Cancelled Operation

 

I have just discovered my surgery has been cancelled - I have a large ovarian mass - unknown if this is cancer. The plan is to have a full hysterectomy, lymph nodes, fat lining and gaulbladder removed. I had been self isolating for 7 days and then on New Year’s Eve was told my operation has been cancelled, No idea when it will happen and No idea what hospital it will take place in. 

Devistated by this - I’m outside the number of days for treatment - no idea if this is life threatening or not - no idea when anyone from the hospital will be in contact. 

I feel so alone trying to deal with all these feelings of anxiety - my mother and grandmother died in early 50’s of ovarian cancer. I just feel totally out of control, Not sure what I do about work, do I go back -my head is just all over the place and I am now experiencing pain. Emotionally and physically struggling. 

Im also finding myself to be really angry - which is so unlike me- especially at people breaking Clovis rules as I feel they are responsible for my lack of surgery.. 

Any advice tocope with all these unknowns would be appreciated -  Thanks 

  • I'm sorry this has happen to you. My friends mother was waiting on an operation to remove kidney because of cancer. Her operation was cancel and she had it a month later. Her family kept ringing and in contact with them. She now has it over her and doing well. You will be the same. Keep strong and positive. I myself is waiting on results from a ct scan because of raised ca125 

  • Thanks for the info. 

    It's jast hard as it will be for so many people. Pleased your friends mum is doing well. My levels were raised a bit but they can be raised for all sorts of reasons which makes it complicatee. 

    Hope you get some news soon 

  • How did they find out about your mass if you don't mind me asking x

  • Hi there, I too have a large ovarian cyst mass and was diagnosed 8 months ago, I cannot get through to anyone at the hospital and feel like a ticking time bomb incase of rupture! I'm in Glasgow, Scotland where they have cancelled procedures. I totally understand your anxiety .

  • I'm so sorry to hear what you are experiencing - it's really tough to go through this. I normally am resilient and bounce back from disappointment but not this time - what do you bounce back into. 

    I did speak to the Macmillan Nurse and also my GP. I just called them, also I exercise to help the anxiety. The disappointment of not having surgery just wiped me out very unexpectedly as I am normally positive. All of what you are feeling is what I have experienced. 

    I have also discovered the hospital has a system to deal with patients according to risk - this may not make you feel any better and you might want to ask where you are on that list. 

    I live in London, so the situation is terrible. But I also understand why. ( this still does not make it any better)

    However, I heard from my consultant and I am having surgery on Wednesday at an independent hospital with my team from the NHS. There is Hope - but it is hard to see when you have no date, communication, and feel anxious. All of these things are difficult to deal with and Covid on top is like a tsunami covering everything. 

    Hope you get some answers and a way forward. 

    Take care x 

     

  • Hope you are doing well and have had your CT scan. 

    I just wanted to say - my consultant called and I am having surgery on Wednesday at an independent hospital with my NHS team  - I feel I may be one of the fortunate ones.

    Let me know how you get on  - Take care x 

     

  • That's great news, wishing you all the best for operation. Do let me know how u get on. Had my ct scan. Just waiting for results. Xx