I’m just posting on here because I really don’t know what else to do. My Dad was diagnosed with pleural Mesothelioma about a month ago. It has been 5 months of hell really. He went to the doctors in March because his breathing was not great and he was referred to hospital for tests. They found a huge amount of fluid on the lung and told us they suspected Mesothelioma and did several biopsies. We were them told that no evidence of cancer was found and we were all so relieved. He has talc put on his lung to stop the fluid and they drained off the remaining fluid.They sent him away and said they would see him again in August. However, his situation didn’t improve so he went back in May and again they suspected Mesothelioma so did more biopsies and this time their suspicions were correct. (A bit annoyed that they didn’t look into it more the first time)
So our world came crashing down for the second time. 4 months wasted when he could have been treated. Since then, he has seen the oncologist and has been offered the chance of a trial in London with a new drug alongside chemo but he would have to travel to London every week for 18 weeks and have chemo up there. This means going on the train from Colchester and I really don’t think he is strong enough for all of that. My head is everywhere and have just spoken to my brother and he said that dad is now coughing up blood. He won’t take any paracetamol or ibuprofen because he “doesn’t like taking medication”. He has bad nights and can barely walk 100 yards before he gets out of breath.
I am supposed to be taking him on the train to a London on Wednesday to have bloods done in prep for the trial but I really don’t think we’ll get there.
Mum and Dad are still very secretive about everything and if it wasn’t for my brother and I updating each other and insisting on attending his appoinments, we wouldn’t have clue!
sorry, I’m really going on but just need to vent! My Mum’s Mum also died 3 weeks ago and we had to attend the funeral this week. It’s just been awful!
I can’t bear the thought of him suffering and either way he will, whether he has chemo or not. I am so angry because he never directly worked with asbestos as he was an accountant but happened to be in buildings when they were doing renovations. It’s just so bloody unfair!