Hi Spring,

Welcome to the forum, I'm so sorry to read about your situation. 

All you can really do is be there to give your Mum support and to make sure she gets the care she deserves. I'm guessing she is being cared for at hime. Are you getting the support you need from the MacMillan and Marie Curie nursing services? If not ask your GP for an emergency referral. 

I noticed you'd not received a reply and thought I'd give you one to bump your post back to the top - hopefully someone with more relevant experience will reply soon. 

Good luck

Dave

Hello.  I’m very sorry that you and your mum are going through this. I wanted to respond as my mum has also recently been advised that her cancer has spread to her brain.  It’s such a shock isn’t it.  As of today mum is still able to be independent, but a seizure 2 weeks ago has really slowed her down.  I have no idea what the future will bring.

Prior to her seizure my mum had some radiotherapy to the side of her face that caused terrible burns in her mouth.  She couldn’t eat.  The doctor at the hospital was very kind and gave her some complan, but although she couldn’t taste anything, mum still struggled with drinking more than one.  I also made up some mini meals of macaroni cheese and rice pudding which had limited success.

My mum is currently coming off steroids and I have noted the comment you made about them improving your mums appetite, so that I can monitor her appetite.

Although I’m still new to these boards, I have read many of the posts and often read advice about remembering to ask for help.  My mum is already registered with the local palliative care team and I believe that this will be a helpful thing in the future.

I send you my best wishes

Thank you for your kind words, it always helps when people take the time to care.

She is being cared for at home and the Hospice team are very supportive. 

Best wishes and thanks again.

I’m so sorry for your struggles that you and your mum are going through. Very trying times for all involved. 

We only got a proper diagnosis about 4 weeks ago although we knew it was serious as she’s been bedbound since February. 

I just wanted to reply to you as my mums so poorly now that she flits between being aggressive, talking nonsense and a few minutes now and again of my “real mum”. I wish I’d known the moment that we had our last proper lucid conversation as there’s so many things I wish I’d said. 

Complan is marvellous stuff, my mum was on it for a few weeks and it definitely improved her stamina somewhat but I think that now she’s choosing not to eat, which is heart breaking but normal behaviour according to the Hospice team. I just have to support and be there for her. 

I really wish you all the best on the next part of your journey, make the most of every minute, take care