It's been a while since I last posted but I have now completed my 6 rounds of chemotherapy for grade 3 Triple negative breast cancer.
I had the results back from my Mri scan which I had just before my final chemo, and I have had a complete response meaning that there is no evidence of the disease remaining.
My anxiety is from having to wait until 1st May for a wire guided biopsy and also an axillary node clearance as I had 2 nodes affected. I'm worried that the cancer may begin to grow back, as by the time I have the surgery it would have been almost 6 weeks since the last chemo.
During this time I have also received the dreaded news that I'm a Brca 1 carrier which was the most likely cause of my triple negative cancer.
My mum died 23 years ago of ovarian cancer.
I am 48 with 3 children 4, 5 and 12 and a lone parent with very little support around me.
My genetics counsellor told me I have a 50% chance of developing another primary breast tumour and a 40% chance of ovarian cancer.
I'm really worried about what to do for the best as my consultant said that my chance of a reoccurence is slim taking into account my complete response to chemotherapy hence I'm booked in for a lumpectomy as opposed to a double masectomy but genetics say different.
I had the cancer in both breasts and am due to have radiotherapy after surgery.
It was difficult deciding as I was pulled towards a double masectomy with reconstruction initially but have read theres no difference in survival rates between lumpectomy with radiation and masectomy and my major concern is also the practical side of things would make double masectomy very hard for me with no help on hand and with the children being so young.
It may mean that I go for the double mastectomy at a later date and just have what I'm booked in for now.
My breast nurse has also referred me to another hospital to discuss ovary removal because of the increased cancer risk with the brca gene.
I feel in a dark place right now and completely overwhelmed with everything.
I still can't believe all this is happening to me.
Does anyone please have any advice please?
I'm constantly fearing that I won't be around to see my children grow up and I can't bear that thought.