Coping with my mums terminal diagnosis

Hello, 
I guess I will start by introducing myself and telling my story, it's a little overwhelming for me to talk about but I will try my best. 

I'm Luke, I'm 22, and I'm here because my mum, who is 42, has been disgnosed with advanced melanoma and given 6 months to live with a new type of chemo. I have an older brother who is 25, and three young sisters, 5, 10 and 15. 

She had melanoma 5 years ago, and had surgery to remove it, and the treatment was successful. A few weeks ago she discovered lumps on her back, and after more investigation found them on her groin, stomach, shoulder etc. In the months leading up to this she had been losing a lot of weight and her appetite, but as stobborn as she is, carried on as normal until my dad found the lumps and we were straight down to A&E, and the next month had tests and more tests. 
The wait was horrible, not knowing what they were, if it was cancer etc. We all tried to be hopeful that they were just cysts or something.
Gradually over the weeks she became more ill, both I expect from the cancer but also from the anxiety and worry. 
 

On tuesday we recieved the news that it was melanoma and that it had spread to her lungs, stomach, kidney, spleen, pancreas, you get the idea, it's out of our hands now. I totally broke down and ever since have been in total devistation and struggling to cope. Today we found out she will be getting chemo to try and slow down it's grown, but no longer than 6 months. The way she is now makes me think she might not last long at all, and it's so hard to believe. 

I'm struggling to accept it, I don't know if this I'm in denial or if this is how it is 'supposed' to feel, but I just don't know what's going on or what to do. All I can think about is my younger sisters and how they are going to cope, and how much of a loss it is going to be for them, growing up without their mother. I'm absolutely heart broken for them, and so angry. 

It keeps coming in waves, it's always at the forefront of my mind, but one moment I'm occupied or feeling strong, and then suddenly I'm hit by a sudden realisation of what's going on, and it's scary and daunting. I feel it in my stomach and whole body, like a rush of anxiety but much deeper. 
I'm feeling depressed and worried that I'm going to get worse. I am struggling to eat and feel sick most of the time. I can't sleep either. I feel like I need to be strong for my sisters, but I don't know what to do. 

I just can't face it sometimes. I'm so scared. 

I overheard my mum today talking to my nan about how she feels like her life has been a struggle and she hasn't been able to do most of the things she's always wanted to do, and that absolutely broke my heart. My mum is the kindest and most gentlest woman you could ever meet, and she deserves only the absolute best, but I have always known how unhappy she was (depression is common in my family and I also have suffered). 

I know all of these feelings are normal, and I don't know if it's worth speaking to my GP about getting counselling or something?
Has anyone been in my situation and had support from a doctor or therapist or something? 
I have my family who I can talk to, but sometimes I feel like a burdon on them, because they are struggling too. 
How long will I have to wait before I can speak to someone? I know I can call nurses here, but I feel like I need someone regular who knows my situation. I also want my oldest sister who is 15 to find some kind of help, because she's refusing counselling at her school, but I feel like she needs ALL the support she can get.  

Sorry for the long post, I will leave it here altough I still have so much more I'd like to talk about. 

, Luke. 

  • Hi Luke, welcome to the forum, but I'm so sorry that your mum's diagnosis is the reason you're here. All the emotional highs and lows that you're experiencing right now, are natural. I think you would be wise to make an appointment with your GP; you recognise that you need support and your doctor will be able to help you find the right support networks. Even though it's Friday tomorrow, ring up and ask for a same day appointment. You may need to give brief details to the receptionist to achieve this (you do at my surgery) You could also discuss your concerns about your younger sisters with the GP. Luke, I'm sorry I'm not being very coherent (a bit past my bedtime) but having read your post, I couldn't go to sleep without sending you a reply. Please post as often as you need to and don't worry about the length of your posts. This forum is here to listen and support as best we can. Take care sweetheart, Jo x
  • Hi Luke,

    Try not to get too hung up on your Mum's 6th month prognosis, these things are rarely wholly accurate as they are based on averages for people with a particular condition. I was lucky enough not to have too many symptoms caused by the cancer itself, but the worry, anxiety and sleepless nights of themselves were enough to make me feel ill in the first few weeks of being diagnosed with a stage 4 cancer and given a similar prognosis. 

    When is your Mum due to start chemo?

    It would be pointless of anyone to tell you not to worry. I hope you, your Mum and your family manage to get through the next few weeks OK, it will be an emotional roller coaster for you all.

    Please don't hesitate to use this forum as a safe place to air your feelings and frustrations - we all need to do that from time to time.

     

    Best wishes

    Dave 

     

     

  • Hi Luke, I'm so sorry to read about your Mom's cancer diagnosis. My heart goes out to you in your pain at the thought of losing your Mom and the concerns you have about your younger siblings. This cancer thing is a very difficult thing to deal with for all of us, but for you at your tender age, you should not have to be worrying about this kind of thing. As Jo has already said, you do really need to speak with your family doctor about how you are feeling and don't take no for an answer. For sure, watching a loved one suffer from cancer is hard on everyone, but sometimes we all need a little more help from a professional to get it all sorted out. Just being able to talk to a counsellor about what's going on, will make things much less difficult for you. Also, keep posting on here as there is always someone reading the posts so people will respond from time to time. Your Mom must be so proud of you and you seem like a very caring and compassionate young man. Please take care of yourself and get the help you need to get you through this.

    Come back on the forum to let us know how you are, and how your Mom is doing.

    Sending you hugs.

    Lorraine   

  • Hello

    I have just read your post, I am in a simular situation to your self. I am 24 and my mother has terminal cancer with only a few months left to live. My mum was diagnosed in march 2014 with oesophageal cancer stage 4 which has spread into her liver. The doctors told us that it was terminal and chemo and radiotherapy was offered but would only buy her sometime. She is very weak now and struggles to get out and do anything if the doctors are right she has around 4 months left but somedays i dont think she has that long. 

     

    How you talk about it coming in waves is so true, I find that you can feel so strong one moment and that the next you feel like you have been hit with it again.

    I have suffered from anxiety, panic attacks and i get a tight chest I went to see my GP he wasn't much help and just referred me to well being which took a few weeks and when I finally got though I was told they could not help me as it was to do with cancer and they told me to call McMillan. I called them and was referred to a local charity called coping with caner I am currently on their waiting list for counselling which is up to 10 weeks.

    I have so many thoughts going through my head and get so angry why is this happening to my mum ect. I would defiantly see if you can get counselling or some support from your GP. I am hoping counselling will help me I have so much I want to say but it's hard to say it to your family and close friends as you don't want to burden them and you can see they are also struggling.

    I can only imagine how your younger siblings are feeling as they are so young, I think you should try and encourage them to get any help they can. Also remember you can't always be strong and supportive for them, Iv learnt that no one can be strong all the time, doesn't matter how hard you try.

    If you would like to talk further please let me know I don't mind listen to you doesn't matter how long your post are. From what you have already written it sounds like you are feeling similar to myself. 

     

    liz :)

  • Hi Luke, have read your post and just wondering how you and family are going now? You are in my thoughts. Best wishes Kathy.
  • Hi luke..... I have just been searching for help dealing with mums terminal diagnosis and i came across your post..... i can totalky sympathises with you. My mum was diagnosed 4.5 years ago with ovarian cancer and was given 5 years max. She had a huge operation and lits of chemo and was in remission for 2 years. Her cancer came back in may last year and after another long bout of chemo they managed to slow things down.... we went for a review with her consultant and her cancer marker has doubled over the last 3 month's so we are now awaiting a scan..... I know wha your feeling as i am feeling it too. If you ever want to talk just shout! Im not s good talking about my own situation but i am an ear if you need it. Take care xx

  • hi, almost 2 years ago my mum was diagnosed with brest cancer for the 2nd time and know she's dying. for those who are out there, pain is real, empathy and depression is all i am having know. if you dont have pain though then your not right, real humans cry, real humans miss and sympathise. i am not asking for you to feal bad for me as me and my family are know make every minute count and fornow we are good. what i am trying to say here is that you dont know what is around every corner, and that you should make every moment count, even if you dont think it should.

     

    Rianna

  • Hi Luke firstly I'm so sorry .... life is sweet and tough ... indeed make appointment with gp and ask for surport , i should imagine your included in care package has cancer effects all the family in some way or another my mum is much older 74 and has only a few months to live with stage 4 cancer breast lungs and bones ,  she can't even have chemo because she's to weak . All I can say is spend has much time with your mum but also have some time for yourself.  You will have different emotions denial anger sadness but honour the time you have now. I wish you the very best take care. 

  • Hi Luke... I know I'm 6 years late but how did things turn out for you? I'm in the exact same position as you were 6 years ago... im 22, siblings ages 16,13,7,2 and my mam has terminal cancer she's only 44... I'm struggling so much would be nice to chat to someone that is dealing/dealt with similar situation...