Burkitt Lymphoma

I have almost finished my first round of three for R-CODOX M for Burkitt Lymphoma. If anyone else has had this I would love to hear your experience as it seems to be fairly rare and I can’t find many people with first hand experience of the regimen. 

 

Also all my symptoms from the cancer have alleviated and the thought of doing chemo twice more is not exciting at all. Is there anywhere I can find the research into why three rounds not two, or four, is the magic number?

  • Hi AlfE,

    I saw that you haven't had any replies yet so ran a search on the forum for Burkitt's and this thread came up https://www.cancerresearchuk.org/about-cancer/cancer-chat/thread/burkitts#post-504046  Just wanted to post it in case it is useful in any way.

    In terms of your chemotherapy regime it might be worth searching on NICE https://www.nice.org.uk  to see if you can find the guidelines for the use of this treatment with Burkitt Lymphoma.  I did find guidelines for one English NHS trust and for the London Cancer Alliance (and NHS site) that says it is given as 3 rounds for low risk patients (but obviously patient info tends not to tell you why).

    Hopefully someone that has been through the same as you will see your post and respond, just wanted you to know it had been read and that there are already some older posts available using the search function.

    Best wishes,

    LJ

  • My sister had Burkitt's lymphoma about 15 years ago now. So I don't have first hand experience I'm afraid but she's doing great and remains in remission. Good luck with your treatment.