Confused Need Help

i dont know how to talk to people or hoe to askfor advice. I have been treated and finished a years worth of op's,chemo,radio and bracheotherapy and my body literally feels like it isn't mine 

  • Hi, 

    What kind of cancer did you have?  I had cervical cancer and I had the same treatments. It takes a while for your body to recover, that's for sure!  Let me know if you have any questions I might be able to help with.

    Laura xx

  • I had Cervical into wommb and ovarian into Pelvic. Also i got scepticemia which went rancid and combined te two cancers meaning i had to have bowel and bladder disection. My stomack  feet and hands feel like they dont belong to me so i constantly pull at them, Have youhad this feeling, it's driving me crazy.

    Thankyou for anwering 

     

  • Hi Ramsey Your body won't feel like it used to because its been through an awful lot. Operated on, poisoned with chemo and zapped with rays. You have to nurse it back and it will never be the same. Some things will get back to normal but some others won't. You will have to learn how to cope with the things you can't change. I am 4 years post surgery and coming up to 3 years post treatment. I still get tingling in my feet and have to be careful with certain foods. Do the things you can and enjoy everything else will need work and for the things that will never be the same adapt accept this is the new you. Look on the positives and even try something new keep moving forward and remember you have been through a lot and come out the other side how wonderful are you. River
  • Hi, 

    I haven't had those feelings exactly but my body is still adjusting, even 5 years later.  I had some twitching in my legs, lots of bowel issues and fatigue.  But, you have to press on, like River said. Focus on feeling better and get as much exercise as you can. It takes time but you will feel better with the "new normal". Keep in touch, let us know how things are going. It helps to talk these things out.

    Laura xx

  • thankyou both of you for answering. It's not somethig that i want to hear that your still experiencing these side effects but helps to know others understand how i am feeling 

     

  • Hi Ramsey The side effects are nothing and well worth the price if it means the cancer has gone. My brain still thinks my body is in its twenties only when I try and do certain things does it remember that I am 61. So its not just confined to cancer that our bodies don't feel like they belong to us. I think the healing process is a marathon not a sprint and each day is a day closer to recovery. I used to write a treatment diary and continued after treatment finished noting how I felt physically and mentally. The entries trailed off to once a week then once a month until I stopped. It really helped me and also helped when going for checkups as I could look back and ask about anything that was concerning me.

  • Hi there This reply is actually my first post on he forum. I have just completed 6 weeks of chemo and radiation for cervical cancer and I’m in what I call no mans land between treatment and my first check up to see how everything worked. I have a million questions each day and wonder about every feeling I have but I do know how lucky I am for several reasons. Something that helped me deal with the shock of it all (a quick turn around for me) was a gratitude journal given to me by my husband. Each day, every few days... I’d write something I was grateful for and this grounded me. I’m also trying to balance the good and bad days and move around as much as possible when I feel ok. My white cell count is still low so I have to be careful. However I know what you mean!! I’m not the person I was a few months ago! I see someone slightly different in the mirror. My skin is not great, I’m trying new products and searching for tips....I’m impatient with my small kids and I’m not wearing clothes in the same way. All of this changes our identity but in time, like someone else said, it will be the new normal..... take care and don’t rush or beat yourself up. This is very hard work!! Xx
  • Hi Welcome to the forum. On a practical level I used E45 body lotion and it was really good. It's thinner than the cream and you can get it in pump dispenser. For face I used simple moisturizer. I was intolerant to a lot of creams before I had the chemo so always went for non perfumed. For feet I used the E45 but once a week used scholl foot cream. My hands are always dry but by using these they got enough moisturizing

    I found loose fitting clothes a lot comfier and lived in track suit bottoms. This will change and go back to normal. As for being grumpy with your kids it could be because you are tired. You need to rest chemo and radiotherapy are very tiring. I used to catnap a lot at first. Try a bit of exercise like walking. You will get fitter and back to your old self in some ways but you will also notice a change. Don't dwell on that as the real you is still there. Good luck River