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Anal squamous cell cancer

14 Feb 2018 03:39 in response to gilliebean

Hi Gilliebean,

It really helps to rinse your mouth with a salt water solution after you eat.  It healed my mouth very quickly each time an ulcer was trying to pop out.   I got a nasty looking huge ulcer on the roof of my mouth during treatment (it looked like a boil).  The salt water solution was very soothing and offered immediate relief.  It would help your throat, too if you can gargle (I choke when I try).  In case you aren't familiar with it here are the portions.

 

8 ounces warm water

1 teaspoon salt

2 teaspoons baking soda (optional)

 

 

Anal squamous cell cancer

14 Feb 2018 04:26 in response to Suzym

Hey Suzy,

I lost 20 pounds and have not invested in any new clothing because I hope to put the weight back on.  They went after my lymph nodes and vagina (as well as my bum) and my skin broke down towards the end of treatment.  The nurses suggested that I allow everything to "air".  I wore a skirt around the house and no underwear while going through treatment.  And I slept in a large t-shirt and no underwear.  When I was in the hospital I would stack the covers and pillow on one side to shield myself from anyone that might walk in and I left the covers off of that area.  Leggings are really soft and comfortable although not my best look while so skinny.

I was given a sheet to wrap around me during radiation treatments.  All clothing from the waist down must come off, but they covered me in a sheet.  If you wear a skirt or dress you could probably just pull it up.  There are so many doctors and nurses and they all want to/need to take a peek.  Although I hate for anyone to see me naked, the inhibitions went away pretty quickly.  

Also, unscented wet wipes are best to use.  Toilet paper can take the skin off.  And dab instead of wiping.  They should prescribe a lotion that helps the skin to heal, but also coat the area with ointment when not going to treatment.  I hope I'm not offending anyone or this isn't too much information.

I'm so glad you have the option of a room should you need it.  I was so happy to have people taking care of me and cried when I had to tell them bye.  

Anal squamous cell cancer

14 Feb 2018 07:52 in response to texasgirl
Hi texasgirl, thank you for this info. I know all the treatment is to make me cancer free but you've answered my concerns about everyone seeing my bum... not that I have a particularly big one or anything! I already use water wipes for the toilet part, after my surgery I found them much gentler than paper. All the advice does really help and will help others. Sue x

Anal squamous cell cancer

14 Feb 2018 22:03 in response to Suzym

Hi Sue

i was just thinking - here in Scotland there is a website called cancercars.co.uk they arrange to pick up patients and take them to their radiotherapy appointments - it’s a fantastic service that a few people told me about. I don’t know if there’s anything similar in Wales and England.

or maybe at the hospital you’re attending g they’ll have something similar.

good luck Sx

Anal squamous cell cancer

15 Feb 2018 00:37 in response to SandsJ

Hi sandsj, they do provide transport  in a taxi I believe, but I've been told they could pick you up at 8 am, and you might not get back home till teatime, as you have to wait for everyone in your taxi to have treatment, I've decided I'm just going to drive myself as long as I'm OK to, then my daughter and son in law will help if it gets too difficult.

Sue x

Anal squamous cell cancer

18 Feb 2018 01:07 in response to texasgirl

Hi Sheri 

thanks for that I will try it , am finding it hard to drink any warm drinks and then I tried with a straw which obviously by passes your lips and it's great ! Feeling very tired and having a lot of nerve pains in my legs did you get that? So glad to have this weekend off the burning around my groins is very uncomfortable but am slapping on cream whenever I can!  When I blow my nose it's bloody too that's from the chemo they said. Laying down is much more comfortable than sitting now! Hope you re feeling better.  Gilliebean x

Anal squamous cell cancer

18 Feb 2018 01:24 in response to Suzym

Hi Suzy 

I worry about you driving yourself isn't there anyone that could drive you?  People always say is there anything I can do maybe you should ask your friends if they could help out I m sure people are only too willing to help but you have to let them. I m lucky that my husband takes me every day but you must know somebody? Do  you have a start date yet ?  I know Mandy said she is starting on Monday but can't remember if you said you have one , anyway it is better when the treatment starts you feel at last something is being done! I was not so lucky in that mine had spread in the months waiting for treatment but it was 3 months ! I do wish you all the best .

Gilliebean xxx

Anal squamous cell cancer

18 Feb 2018 01:58 in response to gilliebean

Hey Gilliebean,

You just need the water warm enough to dissolve the salt or baking soda.  The water does not have to be warm when you swish it around in your mouth.  I used it at room temperature.

I'm so sorry you are feeling bad.  The burns are really miserable.  You and I both had issues towards the front as well.  How many weeks have you been in treatment?  It eases up a couple of weeks once treatment stops.  I didn't get shooting pains in my legs during treatment, but I had an unpleasant experience a few days ago with pain in my leg all day long.  A varicose vein was protruding all of the way down my leg.  I was worried about a blood clot, but it was fine the next day.  My hipbone really ached until after treatment.  I was so worried that the cancer was in the bone.....but of course it wasn't and it would have shown in the PET scan prior to treatment.  The doc didn't have an answer for me (said she was just a bum doc).  I think the tumor was pressing on a nerve which caused the pain in my hip.

I am still experiencing pain when I sit on my bum 4 months out.  But I have an ulcerated spot that is going to take a long time to heal due to the location.  I try to position a pillow under my legs so that my bum doesn't actually hit the bottom of the chair or sofa.   

I'm feeling so much better, but the nausea is tough to deal with.  Even with the nausea it's much better than the last 8 or 9 months.  I'm going to see another specialist for that.  I would rather not, but the docs think it's necessary.  I'm almost back to my old self (if that's possible).

Anal squamous cell cancer

18 Feb 2018 09:25 in response to gilliebean
Hi Gilliebean, I thought I'd replied to your message but can find it now!!! Aww thanks for your message, I was really touched by your concern xx. We have sorted me getting to and from treatments now. I do live with my daughter and her husband, her husband works so is now always free and my daughter suffers really badly with anxiety, so I was trying to come up with suggestions for travel without being too much of a burden to them. We all had a good chat last night after she got really upset as she feels she's not doing enough for me ( she is there for me which is more than enough). She is going to drive me and the days her hubby is free he will drive, the trouble is we live 50 miles away from the treatment hospital and although she passed her test 2 years ago because of her anxiety she tends not to drive much, it we've decided this will be a good experience for her and hopefully help her and me! She nursed her husband thru bladder cancer last year... He is OK now, he did loose his bladder but the surgeon reconstructed a new one from part of his bowel. And now I've got this, sometimes it just feels so unfair. I do have other children but they live in Birmingham, 150 miles away from us! Although my eldest daughter will come over later in the treatment to give those 2 a break. I'm seeing the oncologist on Monday so hopefully I'll be starting radiotherapy soon. I will be glad when its done and I can get back to being my boring self lol. How are you now, how is your treatment going? Sue xx

Anal squamous cell cancer

18 Feb 2018 09:51 in response to gilliebean

Hi gilliebean

You sound like you are suffering. I hope it eases soon....texasgirl has given good advise so I hope it works for you.  

I don’t know if anyone had a cold  prior to treatment? I had the flu jab on Monday which I was advised to do and now have an awful sore throat and tickly cough..with little bit of runny noise. Do you think treatment will still go ahead? I also had a call from the hospital Friday to say that my treatment time had changed from 9am tomorrow to 3pm.....shame as I am anxious to start but at least it’s still starting tomorrow! Have you heard of anyone with a cold prior to treatment? Did you have a flu job?

good luck with the days ahead...I will be thinking of you! X

mandy

Anal squamous cell cancer

18 Feb 2018 11:51 in response to Suzym

Hi Sue 

hope you get started soon - my hubby doesn’t drive sk st first I was determined just to drive myself but my nurse told me that friends and family can feel really helpless when someone is going through this do letting them drive you lets them feel they are helping. My best friend was like your daughter not very confident and although passed her test years ago only ever drive to the shops and back - so I felt guilty when she said she’d drive me most days after the first couple of weeks - but you’re right it does help with their confidence  - we didn’t have such a long journey as you but she was whizzing up and down the motorway in no time at all.

Ill be thinking of you next week take care and be kind to yourself xx

Anal squamous cell cancer

18 Feb 2018 11:54 in response to Mandydk

Hi Mandy

i didn’t get the flu jab last year and I’m not an expert but maybe your symptoms are just a wee side effect of the jab. 

I think I did have a wee bit of a cold at one point during my treatment but it didn’t stop then it - you’ll just want to get started now - hope you get on ok I’ll be thinking about you take care Sxx

Anal squamous cell cancer

18 Feb 2018 13:46 in response to SandsJ
Hi Sandsj, Yeah my daughter actually said to me in the end that she wants to drive me, she is out doing a dummy run at this minute to see how far it is. It's an easy road it's dual carriageway all the way almost. The trouble with me is I'm so used to being independent, I'm never I'll and am usually the one who does the looking after, I need to learn to accept help now. It's just the first oncology tomorrow and that is at my local hospital just up the road, so thats ok. Not sure how long after that ill have to wait for planning, hopefully not too long. Love Sue x

Anal squamous cell cancer

19 Feb 2018 00:57 in response to Mandydk

Hi Mandy 

i was advised to have the flu jab before my treatment even my husband, we had a sniffle from the jab but it soon went. Try and stay away from people with coughs and colds if you can as your immunity will be very low especially once chemo starts. I m into the third week tomorrow get so incredibly tired but you just have to give in to it and reast is a wonderful thing!  I m usually very active so find it hard and a bit frustrating not being able to rush around! I don't envisage me ever rushing around again at the moment but maybe it's time to take things at a slower pace now!  My husband and I are like the tortoise and the hare! It sounds like your treatment could possibly be a couple of weeks away but once it starts you will feel better that something is happening! Make sure you have a bucket in the car just in case!  You may not need it but just knowing it's there gives you peace of mind. Sometimes although we only have a short journey to hospital , if we get stuck in traffic and coming back from treatment it sometimes makes me feel abit nauseous. Again fingers crossed that you ll start soon . Love Gilliebean x

Anal squamous cell cancer

19 Feb 2018 01:00 in response to gilliebean

Sorry just reread and I see you ve got  your start date I d confused that bit with sue , chemo brain!!!  Good luck x