Another Worried Patient

Hi Forum,

When I woke up this morning I didn't think my day would end on chat forum.

I'm a loving partner who has been at his partner's side everyday for the last few months. She started getting irregular heavy bleeding which was put down to perimenopause initially. It didn't stop but got worse & has required transfusions.

Today was supposed to be her 1st pap smear. She is 40 & has always put it off. A bleeding lesion was found in or on her cervix so a biopsy was taken. She is being kept in hospital while they try & stop the bleeding.

We know we have a very anxious wait on the results. I don't know what to say or do to any of this as I'd never thought about anything like this. I'm hiding this from our son until we know something concrete.

I'd love to be able to be convincing when I tell her it's going to be OK but at present I'm finding it hard not to break down in front of her. I know many people in this forum or visitors who have read the stories all have their own stories that are similar or worse or better but it's great to know a forum like this exists where people can talk about it.

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    Hi Kermit,

    Welcome to Cancer Chat. You have come to the right place for information and support. It is also useful to be able to discuss your worries with people who have had first-hand experience  of cancer or are carers of people with cancer.

    I agree that this is a scary time waiting for results and hope for both your sakes, that her biopsy results don't show anything sinister.

    What age is your son? You are probably best to say nothing about this until you know exactly what you are dealing with. It's not easy to convince anyone at this stage that all will be OK, but it's not  something that you've got to do. You are both shell-shocked at the moment. No doubt she will be terrified at the prospect of what might be discovered and she is possibly letting her brain run in overdrive.

    She will appreciate your honesty if you let her know that you are there to see this through with her. My husband was terrified that he was going to lose me when I was first diagnosed with breast cancer 7 years ago. I discovered another lump in the same breast the following year. Fortunately this was another primary.

    I lost my Mum to breast cancer after caring for her for 12 years. She was only told about the metastases in her final year and deteriorated very quickly in the end. Her final months were horrendous to watch and I think that my hubby expected this to happen to me. We have now discussed all this and are quite open with one another. He attends all appointments with me and we draw up a list of questions before every consultation. He comes armed with a duplicate list to ensure that I ask all the questions and he writes down all the answers. This is very helpful as we only remember a small percentage of what is said in the hospital. Many people do this,, so you don't have to feel the odd one out.

    I sincerely hope that your partner gets the bleeding stopped and can soon get home again.

    Please let us know how she gets on. Remember, that there is always someone here for you whenever you feel like talking.

    Kind regards,

    Jolamine

  • Well it's not good news. She has cervical squamous cell carcinoma.

    More tests are required to check stage before a plan is formed.

    Neither of us are handling it well.

  •  So sorry to hear this news, it is heart breaking and soul destroying when someone gets news of this kind. Its hard to offer any comfort at this stage but, please know that people who reply to you know what you and your partner are going through to a degree and feel for you both, even not knowing each other personally. At this stage im waiting on getting a biopsy  and i dont have any results of any confirmation yet, even though my Doctor did say  my symtons are not looking good, with in a couple weeks had a ultra sound and from there i have been sent for a urgent referal to the womens department for further testing and a biopsy, my mind has gone into over drive day and night and i feel a dread feeling i cant get rid of, it is a very difficult thing to handle. I wish you and your wife the best of luck

  • Thanks everyone for your support.

    Luckily the initial results were under 24 hours & we have more results & tests today & tomorrow.

    We hoping to have a plan tomorrow or Monday on next steps.

  • So sorry about your awful news. I'm not a medic but know cervical cancer is serious and that you both have a difficult road ahead. But a quick google shows that there are many survivors of cervical cancer out there, even when quite advanced, who have gone on to live long and happy lives. I really hope your partner is one of these. My very best wishes to you both and your son. xx Harry

  • Thanks for your words Harry.

    Luckily we have a PET-CT & MRI scheduled for tomorrow so have been informed we'll have an action plan by the end of tomorrow ready to start treatment on Monday.

    The staff have all been excellent. My partner & myself are trying to be more logical now so will await for the specialist to give us more information.

    I've read a lot on cervical cancer today & have seen there is treatment at all stages but would obviously hope for a very low stage.

    I'll update once I know more.

     

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    Hi Kermit,

    I'm glad to hear that things are moving so quickly for your partner. This will be daunting for you both, but it is just as well to start treatment as soon as possible. Please make sure that you only visit bone fide sites when you are reading about cervical cancer. There are a lot of sites which are poorly researched which can give a lot of scary misinformation.

    I presume that you will tell your son once you've got all the results in? I'm not sure what age he is, but children have big ears at times and can sense when something is amiss.

    I hope that the PET--CT and MRI go well tomorrow and that this turns out to be low grade.

    Kind regards,

    Jolamine xx

  • I'm visiting just government websites & reputable charity websites for treatment options.

    Our son is 16 so luckily he has a life outside of us. Currently he is staying with family that involves 2 nurses so they are keeping fears at bay. When we get our plan moving forward & know what stage it is then he will be told.

    PET-CT is in 12 hours & MRI is a little after that. The only issue is the bleeding lesion on the cervix. It has been packed for the last 24+ hours in hope to stem it & it will be removed before the PET-CT scan.

    She has had blood & iron transfusions today so hoping that will increase levels of red blood cells & iron & help clotting.

    It will be good to have an answer within 24 hours but obviously if one doesn't come we have a very anxious wait over the weekend. Still hoping for a low stage diagnosis of course but I think anyone waiting for any type of diagnosis is after the best possible outcome.

    Again thank you for words of encouragement.

    Kermit :-)

     

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    Hi Kermit,

    I am glad to hear that you are sticking to reputable sites.

    It is good that you have been able to settle your son with family. Having a nursing background should help them to reassure him. You are doing the right thing. There is no point in telling him until you know exactly what you are dealing with.

    I hope that the bleeding will have stopped when the packing is removed and that the tests today will answer some questions for you. I also hope that you get them before the weekend, as this should save you both a lot of extra worry, that you could well do without.

    Stay strong,

    Regards,

    Jolamine

     

  • Well the biopsy came back as possible malignancy. PET-CT was completed this morning & MRI is in 2 hours. Unsure if the bleeding has stopped as some blood has been found after the gauze packing removed so they are keeping an eye on it.

    The initial gynecologist is referring this to a specialist who takes over once the MRI is completed. We've been told an operation or radiotherapy/chemotherapy or a combination is required. To what extent is unknown though.

    She is a little cranky though as has been fasting now for 13 hours & still can't have anything for another 3 hours due to the scans.

    It appears we may get a full diagnosis today or tomorrow (which being Saturday seems strange but I'm definitely not complaining).

    Will update when I know more.

    It's good to have somewhere to air my feelings on this as I'm able to support her. Luckily so far I haven't broken down in front of her.