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Biopsy results.

7 Sep 2019 16:06 in response to VicKat1

Hi VicKat

It will depend on what the MRI shows, whether you’d be able to have a hysterectomy, and normally it would be a radical hysterectomy rather than full, which means losing the top third of the vagina. Usually it’s only done for early stage, and depends on tumour size. My tumour wasn’t too big-less than 4cm, but I was staged at 2b because it was growing into the vaginal wall, which made a radical hysterectomy impossible. 

Will you be having a CT scan? I had that after the MRI to check for any spread. Luckily it hadn’t spread, but the treatment would have likely been the same even if it had. The standard is 25 sessions of radiotherapy and 5 sessions of chemo, which is Cisplatin so you don’t lose your hair, then brachytherapy which is the internal radiation which I didn’t have. I had extra radiotherapy, so 32 sessions in total. And I only had 4 chemo because my blood count dropped too low to have the last one. I was told that wouldn’t matter. 

Still, it was effective treatment and I had a complete response-my tumour disappeared, thank goodness! 

No matter what treatment you have, it’s very effective. Just keep positive and take one day at a time! xx

 

Biopsy results.

7 Sep 2019 17:02 in response to Minska

Thanks for the information Minska - I feel like I’m learning all the time!

They haven’t mentioned a CT scan - I’m only booked in for an MRI at the moment.

Its just the waiting now - I just want to get on with whatever it is I need to do to give this cancer the kick up the butt it deserves!!

xxxxxxxx 

Biopsy results.

7 Sep 2019 19:14 in response to VicKat1

The mri will give detail on where the tumour is located and how big it is. 

It will last about half an hour and it’s very noisy! But you have the right attitude..get on with it and get rid of it...exactly the same as I was. Positivity is a huge factor in all of this..keep that attitude and just get on with it. Once you can get on with it you start to regain control and get this unwelcome visitor out of you!  xxx

Biopsy results.

11 Sep 2019 23:07 in response to VicKat1

Hi VicKat1 and Minska

firstly I hope your scan went well today Vickat1?

I went for my results today and was told I had adenocarcinoma. Not the best news! Told it is treatable but need to have scan first to see if it has spread. 

Fingers crossed it hasn’t spread as they told me me I would only have to have a full hysterectomy but if it has I will  need chemo/radiotherapy. 

Just hope scans come back ok. Xx

Biopsy results.

12 Sep 2019 07:48 in response to Eaton

Hi Eaton

I’m sorry to hear your news...but yes, it’s very treatable. I found the CT scan much preferable to the mri, although I was really scared in case it showed a spread. It didn’t, and hopefully you will find exactly the same. Keep us posted as you go along. Always here for any support if you need it. xx

Biopsy results.

12 Sep 2019 13:47 in response to Minska

Hi VitKat1

That is fantastic news for you that it hasn’’t spread. And great that you get the results on the same day. Is your next step a hysterectomy?  Xx

Biopsy results.

12 Sep 2019 14:52 in response to Eaton

Hi Eaton

You’ve replied to my post but addressed it to VicKat. I can’t see where she has said about results the same day or about no spread. Confused! xx 

Biopsy results.

12 Sep 2019 20:25 in response to Minska

Hi Minska

Not sure what went wrong but here is VicKat1’s response. X

Hi Eaton

I’m sorry to hear your news...but yes, it’s very treatable. I found the CT scan much preferable to the mri, although I was really scared in case it showed a spread. It didn’t, and hopefully you will find exactly the same. Keep us posted as you go along. Always here for any support if you need it. xx

Biopsy results.

13 Sep 2019 07:52 in response to Eaton

Hi Eaton, 

That was my response to VicKat..but I didn’t get scan results the same day. That has never happened for me and I’ve had several MRI and CT scans. I was stage 2b, so a hysterectomy wasn’t possible for me-just chemo and radiation. xx

Biopsy results.

14 Sep 2019 22:18 in response to Minska

Hi ladies,

Sorry to hear your news Eaton but glad that like me we can look forward to seeing the back of it with a little help from the professionals! No MRI results yet - they have an MDT on Tuesday and will call me with the decision made.

I find that the waiting is by far the worst part - I’m a firm believer that knowledge is power so having little knowledge puts me on the back foot a bit!!

How are you feeling about a hysterectomy Eaton?? 

Thank you, as always, for your information Minska.

xxxxxxxx

Biopsy results.

15 Sep 2019 15:24 in response to VicKat1

Hi VicKat1 and Minska 

Yes I totally agree that the waiting and lack of knowledge is very hard. 

I received a call Friday afternoon from MRI dept to say they had a cancellation for Sat am which I jumped at to speed things up. I was told that the results are instant to the consultant but have to wait for them to get back to me with the results. 

If I am told that I need a hysterectomy I will be over the moon as it means it hasn’t spread enough,  and once done I will be rid of this blessed C. I am just over 50 and already passed menopause do it won’t matter to me apart from impact of being off work for 6 weeks but I can live with that as long as I know it has gone. 

Fingers crossed for both of us VicKat1 that is all we will have to face. Xx

 

 

 

Biopsy results.

15 Sep 2019 15:42 in response to VicKat1

Hi VicKat1 

apologies but my last comment may have been very insensitive toward you as I do not know your situation. Xx

Biopsy results.

16 Sep 2019 18:58 in response to Eaton

Hi Eaton.

Not insensitive at all!! I’m 40, have two wonderful daughters so I’m one of the lucky ones! I too am hoping they just whip it all out and I’ll find out after the MDT tomorrow

I’ll let you know how it goes and please keep me posted on how things are progressing for you!

Good luck 

Xxxxxxxxxxx

Biopsy results.

16 Sep 2019 22:30 in response to VicKat1

Hi VicKat1 

just wanted to wish you the best of luck for tomorrow. Hoping and praying for a good result for you. 

I will let you know when I get my results.

Xxxxx

 

Biopsy results.

17 Sep 2019 19:41 in response to Eaton

Hi Eaton,

I now know that I’ll have to have surgery of some description. I know it’s not a LLETZ as they’d do that locally so I’m guessing a hysterectomy but the nurse on the phone wouldn’t go into detail so I’ve got to wait until I’ve had a CT scan and seen the consultant. 

Once again good luck and keep me posted! Xxx