Cancer and Addisons

Hi all I've been on forum for quite a few years now.

Haven't noticed anyone with both.unless I've missed it .

But thought I'd let people know what's going on with me lately ,

Beginning of the year my PSA (cancer count) rose up quite fast and quite high ,so oncologist put me on New meds, nearly three months ago since then My blood pressure is going mad mainly low so oncologist and Addisons specialist told me to increase my fludrcortizone, for my heart,from 1 1/2 to 2tablets a day, about two weeks later,no improvement so doctor and oncologist tell me to increase to 3 tablets day a week later phone call from Dr stop extra tablet my sodium levels have dropped dangerous levels so i carry on with low BP , spoke to Addisons specialist this morning explained everything everything he told me I should never have increased dose to 3and those tablets would not decrease my sodium levels,its more than likely that My new cancer meds are making My Addisons meds metabolize to fast in my body so they don't last long enough to do there job properly,at last something is making sense.

Now hes arranging a all day blood test at hospital so I have to Go early have tablets with blood test either side by about an hour, morning, lunch and evening,to see if meds are going out of My body to quickly.

Then at least I should know one way or the other than hopefully someone will figure out what to do..

Sorry if I'm ranting a lot but three months of being told one thing then another im getting rather fed up,fed up is rather mild to what I actually think, but thought id keep it clean,.

Hope everyone is keeping safe,keeping positive and keeping fighting.

Billy

  • Hello Billy,

                     just like when you are shooting ducks in the dark,it helps if someone switches the light on,but looks like you are going for the top spot with spotlights no less.Hope your day proves to a success,and you have enough decent veins to keep up with demand,

                                                                                                           David

           

  • Dear Billy,

    At least you might get some answers with this test.  I hope so.

    Take care, Sue xx

  • Hi all .

    Feeling My age now just had bone scan,so really glowing well just now, having rest tomorrow then CT scan Sunday,

    So if I'm not still glowing on Christmas day I'll be supprised.

    Hope everyone is keeping positive and fighting well  .

    Neighbour just taken Bella to vet she's not eating just to lethargic its just not her ,so fingers crossed.

    I'll keep everyone up to date best I can  .

    Love you all.

    Billy xxxx

  • Hi all.

    Still waiting for tablets to be sorted out.got appointment over phone to oncology 30th November.

    Still feeling rubbish,BP all over the place.

    Bella sorted being a proper madam unless she gets her own way as usual.

    Hope all My cancer friends and family are all keeping positive and fighting.

    Love to all Billy XX

  • Hi all.

    Just a quick update.cancer count is going down lovely.

    Got letter from NHS apologizing for delays due to covid.

    So just waiting till possible to get Tests done,then hopefully I'll feel better (that would be very good),head feels like cotton wool., Brenda says I walk like a gorilla feel like it as well some times.

     Hope all my cancer friends are keeping well and keeping positive and fighting if there not.

    Love to all Billy xxxx

  • Hi to all My cancer friends new and old ,on the forum not in age of course..

    Got appointment for my Day in hospital,(called day curve) blood taken,9.00.  ,1200. .1300  .1500and1700. Hope I've got enough.  Then hopefully results should show what's going on with my meds,then get things sorted hopefully before Christmas,,so I feel well enough to have a nice meal with no problems,.

    I apologise to all My lovely friends for not talking to them much lately but struggling to figure words out properly sometimes better than others like just now good.   Brenda still improving slowly

    Hope you are all keeping well and getting ready for the festive meals.

    Love Billy xxx

     

  • Hi my forum friends.

    Had my blood tests yesterday a friend took me and brought me back while another looked after Brenda., would really be lost without them,they wont take anything for it so all I can do is thank them and hope they will accept our Christmas present to them all they say is they're being good neighbors.which they are.

    Nurse asked if I wanted cannula or neadle in five times I said cannula didn't realize they draw blood out before they blood test so actually took three times as much blood as single blood tests.slept right through the night still worn out today 

    Hope my cancer friends are looking forward to Christmas.

    Love to you all Billy xxxx

    Merry Christmas.

     

  • Hi all forum family.

    Just a update blood test results All ok that baffled them as so sure about it.

    BP keeping low quite often 84/50 actually getting usto it but don't like not being able to think very clear , not safe to drive.

    PSA still going down last test 0.6 so quite good compared to 86 , last year.

    Hope all forum friends are keeping positive and fighting.

    Love to all Billy xxxx

  • Hi there ... your totaly amazing billy ...

    You go on ... no matter what ... always trying to help others with all your going through ... I'm not to cleaver on different tests ... but everything crossed and hope the man up there is looking down and keeping you safe ... good to see you have your own little blog ... it will deff help you through ...

    Big hugs to you and Bren and that little doggie of yours ... keep well Billy... big vertual hug as always... Chrissie x x 

  • Hi Chrissie.

    Couple weeks ago specialist said stopped one of My four new tablets difference is amazing still slightly fluffy headed but alot better slept better, eating more,.

    BP still low 80s odd times 90s but I can manage okay carefully,.

    Getting wet Room fitted hoping finished next week could depend on weather (they have to travel) then brenda can have a shower first time for about 3years .carer gives her a strip wash, but its not same..

    Hope all my cancer friends are doing well and keeping safe.

    Love Billy xxxx