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Dad has advanced prostate cancer - is this normal?

22 May 2019 19:54

Hi,

We have recently found out that my dad (age 73) has prostate cancer. He had a PSA of 700+ and had been having bone pain for months so they said it was already advanced and spread to the bones (clinical diagnosis) and started him on hormone therapy (just the tablets and injection is this week) whilst they conduct the bone scan, biopsy etc to grade.

 

since finding out he seems to have declined a lot. I’m not sure if this is the hormone therapy or the cancer itself? He is so tired to the point that he does nothing all day but sleep, he looks so  gaunt, is struggling to eat and is just weary. Would hormone therapy cause this?

We don’t find out the Gleason score for another week or two and I’m just desperate for answers. Realistically, is it looking v bad?

Dad has advanced prostate cancer - is this normal?

22 May 2019 20:45 in response to Karenkat

Hi Karen i guess it was a shock, I was shocked when my blood test psa was 1581 gleason 8 stage 4 over 3 years ago psa is now 0.8 I've had 6 sessions if cemo on permanent hormone therapy living a normal life I'm now 67 my C went from prostate to lymph nodes, spine, ribs and pelvis and one lung lung cleared, C still in rest.. If you want any more info let me know,.

Billy 

Dad has advanced prostate cancer - is this normal?

22 May 2019 23:19 in response to Billygoat

Hi Billy

Thanks so much for this post. Had an oncologist appointment this morning with my dad.  It sounds like he is the same stage you describe. On hormone therapy for 3 months psa was over 950 now at 10. Starting chemo in the next couple of weeks. Dad is 73 the outlook didn't seem great. But yours is a positive story.  I have screen saved this for my dad I think it will help.

Thanks Lou 

Dad has advanced prostate cancer - is this normal?

23 May 2019 03:58 in response to LouLil

Hi lou yes hormone therapy can do alsorts i put on two stone and having hot flushes (on medication for flushes) only way to lose weight was to stop injections, just started leg pains side effects injection specialist says, i was working till the end of last year metal fabrication and welding but had to retire to look after my disabled wife 24 /7 now,, it's shame, working kept my mind of the C, still not much choice, best wishes.

Billy 

Dad has advanced prostate cancer - is this normal?

23 May 2019 16:33 in response to Karenkat

Hi Karenkat, 

It is difficult to say what could be causing this, whether it is the cancer or the treatments, as I'm not a doctor, but my Dad was diagnosed with stage 4 cancer three years ago, and he is still doing well today. I remember when he was first diagnosed, he had lost a lot of weight, and had looked different than the Dad I knew. However, once he started treatment he started to feel better. 

Just a question, when was your dad diagnosed and how is he feeling now (just mean how long between time frame)? Has it been a couple months that he has been on this treatment? I was thinking it could be the cancer making him tired, and maybe the treatment would take a little time to work? i'm not really sure though. I remember my dad saying he felt better a couple weeks after he started his treatments. 

I would say it probably looks really bad in your mind right now, but my dad is still here after 3 years. Just try to live in the moment as much as possible. There are many treatment options that people can use in Stage 4 prostate cancer. I've been told they eventually stop working, but there's always another one to try. Please feel free to message me if you need to talk. 

I'm feeling a lot better now than I felt three years ago when my dad was diagnosed. It still sucks, but I think I'm in a better place emotionally and mentally.