a week, takes insulin to control his blood sugar, walks with a cane, and is legally blind. I have been taking care of him for nearly 22 years, so I am used to it. My problem is with his family. They live 3000 miles away from us, and I have always been expected to take him to see them. Now that he is dying, we expected his family would come visit him especially since he needs dialysis, is missing two limbs, and can't see. Well, today he called his parents and his sister. None of them will come out to see him, and his sister asked why I can't take him there. There is a very small part of me that thinks I should just give in and take him no matter the level of sacrifice it will cost us to do it, but most of me is just so angry with these people. They have no idea of the level of pain they are causing him. In our minds they are telling a dying man that they don't care enough to overcome whatever obstacles necessary to see him one last time. We don't know how long he has, but there is no time like the present to come visit since he is doing well right now. I have to keep telling myself not to get involved otherwise the family will just focus on me and blame me for the reason they will not come. I want this to be all on them. I am just not quite sure what to do. Thanks for reading my post and letting me vent.

  • Hello Louise, I am so pleased you came here to tell your story.  I became angry myself while reading your post.  I take it that at least one if not all of them is/are fit enough to make the trip?  Is there a financial reason?    I don't know their circumstances.

    I am sure you are a very loving caring wife caring for your husband in these difficult times and really you don't deserve these problems.  If it were me I think I would write a very calm short letter - no recriminations - but telling them the situation and saying you are sorry they cannot visit or some such.   Explain why it is not feasible for your husband to visit them (his dialysis, illness, physical restrictions , etc).   Then leave it; the ball is firmly in their court without any nastiness.  Of course I don't know these people and you may feel that it would cause you more hassles than it is worth.  But it annoys me that you who have done so much for your husband (and their family member) cannot persuade them to do their bit.

  • Hi Annieliz,

    Thank you for your support and recommendations. Yes, you are correct. John's mother is extremely obese and cannot walk anymore. She uses a scooter. However, my house is 100% handicap accessible including a lift to the main floor and a walk-in tub. I spent alot of money on these items when John's arm was amputatted because I wanted him to be safe in our home. John's father says his wife is too much work for even several caretakers. Therefore, he is the only one who can care for her and cannot leave. I find that reasoning confusing at best. Ad for John's sister, yes, she has financial issues, but his parnets could afford to buy her ticket. John addressed them over the phone and told them that there excuses were 20 years old. He also said that his physical limitations combined with our financial limitations were also valid. After having a night to sleep on it, he told me this morning that he would rather stay here and focus on the family here who he knows loves him the most. We have an adult son who lives three hours away and would like to take some day trips to visit him. We also have our 12 year old son who still needs as many great memories with his dad as he can get.

    I have been using CaringBridge to document John's progress since he first contracted his internal cancer in January 2015. His parents follow it but not his sister. They are more than informed on his progress.

    I only have one week from work remaining. I am so fortunate that my employer is allowing me to work from home while I care for John. However, I do have to drive into work for meetings regularly, and it is not like I can just pick up and go 3000 miles and work from there. I am not as agry today as I was yesterday. I am moving on to acceptance of their chooses as exactly that - their choices.

    Thanks for your emotional support. It is very helpful to me.

  • That seems eminently sensible.  It is not worth putting yourselves through the hassle with people who will twist and turn and find excuses for not doing anything.    I am so pleased your husband has also resigned himself to this and is happy to stay with the people who love him and would do anything for him.  As you are using CaringBridge you generously keep them infomed (although I expect it was not just for their benefit).  You have plenty to do with your closest family and you will say goodbye to the aggravation and irritation.  Best wishes to you and your family.