Hi there ...

Sorry your mum has got this crule cancer in her bones too ... I'd love to answer your questions , but wer just normal people that have cancer or looking after someone with cancer.... so the ones who can help you understand more is her oncology team ... write your questions down ... and write down the answers .. as it can go over our heads ...

The only thing I may know a little about as I'm a breast cancer lass too is oestrogen tablets are usually used when the cancer is oestrogen positive as mine was ... to help prevent the growth of new lumps ... that's how I understand that any way ... 

You could always give our nurses a call on their free phone number as they know more then us ...

Chrissie x

Thanks Chrissie

I was under the impression them tablets was suppose to slow it down :(

I don't have a clue if she can still have surgery or not to remove the tumour where it started.

I can't ring anyone I get that horried lump in my throat

Thanks lisa

I was diagnosed with invasive breast cancer today, having surgery jan 3rd, was told I will be on hormone inhibitors as I am post menopausal, how are you getting on with your meds? Xxx

I am sorry to hear your news, everything goes in a whirl doesn't it? It's an awful lot of information to take in. Have you posted to the nurse on here? They may have more insight for you and reassuring words.....xxxxx

Hiya

No I haven't. I'm so sorry about your news glad you have a date, enjoy your Xmas and new year with friends and family.

Our doctor oncologist we see today didn't have any answers they were so busy so was trying to Get us in and out. I woke up early hours crying thinking what can I do to make my mum's last few years amazing brilliant memories. But they does not stop this horried broken heart I have.

I really hope the 3rd of Jan goes well for you xx

So sorry to hear this Lisa.

i am on oestrogen inhibitors - Anastrozole. The doctor was very positive about it and said it starts to work immediately by starving the cancer. She gave it me before the scans and said it would start to work on the tumour and any others that were around. I have been on it for less than a month and my tumour is smaller. I was put on these first and will have mastectomy in the spring.

i am sorry the specialist was rushed. Where I go there are notices up saying “you will not leave here without knowing what the next step will be”.

i rang Macmillan nurses when I was really concerned and they were lovely. I also visited my GP who was very supportive.

They are very clever these days and survival rates are increasing year by year.

Best wishes to you and your mother

Hi there Marilyn.. 

I had tamoxifen as that is kinder to bones, as I have lots of bone problems any way ...the first month, my emotions was all over the place ... crying at everything ... and I think I'm a tough cookie ... but had a mild anti depressant for a while and it all evened out ... and been on them 15 months now and feel fine ...

Try to put the op out of your mind for now.. it will come round soon enough ... and for me looking back it was waiting for my masectomy that was the scariest... because it was the unknown ... but quite a few of us breast lasses on here have said it was a lot better then we'd imagined in our heads...

I'm fine with my scar instead of a boob... coz I look at it and know that's why I'm still here .. and 17 months down the line doing really well .. and I had a grade 3 her 2 neg oestrogen positive lump .. all us regulars are still standing on here and it isnt a ride in the park but it is doable ... you'll always find support on here .. and we all remember just how scary it was in the beginning. . Always here if you wanna chat ..

Chrissie

Thank you for such a lovely reassuring reply. I veer from being a martyr to a jibbering wreck. This forum is a god send, there in nothing like chatting to women in the same boat and sharing our experiences. Have to admit to the waiting being the hardest part as I just want the damn tumour out now....thank you again for your support.....xxxxxx