Dad seems to be suffering in his last days. Help?

My dad has stage 4 lung cancer with brain mets. He was diagnosed almost 13 weeks ago and now I feel he's at the end. The past week he has become very, very weak, very confused and very breathless. It's like he's not there anymore. Last night, he was kicking and punching me, which is totally out of character and for the past couple of weeks he's been screaming out 'this pain is unreal, God help me' and the past few days he's been swearing, grimacing and crying out in pain. He's been on oramorph for almost 3 weeks now and I sorted a syringe driver and stronger pain meds but he's refusing to take them and refusing to go to hospital. I called the district nurses up and the visited me today but he told them he wasn't in pain and was screaming no when they asked if he wanted stronger meds. It's awful seeing my dad suffer and I know he doesn't want to. Either the brain tumour or the fact his body is shutting down has changed him and he can't make the right decisions anymore. But they said he has to accept treatment himself. I'm sitting at home with him as he shouts 'god help' over and over. Then he's fine for a while and when I try and comfort him he says 'go to bed' or he tries to punch me. It's heartbreaking seeing him suffer.

  • Hi there ...

    So so sorry your going through this heartbraking time at the moment... that is cancer at its worse .. it tries to break us any way it can ... that's not your dad saying this, it's what the cancer is doing ...

    Which doesn't help you much.. catch 22 ... if he won't let them give him stronger pain meds , there's very little you can do.. l have a sister in late stage dementure... she gets so angry at times ... but we keep in mind, it's not her , it's the dementure...  but it's still hard to take ...

    But try to get a brake .. get out, go for a walk... visit someone ... if anyone offers to sit, take it .. Marie Currie and McMillan may help there ... if you can have a break, you'll be better able to cope ..

    Sending you a vertual hug...  Chrissie xx

  • Thank you

    I just wish there was something I could do

    I wish I had a say in this

    He's at home struggling so much and I feel like he should be heavily sedated

    It's just heartbreaking 

  • This sounds really awful. Is there someone your dad would listen to? He doesn't need to suffer like this and neither do you...

  • Hi Ive been experiencing something similar with my dad but not as bad. He has terminal stage 4 scc which has gave him palsy and thrombosis in his neck, he has been in constant pain for months and speaks about it almost all the time but when a nurse or doctor asks he tells them it's a 3 out of a scale of 10, when we know it worse. He was pacing almost all the time when he felt strong enough, was constantly restless and can't sleep due to the pain but refused morphine as he believes thats the end. We got him fentanyl patches which have been amazing and he doesn't have any objection to them because he is unaware that they are quite strong. Since he has been on them he has turned the corner a little.

    Could he be similar in thinking that morphine is the end and doesn't fully accept it yet and is just really scared. Apologies if I'm completely off track.