hello sarah thank your for your reply, having 5fu as well nurses were very helpful, feeling a bit better about it all having this for 30 weeks which seems like a long time, felt really humble when i was in there because there were ladies in there with much worse than me and they were so positive and cheerful it made me feel like a big baby, by the way i know my username is charlie thats my sons name my name is diane, thank you once again for your reply

hi sarah., started it yesterday i am having a cannular every week in my hand, just worried if the veins will hold up as mine are very small, i do appreciate being able to talk to someone, even though i have a woderful husband and two good children sometimes its easier to tell your fears to a person outside the family. Iam going back to work on the 28th july on my birthday of all days, they have been very good just hope i dont get too tired, any way dont want to bore you too much thanks once again.Diane

Hi sarah

Iam in norfolk, how are you feeling now is your treatment over.

Hi,

my mum had bowel cancer about 5 yrs ago now, the chemo was not too bad on her, obviously it isnt nice, but like everyone else..you get through it.

she is now 5 yrs post treatment and doing well...good luck to you, but i'm sure you'll be just fine.

Hi

My father had bowel cancer and got the 5 year all

clear last year, my sister and I both had it last year and finished

chemotherapy in Jan 08, been given our first year all clear.

I had to have the picc line which meant carrying it for 3 days every

fortnight, also chemo through the vein in hospital. I admit I went for

the positive approach in public. But the nurses and Doctors were great.

I get my first official check up in August.

Just remember to rest and when your up to it, get out and have fun.

Regards

or take up kite flying eh buffy??? lol............all good for the exercise and the feel good factor :blush:

welcome to the forum Buffy.

Hi Diane

I hope the chemo is going OK. I have jjust finished a 6 month course of capecitabine tablets and the recent scan was clear. I do get more tired than I used to and I was getting about 2 days of diaorrhea every month, which was a bore, more than anything else. The nurses in oncology couldn't have been more supportive I also had the chance of free aroma therapy, which was wonderful. Oherwise these last 2 months I have felt bettr than I have done for at least a year, so just concentrate on how good it will be when you finish. None of the others at the oncology clinic had any bad side effects - a bit of diarrhoea, a bit of hair loss, a bit of funny taste in the mouth, but all were carrying on with their lives.

I really hope it's as easy for you.

good luck

Hi to everyone on this thread. So reassuring, thanks to you all. I had a first cycle on Tuesday and was very nervous about it all, so no you are not a baby Charlie. I still am quite nervous in a way because both my husband and I misunderstood the drug dosage for the anti-emetics. I keep asking myself, were we just particularly stupid that day; but I don't actually recall being given instructions and the label on the box was ambiguous. So Tuesday afternoon and evening massive vomiting. Got it clear the next day so am over the worst now - just queasy really and hope to avoid that when I go back for round 2. Just hope the cancer cells feel as rotten as I did! And there's no way I could have been in work! GP has been great about saying take all the time I need and school have as well. Mind I was ill for all the school summer holiday when we wouldn't have been in anyway - not till the last week when it all starts up again to be sorted before the children arrive.

All the best, keep us posted. You are just a bit ahead of me.

Hi all,

I am to have my first experience of chemo tomorrow. I had part of my bowel removed in July, keyhole surgery, but I am to have chemo as well. I have joined the SCOT trials for the chemo and have drawn a 6 months course. I believe I will receive Oxaliplatin, 5FU and a folinic acid called leucovorin (which is supposed to make the 5FU more effective). I will receive this every 2 weeks; last Thursday had a Hickman line put in for administering the chemo which I may already have treated wrongly. I had a shower this morning then read on the internet that you are not supposed to wet the Hickman line!! Woops I shall of course tell the nurses at the clinic.

I am told most people go home alright after this, there are of course side effects but I am telling myself other than tiredness I wont get any! We shall see!

Thank you Eyore for mentioning about the anti-emetics. I shall make sure I ask about the dosage before leaving the hosp tomorrow.

I hope you are feeling ok. These sites are so good that we can not only 'compare notes' but chat with each other. Thanks to all of you.l

Hi everyone havnt been online for a while , went back to work on my 50th birthday and only lated for two weeks, have been off of work since have felt very low and tearful and sick. Going back to work on the 29th september just for 3 days a week, doctor wants me to go back she thinks it will be good for me. Really feel like giving up but know it will be better for me in the long run if i carry on but i still have 21 treatments to go it just has taken over my life which i didnt want it to, but i will carry on.