DCIS -feeling overwhelmed

I've just recently been diagnosed with DCIS intermediate and I'm feeling pretty overwhelmed with it all. I'm a very positive person usually but this has just hit me like a ton of bricks. I wondered if there was anyone out there that was going through or has been through the same thing. I have to have my nipple removed and my areola and I'm scared of seeing myself like this and what they will find when they operate. My surgery is in just under 2 weeks and I'm also not sure if I should tell people or not. I feel keeping it inside is hard as when someone says how are you doing I feel I have to say I'm ok as I can't keep telling people what I'm going through. I also had Covid Pneumonia so I feel all I'm talking about is me being ill again and some people don't know what to say. I'm usually quite chatty but lately feel a little shocked with it all. Anything anyone can help with I do really appreciate it. Thank you and sorry for rambling on

  • Hello Rainbow77, 

    I'm sorry you are going through this. I was diagnosed with high grade DCIS on Sept 10th and had my surgery on the 29th. You will feel a range of emotions over the coming weeks but I would hang on to the fact that DCIS is non invasive and we're really lucky. I posted about my diagnosis on FB a couple of times just to get it out there really and to take ownership of it. I have been amazed by how my scar has healed with minimal pain but I have been very tired. I'm seeing the oncologist this week to discuss further treatment. 
    keep your chin up and take one day at a time x

    TobyJr

  • Hey TobyJr

    Thank you so much for your reply. I'm so glad you're doing well after your surgery and yes to catch it at such an early stage is just amazing. I guess it's the emotions that keep flooding in and it's hard to regulate them but I keep thinking I'm fine until I'm not fine and I've got it at a good point in time. I hope everything goes well with the oncologist and please do let me know. I've everything crossed for you and will be thinking of you. I've just put the post out there tonight and I'm glad I did as it takes the burden away from you in some strange way as it does become very consuming if you don't talk about it. I hope the tiredness gets better and im here if you need anything x

  • Hi Rainbow77, 

    How have you been over the weekend? I hope things are a little less of a shock. Saw the oncologist who said it was my choice whether or not to have radiotherapy and tamoxifen as the benefits/risks are about equal. Leaning towards not having it as my margins are clear but will mull it over for a few days.
    TobyJr

  • Hi TobyJr

    Thank you for checking in on me, that's really kind. I've been really tired but yes I think I'm an and just trying to get ready for the surgery next Wednesday. I can see why you are undecided too. Have you had any more thoughts since you were told and when do you have to let them know by. Do what you feel is best for you and if there are any benefits at all in having them then it might be worth it. Here if you need to chat through it. x

  • Hi [@Rainbow77]‍ 

    I'm good thanks and made the decision today not to have any more treatment at the moment. Various reasons including I have no cancer cells left and if I had radiotherapy this time I couldn't have it again so would have to go straight for a mastectomy. I already take other meds so was a bit worried about the impact on those. Hopefully it won't but if it does come back it will only be 1 year between mammograms for the next 5 years so it won't have chance to develop much. Is your surgery next Wednesday? I don't know about other sites on the breast but my scar is on the upper out quadrant and I have had barely any pain, a bit tingly now as the nerve endings are coming back. Have you booked time off of work? 

  • I think you've made the right decision as at least you can then have it at a later date if you need to. So so pleased and over the moon for you that the cancer cells have gone. Crossing everything you stay that way too and I'm sure it will all be just fine. Yes that's right it's Wednesday and the DCIS is so close to the nipple so that's why they are removing it, I think. Yes I have but not sure how long it takes to recuperate. I haven't heard from the breast nurse yet which I'm quite surprised about as I thought I would have done but will call her tomorrow. Getting my list of what to take in now as it seems to be coming round pretty fast. That's good about the pain too just try and rest it as well don't be doing too much. x

  • Hi [@Rainbow77]‍ 

    Just wondering how your surgery went? I hope it's all done and you are feeling comfortable. 
    TobyJr

  • Sending you hugs of love and wishing you a quick recovery. We are all fighters on here.

     

  • Hey TobyJr

    It went well thank you, they didn't need to remove my nipple which was good but said it might need to go as I might need more surgery.  I just have to wait for the pathologist results. I'm in pain so taking lots of meds. How are you doing? Well I hope? Thank you so much for messaging. Xx

  • Hi

    Thank you so much that's really kind. Sending love back xx