Hi MIs We buried my husband today. He wrote his own funeral when it became apparent he was never coming home. It broke his heart but he came to terms with it as he had strong faith in God. There were things I regretted not doing before his last days, when he speech and motor functions started to go. He was diagnosed with cancer on 17th Jan, he died 15th Feb, and this was his 4th time battling cancer. I can feel your pain, and it's only going to get harder. I know hindsight is a wonderful thing, but I truly wish I had done more when he was in the hospice, and the reason I didn't was because we hardly had time alone together a lot. There were always families and friends about. I wish I had recorded him on audio more, so I can hear his voice now, when he could still write, I wish I asked him to write me more letters, I wish we had listened to our songs together more as it wouldn't required him to speak, however I did hold his hands a lot, kissed him a lot, sang to him songs of hymns. I am sorry to go on and on a bit, I guess what I'm trying to do here is to share with you my regrets, in hope you'd do more with your wife whilst you still can. Nothing I say now will make your wife better, and you are right, the journey ahead is long and is going to be painful. My thoughts are will you MIs. Take care. Jeannie

You sound like a great husband and father and friend. It is special that you can be with your wife and share her journey. Experienced care workers can be a blessing and in my experience really love to help so don't hesitate to lean on them for support. Take it one day at a time, and make the most of every minute you have together. I am sure your children will be a great focus for your energy too; you sound like a very loving person; just be yourself, and I am sure it will all work out in the end. I wish you , your wife and family and friends all the very best at this difficult time. 

Jeannie - my heart goes out to you. Brave woman. Take care.