Caring for my mum

I have read lots of different stories of other individuals experiences and dealing with cancer. My mum had been poorly since the beinging of December, not be able to eat and losing weight quite quickly. She had gone to the GP who done a series of blood test and they found a lump within her tummy area, so she got a instant referral to a Cancer Clinic within our local area, she underwent so test etc and they said they would invite her back for the following week. Well the follow week arrived and no appointment to then phone up and say she had be referred back to our local hospital, we had to wait 2 weeks for the CT scan bloods had come back during this time and she had raised levels in which her GP said worst case scenario it was ovarian cancer - what a shock this was. During the wait Mum had deteriorated even more eating less and losing more weight, to the point she was admitted to hospital by her GP as her scan and ultrasound was booked for a couple of days so GP thought she would be in hospital ready for this test. She had a drip set up and fluids pumped into her she looked better just after an increase in fluids. CT scan was done of her stomach area, the next day she had a ultrasound done of the same area. Later that day she was given the results what a blow this she was given the news that they suspect it was bowel cancer which had spread into her liver as well as her kidneys and it was terminal.... she was ordered another CT scan of her chest area to see if it had spread further this results showed it had spread to her lymph nodes in her neck.... OMG so my mum 62 having been fit and health a month prior to diagnosis of terminal cancer, well you can imagine not only my but the whole family life’s turned upside down on the 16th Jan 2018.. we saw the specialist and couple of weeks after who said at this stage there was nothing they could do apart from manage her symptoms they could do a biopsy of her liver to see where the primary cancer was and could possibly offer palliative chemotherapy if that was an option. Since then Mum had deteriorated really quickly so was unsuitable for the biopsy. She has hospice coming in almost weekly district nurse weekly a carers daily to help with her personal care. I can’t believe within 1 month for her diagnosis we are at the stage where is taking it day by day... she may have a sringe driver fitted 2morrow to help with her sickness and pain which surprisingly she isn’t in much.. it’s hard to watch my mum deteriorate so quickly, numerous of time she has said she has just had enough I wish there was more o could do for her but I can’t apart from be there for her on a daily basis... my hardest think is that I have a huge caring back ground and worked with many clients at their end of life but nothing can prepare you when it’s your own Mum, so times I wish I didn’t know as much as I do and then I wouldn’t know the journey she is going through, however I’m glad that I can care for my Mum and be there for her. Sorry for the long post. 

  • Hi Laura. I'm sorry to hear about your mum. I had a similar experience with my mum 24 years ago. She started to be unwell and lose weight. She deteriorated rapidly also and passed in hospital before any results had even come through. You don't have time to digest whats happening or plan. All you can do is do what you are doing. I also work and worked in the caring professions and nothing prepares you for when it's your own family member. Don't fight your feelings and be kind to yourself. All the best to you, your mum and your family x

  • Hey Laura I can totally relate to your post I’m in the same position as you it’s so awful and I too don’t know what to do and also wish I didn’t know as much but a part of me is glad I do to. I feel so helpless and scared because of the unknown but all we can do is enjoy our time as hard as it is :( I wish you, your mum and your family all the best xx