Hi dotty 

I'm so sorry to hear that you are going through this... My father has gall bladder cancer and it has spread to his liver and lymph nodes. We were told yesterday that chemo will only prolong his life for a few months. I am so heartbroken I can't stop crying. I am sorry that I have no words of advice for you, just reach out to family and friends for support.. That's what I'm doing. Its a terrible disease and I'm hoping and praying for a miracle. Much love and hugs to you and your husband xx

Thank you  Soogleloo. My husband has decided not to have chemo as he may only gain a month. I too cannot stop crying but realise that is not helping Tim. My children are being amazing, we are all in this together. Hope you find your miracle xx

Hi  so sorry to read about your husbands diagnosis. 

My husband was diagnosed on the 24th July with secondary liver lung with unknown primary. He quickly developed jaundice and palliative chemo wasn’t available as was no other treatment as it was so aggressive. He didn’t want to know a prognosis and apart from the cancer he was fit and well, on the 7th Oct he started to sleep more and more and stopped eating on the 15th we went to hospital and they said it was the final days. He kept fighting until the 21st when he passed away peacefully in a lovely hospice just with me by his side. Whilst in the hospice (we moved there the 18th) I found out that it was primary bile duct cancer that was on his notes. I am thankful he didn’t know that because we knew that It’s a very aggressive cancer and things can change in the click of your fingers. He was only just 48 by days. I can’t underatand and get my head around what has happened it doesn’t seem real. He lasted just over 12 weeks from diagnosis. We have a 12 and 14 year old and  they are the only thing that keeps me going  

I hope you have more time with your husband and treasure every minute , second with him. Stay with him all the time and your children make some memories and just be there for him. It’s the worse feeling of helplessness anyone could imagine but just being there for him will be a comfort to you both. 

If you need to talk just drop me a message  

I hope it stays as well as it can. Be thankful for your time now love to you all xx

Thank you for your reply.  I really do feel helpless but am trying to be strong for Tim. We are taking it a day at a time and spending all our time together. The one thing that helps during this awful time is that I am so lucky to have had Tim in my life, I have many wonderful and happy memories which i hope will see me through the dark days to come. 

I am so sorry for your loss xx

That’s it and that’s all you can do. I had 17 1/2 years and I am so happy to have had them but I want more still. Life is cruel. Hope you’re keeping well xx

Hello I am in the same position my husband who is 54 was diagnosed in October last year told 1 to 3 years started chemotherapy which was the only thing for him to try and keep it at bay. The whole family was and still are devastated, it was the hardest thing to tell our children . He’s lost loads of weight but still eating in and out of hospital had stents replaced and infection. Found out it has gone into liver showing multiple spots. They’ve stopped chemotherapy after having only 4 sessions so desperately hoping to get on a clinical trial. His family are so proactive doing loads of research both them and myself. Asked lots of questions about other forms of treatment as well as listening/ reading other patients stories. We are not giving up even though it feels that the doctors have, he hasn’t got time to wait around until they find something that kills or manages this horrific cancer. We are even going as far as asking for second opinion if some other specialist can give us some hope of trying a treatment that’s NHS funded. Don’t give up fighting love and prayers to all your family keep strong 

Hello I was wondering how your husband is, I understand you might not want to go on this website much of the time. I hope you have some good news.

I was asked by the moderators to see if I could be of any help. This is because my wife also had bile duct cancer. I sort of know what you are going through, so please reply if you think I can help.

Chris

I’d be grateful to talk to someone who has bile duct cancer as my dad has it now he has swollen abdomen which they says a sign the cancer is advanced yet last month I was told he was stage 3 yet they said it’s terminal 

I am very sorry to hear about your loved ones. My mum (63 years old) has been diagnosed with bile duct cancer and is due to start chemo shortly. She recently had surgery and had some of her liver removed. I would be grateful to speak to someone on their experience and if there is any hope. 

Sarah 

Hi Sarah,

Firstly can I say I'm so sorry to hear about your mum. My wife Lesley did get bile duct cancer in 2017 but she couldn't eventually have an operation due to complications etc.she had chemo instead afterwards.

If your dear mum had an op is this chemo just a short course which they often do after operations? I suppose it is all down to what your surgeon or oncologist has said. I really can't give you any advice but all I can do is hope that your mum can get better. I am sure she is getting the best care. I would like to hear how your mum is progressing.

Chris x