Hi Chris, 

I'm really sorry to hear this. I remember you posting on the waiting for biopsy results thread several months ago when you got the all clear.  I can't imagine how devastating and scarey this latest development must be for you. 

When do you find out what the PET scan results showed and what's next for you? 

I know I can't solve any of this for you, but I just wanted to reach out and give you a massive virtual hug. 

Mickey xx ️

My story is very similar got a 2 ww breast apt last June as nipple was inverted and breast pain had an ultrasound told an age issue i am 55 blocked nipple ducts and diagnosed with Duct ectasia nothing to worry about so i literally skipped out of the hospital.

Forward to September same breast started to feel hot and a red rash returned to the doctors numerous antibiotics as doctor thought some kind of mastistis. Got another referral in November had another ultrasound to be told 95% sure breast cancer got my results two days later told stage 4 metastatic breast cancer no cure just can be managed started my hormone therapy treatment a month ago my life has totally changed i will be having a CT scan every 3 months to see if treatment working ...the more i have read up on about breast cancer i have realised it happens alot and it is totally unacceptable. My breast tumour is 5 cm spread to my underarm lymph nodes chest area and collarbone.

sending you lots of love on your journey xxx

Thankyou for your reply and kind words! I am finding it all absolutely soul destroying. Speaking to others who are in this same storm is helping though. My pet scan has shown possible metastases in my spine and abdomen. Now awaiting ct and mri to confirm. I haven't started any treatment yet because I contracted cobid last week. Just waiting in limbo. I hope that you are doing well x

Hi Paula, I'm so sorry you too are In this same awful situation! Where is your metastasis?  Have they not offered chemotherapy? Sorry lots of questions! Im always interested in different treatments. I think the misdiagnosis is a hard pill to swallow as it opens up all the what if and if only and if you're like me thinking I thought I had done everything right found the lump went to docs remained vigilant but still ended up here in this horrendous situation. Sending lots of love and hope to you xx

Hi because mine is hormone-dependant breast cancer and been through the menopause my treatment is tablet based i take Letrozole and and Ribociclib ( one a aromatase inhibitor drug other just an inhibitor) i have not had any side effects at all....with my stage 4 cancer not curable it is just being managed so fingers crossed it keeps the tumour size under control and hopefully it doesn't spread. So literally counting down to March for my scan and results....i still feel annoyed as if my cancer had been caught in June it would have been early days and treated and i would have a light at the end of the tunnel but with my diagnosis it is literally just waiting scan to scan and no ring of the bell situation ...hope you get sorted soon as waiting is the hardest part xxxx

Hi, I had 2ww and mammogram done, as well as ultrasound.  Been told its duct ectasia, and not sure what to think, as I'd never heard of it. I'm getting a 2nd opinion as I'm not satisfied.  My nipple is still inverted and itches so much, dont have any discharge either. Feel a bit lost with it all right now. 

Sending love 

X

Hi I'm sorry you are dealing with this right now but I have a horrible feeling this is happening to me. 
 

I went with a lump back in November, they felt it and did an ultrasound and said it's fine can't see anything alL looks good. 
got discharged. 
fast forward to now I have a bigger lump below the original one and I have a large indent area between the two lumps. Had a fine needle aspiration which came back as possible malignant, so again had ultrasound, mammogram, tomography and an MRI which they can't seem to see anything on or concern, so I've now had a needle core biopsy and my consultant has said she's not worried as nothing can be seen. But I just feel like somethings not right, I'm 39. So just waiting now on biopsy results to see what they say. But my concern is now if my biopsy is fine why was my fine needle one not??? How can it say I have cancerous cells but then they say it's fine???? 
 

its awful that these things are just so over looked or mos read! I hope you get all the help and treatment you need! Big love

What a worry. My heart goes out to you, it is such a stressful time.

From my recent experience I've discovered I have moderately dense breasts which don't scan well, add into that my lobular cancer which doesn't like showing on scans at the best of times, and they really did seem to struggle to work out what it was.

Thank goodness for biopsies, as horrid as they are. That's how mine was eventually diagnosed. And that's why it's so good that they've done a biopsy on you. It will show what is, or hopefully is not, there.

The waiting sucks though doesn't it. I know how you feel.  Hugs xx

Yes I'm just hoping the biopsy was done good enough that we get an accurate result. As my first fine needle one was C4 so how can that be wrong. 
it's scary that they are quite happy to dismiss something just because they can't see it! 
 

I hope you have had your treatment and are getting better! The wait is just beyond agony and I'm a medical professional as well which doesn't help as I know too much also! 
 

thank you for your reply, least I'm not going mad xxx

Hi, sorry you're having a crap time with diagnosis. I would however advise some optimism. Mine didn't show up via ultra sound but it absolutely did show upon the mammogram, ct and mri. I really would hope that if there was something there, an mri would have picked it up! Waiting really sucks but I'm really hopeful that this will put your mind at rest a bit but always remain vigilant. Sending lots of love ️