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Cold caps

1 Jun 2018 15:28

Hi,

was diagnosed with breast cancer on the 10th. I am due to start chemo next Thursday and was just wondering if anyone had used cold caps and how effective they were in regards to hair loss. Just I’ve been put down to have one but it adds a lot of time to my hospital visit. Is it worth it or will I lose my hair anyway?

thanks, Candice x

Cold caps

3 Jun 2018 14:32 in response to Dizzle82

Hi Candice, 

I saw you were asking about cold caps so just wanted to share Wils3398's post with you as they have provided a very detailed account of their cold cap experience which may help you with your decision. 

I'm going to tag @Dafra ‍ in this post as their daughter-in-law used cold caps during their cancer treatment so he may be able to give some insight about her experience as well.

I hope this helps Candice and I wish you all the best for the start of your chemo next week.

Kind regards, 

Steph, Cancer Chat Moderator

Cold caps

3 Jun 2018 15:11 in response to Dizzle82

Hi Candice

I'm so sorry that you have been diagosed with breast cancer and I hope you have a very successful treatment.

Steph had tagged me so I can give some insight to the cold cap experience.  My daughter in law was treated for bowel cancer with surgery and chemo a few months before her wedding.  She opted for cold cap treatment to attempt to preserve her lovely thick black hair.  She said it was unpleasant but not unbearable and I think the wedding was foremost in her mind.  It hurts a little like placing feet in very cold water but you overcome this.  This was in 2003 and the technique may have changed.  It was very successful.  The blood supply to the hair is inhibited during chemo to prevent damage.  I don't think her eyelashes or brows were affected either but I suppose that could be corrected with makeup.

Here is a photo at the wedding. Excuse the poor quality but it is for anonymity.

 

Kind regards

David

Cold caps

4 Jun 2018 06:29 in response to Dafra

 Hi David, thank you for your reply. It’s given me some hope so thank you for that Happy I’m gonna give it a go and see what happens. What will be will be and I’ll deal with it any way I have to. If my hair stays anything like your lovely daughter in laws i’ll Be very lucky x

Cold caps

4 Jun 2018 07:40 in response to Moderator Steph

Thank you Steph x

Cold caps

4 Jun 2018 22:08 in response to Dizzle82

I read Victoria derbyshires book,the lady of the telly in the morning,she had the cold cap and gives a very detailed account of the cold cap she had,I have had breast cancer and now have blood cancer but haven,t had chemo,but her account is heartwarming and amusing,I do wish you all the best,try to read her book,it goes through her journey with breast cancer and she is now back on telly xx

 

Cold caps

5 Jun 2018 09:13 in response to Dizzle82

hi sorry for your diagnosis. i too had breast cancer masectomy and reconstruction post op 3mths. been having chemo since april. tried cold cap twice. first time didnt know what all the fuss was about but quckly realised that i had on the wrong size. and developed a bald patch where it didnt touch  my head. the second time felt better but no way near as bad as what people said. hence my hair fell out. so depressing. so basically you need it the tighter the better to your scalp or it wont work. not using it now and i dont appear to have lost anymore shaved my hair shsort and its less depressing than seeing clumps coming out

 

Cold caps

5 Jun 2018 09:18 in response to jessmarble

Hi and thanks for your reply. I’m in two minds to even bother but I guess I won’t know unless I try and will make sure I have the right size. I just wish they would just chop them off but I have to do 9 months of chemo first to shrink  as it’s a large tumor than surgery and then radiotherapy. Not quite sure why that way round as a lot of people on her seem to have had surgery first. I’m sure they know what they’re doing though. I’m scared as my hair has always been my trademark but if it means getting better then so be it x

Cold caps

5 Jun 2018 09:59 in response to Dizzle82

Candice if your hair is very important for your wellbeing, why not give it a try? I know I'm not the one having to suffer but I think, if it works, you will feel so much better. 

Kind regards

David

Cold caps

5 Jun 2018 10:04 in response to Dafra

Yeh I think I’m going to. Don’t have much to lose. Seems so pathetic worrying about hair in the grand scheme of things though doesn’t it! Have just watched Victoria derbyshires videos as recommended by @jipster ‍ and were really informative x

Cold caps

5 Jun 2018 10:56 in response to Dizzle82

Ah dizzel glad u have had some response Happy

Sorry I couldn’t help on this one but u know where we are if u want anything else or just want t shoot the breeze. Take care me dear x

Cold caps

5 Jun 2018 10:58 in response to Sandra123

Thanks Sandra. Oncologist today at 16.10 to discuss mri results as it’s shown signs of spreading so least i’ll Know where to go from here. Fingers crossed x

Cold caps

5 Jun 2018 12:05 in response to Dizzle82

Let u know us get on got everything crossed nd will b there with u in spirit x

Cold caps

16 Jun 2018 03:31 in response to Dizzle82

Hi Candice,

I said no to this one, but I suffer from hemiplegic migraines and ice pick headaches so I was not going to voluntarily have any pain in my head area Laugh

My hospital do offer it but are unconvinced of it's usefulness still, they haven't had someone on chemo for breast cancer NOT lose their hair yet.  But who knows...

I maybe find it easier than others but I'm just not fussed about losing my hair, it'll grow back, and my mum says that even though it feels like a long time AT the time, afterwards she felt like she wasn't that long without her hair at all.  I had mine cut short and am getting fringe pieces made from it that can be velcroed under scarves and hats just so I look more 'normal' for my nephew (he's only 3 and his mum's my identical twin so he already finds how I look confusing!)

I've bought some fantastic scarves and headcovers from the Deresina range and am looking forward to getting my sewing machine out and making some of my own.

Just a thought, it might be that it's a helpful process for your daughter to involve her as a fashion consultant for choosing head covers (if you don't go for the cold cap or if it doesn't work).  Might make it less scary for her?

LJx