Niknik, I've responded to you in the triple negative thread but wasn't sure if I'd missed a post so did a quick search. I can see that you're still waiting for your diagnosis.
I was diagnosed back in August and have a now one year old, it's very scary to get a diagnosis but for me, having a young child made it even scarier. At least mine isn't old enough to understand what's going on which helps.
Anyway, just wanted you to know I understand how you feel, hoping you get good news at your appointment.