Bleeding after Colon Cancer Diagnosis?

Hi everyone,

My 1st post here after my partner has just been diagnosed with colon cancer. Firstly, thank you to everyone who posts & replies on here - you've been a huge source of comfort & information since the start of our journey here. 
I'm a little worried about my partner - she was diagnosed with colon cancer after experiencing blood in her stools - she had a colonoscopy which revealed a tumour. The hospital and doctors have been amazing and she's now booked in for a resection in two weeks time.

in the meantime though - she's having quite large losses of blood from her bottom - large clots of blood - sometimes with bowel movements and sometimes just appearing on their own in her underwear. We feel positive knowing she's going for her surgery in 2 weeks but it's quite worrying waiting till then - is this normal? Does this mean it's getting worse? Any advice or experience appreciated!

  • I'm so sorry to hear of your partners diagnosis it's amazing she has a wonderful and supportive osrther in yourself and I'm sure that's invaluable to her at this time, so keep on doing what you're doing. 
    I have nothing to offer regarding her bleeding but if you're concerned please do get into contact with your cancer nurse or specialist regarding this, 

    I really wish you both all the best Charl x

  • Thanks so much Charlotte, your posts have actually been ones I've been reading & taking comfort from - it's just good to read other people's experiences who are going through the same thing; especially when everything is so new. I hope all is going ok with you and sending lots of love & thanks for sharing your posts. 

  • I passed a lot of blood when I was diagnosed and it just got worse after I started chemo! Hope that helps x

  • Hi Hellopan and thanks for posting, 

    I am sorry to learn about your partner and can appreciate that waiting for surgery is a worrying time.  

    I think a bit of bleeding is to be expected as tumours can bleed and this isn't a new thing for your partner, but I appreciate it can be difficult to gauge how much blood is too much blood. Perhaps it would be helpful for your partner to compare it to the quantity of blood lost in a period to get a feel for the amount lost. I think if it is more than that she should let someone know, but even if it isn't, it would be a good idea to get some advice from the specialist team involved in her care as they know her.  If need be, blood tests can be done to check that any bleeding isn't enough to cause anaemia.

    It goes without saying that if the blood is really pouring out continously , then your partner should get urgent medical advice for example calling the NHS 111 number or even going to A&E.

    I expect your partner has a specialist bowel cancer nurse at the hospital and if so do contact them as well about this and see what they say (you usually have to leave a message and they get back to you - don't be put off by this). Or talk to the GP and get their input.  

    I don't think the bleeding means the cancer is getting significantly worse although it could be growing a little bit.  

    I hope your partner can speak to someone and that surgery goes well. 

    Best wishes,

    Julia  

  • I'm so glad to hear it, please do keep us all updated on your partners progress with the help and support of yourself and her doctors and nurses im sure her symptoms will be under control and she'll start to improve once her treatment plan has started. 
    my father also had bowel cancer and no symptoms but was stage 3 he survived and beat cancer three years post diagnosis now and waiting a stoma reversal. 
    depending on her cancer she may need a temporary or permanent stoma they take some getting used to but actually my dad said it was quite convenient to have one, still he is looking forward to getting it reversed x

  • Thank you so so much Julia, this really put our mind at rest today. It is comparable to menstrual loss and put that way it doesn't seem as terrible. I think the strangest thing is that it seems to be happening now that she's been officially diagnosed and is having talks about her treatment - it's almost like the tumour knows it's been discovered and is playing up :) I also wonder if the small amount they snipped off for the biopsy has agitated it somehow and is causing the bleeding. thanks so much for your reply and will speak to the nurses about it if it worries us again before her next appointment. 

  • Thank you CharlotteChloe - so pleased to hear about your father's recovery! Yes she's been told she'll have a temporary stoma which is obviously going to be a big change but so thankful for it also - giving her colon some time off to rest and heal! 
    It's all moved very quickly - her 1st colonoscopy was 3 weeks ago - diagnosed a week later - the week after that an appointment to go through her surgery plans and in less than 2 weeks she'll be going in for her resection. Pretty much a month from colonoscopy to removal! The speed of it all is overwhelming but also feel so very lucky and grateful that she's being cared for so quickly. Sending you and your dad lots of love and best wishes for his reversal!

  • Thank you so much for your reply Sophie! Obviously not good to hear about your blood loss but comforting to know this happens so thank you, very much appreciated! Sending lots of love!

  • Yes they move very very quickly. May I ask how old your partner is and what lead to her being diagnosed? 
    The road is long after surgery but I'm sure she'll make a full recovery just like my dad did eventually x

  • Thank you! Yes she's 42 and she's always had problems with her digestion, sluggish & bloating etc. it was getting worse & then she started noticing mucus in her stools and then blood. She went to see her GP who, because of her age, thought it might just be haemorrhoids but - and forever thankful to the GP for this! - to be on the safe side she sent her for a colonoscopy and stool samples.