Hello
I just wondered if anyone on here has been prescribed the drug Bexarotene?
My 74 year old Mum was prescribed it just before Christmas after receiving interferon injections and chemo - neither of which were successful. My Mum has stage 4 Mycosis Fungoides - a rare form of Lymphoma.
However, the Consultant decided after 3 weeks that the Bexarotene wasnt working and would not prescribe the drug further. We thought 3 weeks wasnt really long enough to make this decision and that maybe funding was the main reason. My Mum is now receiving just palative care and not being treated for her cancer at all. We have been told my Mum only has days or weeks if we are lucky.
Has anyone had a similiar experience?
Many thanks
Tessa