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Anal squamous cell cancer

5 May 2018 08:31 in response to Suzym

Hi Sue, thanks for your reply.

The aquamax is the emollient they gave me to moisturise my skin, can’t use that now as skin is broken.

I expected to get morphine gel to slap on, like you and others had mentioned, but no, this hospital trust don’t recommend it’s use!?!? 

He gave me liquid morphine to take as a stronger pain killer, but I just wanted something to soothe the area, especially my lady bits! Xx 

 

Anal squamous cell cancer

5 May 2018 08:41 in response to lisa1975
Hi Lisa, I can't believe they don't give out more to help. It gets very painful, you won't manage without more help. I found the gel an instant relief, even with the itching. I still use it occasionally and the Diprobase but my bits are getting better now. All the broken skin has healed, with me now it's just the going to the toilet pain. My wee doesn't burn now but I have to be careful how I sit as I can feel the inside my lady bits and anus are a bit tender. As I said I have 2 tubes of Diprobase I can send you, although I think I went thru about 5 tubes altogether. Send me your address if you want them. Did they give you a potty? That was a godsend, I use that for going to the toilet then clean water with salt to sit in for about 10 mins each time, I'm convinced that helped my broken skin too. Sue xx

Anal squamous cell cancer

5 May 2018 10:46 in response to Suzym

Hi Sue, you’re very kind to offer! I think I need to book an appointment with the GP on Tuesday morning and ask for something more, they may not even need to see me, but be willing to prescribe anyway. 

Did you use the Diprobase on broken sore skin? I thought  that would be a similar product to the aquamax- told not to use that on broken skin!?

I have my own bidet that is the best thing I’ve ever bought!

Anal squamous cell cancer

5 May 2018 11:22 in response to lisa1975
Hi Lisa, Yes I used Diprobase all the time, even thru treatment. And the morphine gel morning and night, but with the gel it had to be prepared especially so they needed 3 days notice . If u change your mind let me know and I'll send you the Diprobase. Sue x

Anal squamous cell cancer

8 May 2018 15:19 in response to Suzym

Hi Girls

i have radiation cystitis, very painful to pee!

did any of you hav this and if so can you offer any advice. I’m drinking lots of water which eases it although having to spend more time going to the loo. Is there anything else I can do?

Lynne xx

Anal squamous cell cancer

8 May 2018 15:34 in response to Lyndylou67

Hiya Lynne,

Yes I got it too. The best thing I found for it was peelng into warm water on my potty and painkillers. There' not a lot you can do, the good news is it doesn't last too long, well it didn' for me. The worst thing I've experienced is the pooing thing. It's only now that I feel things are settling down a bit and I'm 2 weeks post treatment now.

Sue xx

Anal squamous cell cancer

8 May 2018 15:50 in response to Lyndylou67
Hi all, Yes peeing pain and pooing pain.....we all have had it! One good this is it does go and quite quickly when I look back. I found the most relief for me was cold water pouring over my front end using a jug when I had a wee - the cold water took away the pain of going and pooing in warm water eased the other end..... It only lasted a week or so although at the time was horrible. I was lucky enough not to use any pain killers or gel like everyone has mentioned - although a nurse told me after treatment to go to waitrose and buy baby bottom butter and it was lovely - smelt divine also!. My Dr didn't like us to use anything so I had to grin and bear it! I'm pleased to say I have no pain front or back now and I have my first Dr appointment tomorrow after treatment - i.e. 6 week later appointment. Sue mentioned warm water peeing - if it doesn't work for you try the cold as it definitely took the pain away for me....good luck and don't forget it doesn't last long. love to all. Mandy x

Anal squamous cell cancer

8 May 2018 17:58 in response to Lyndylou67

Hi Lynne,

I used A&D ointment to coat that area.  It is clear and doesn't have an odor. It's similar to vaseline.  It keeps the urine from burning the skin; however, it does not heal the area.   I would not put it on until after treatment that day.

Yeah Lisa!  

Sheri xx

Anal squamous cell cancer

8 May 2018 18:09 in response to texasgirl

Hello Ladies,

Did anyone have tummy issues after treatment was completed?  I had bad diarrhea during treatment but I didn't have stomach cramps with it.  For the past few months I have been doubled over with stomach pains.  The gastro doc thought it was my gallbladder which is low functioning and referred me to a surgeon.  The surgeon does not believe that the gallbladder is causing the severe stomach pains.  So we are still trying to figure it out.  I do not have any food allergies.  

Sheri xx

Anal squamous cell cancer

8 May 2018 18:13 in response to Lyndylou67

Hi Lynne, I have it too at the moment! Dread going to the toilet! (Sore to both pee and poo!) 

All I do, is drink plenty, keep dosed up on pain killers and pour cool water as I wee, helps a little but still bloody sore! 

Anal squamous cell cancer

8 May 2018 22:07 in response to texasgirl
Hi Sheri, I’m sorry to hear you are having stomach pains. I haven’t had any but still suffer with the need to go to toilet urgently. I don’t however get any pain ...I hope they do more tests and it gets sorted for you. Wishing you well..love Mandy xx

Anal squamous cell cancer

9 May 2018 02:33 in response to Mandydk

Thank you, Mandy.  I still suffer with that as well.  I don't venture out much and stay close to my potty.  I will have a few days where it's not so bad and then days of having to stay home.  It seems to be food related.  

I'm so glad to hear that you are doing so well.  

Big hug, Sheri

 

 

Anal squamous cell cancer

9 May 2018 09:32 in response to texasgirl
Thanks girls for advice. Used my bidet to wee in, much better. The hospital did take wee sample yesterday to check for any nasties, but they did think it was the radiation. I think I might have to change pain relief, on Oramorph which makes me very sleepy but doesn’t seem to do anything for the pain, will see what they say today. Look on the bright side I’ve got less to do than I’ve already done! Lynne xx

Anal squamous cell cancer

9 May 2018 09:36 in response to Lyndylou67
Hi Lynne Hi Lynne, Don't worry I had to have my wee tested just in case of infection but it was the radiation and normal....so I am sure you'll be ok. Good luck! Mandy x

Anal squamous cell cancer

15 May 2018 07:16 in response to Mandydk

Hello Girls

 

hope you are are all doing well, where ever you are in your treatment/recovery.

i start on my second lot of chemo today and only have 8 more sessions of radiotherapy, nearly there girls the light at the end of the tunnel is fast approaching.

Now apart from the unbearable pain of pooing I noticed yesterday that there was something else in the mix, it looked liked flaky bits of skin, could this be the bum beastie being annihilated?

Oh it never rain but it pours my Mum was taken into hospital on Sunday with unexplained bleeding coming from her nether regions which considering she had a hysterectomy 30 years ago is worrying. The good thing is I visit her after my treatment, hopefully find out what’s causing it today.

Girls that have recently finished treatment what should I expect after it ends? Will I ever be able to poo again without crying?

Take care. Xx

Anal squamous cell cancer

15 May 2018 09:18 in response to Lyndylou67
Hi Well done......bear with it and before you know it will be all over. Before, during and shortly after sore bum and pooing was very painful particularly during and shortly after treatment. Week 5 and 6 were the worst for me. But, don't panic! Its only a short time and before you know it recovery sets in and you are pooing without the potty and weeing without the pain. I can sit comfortably on my bottom and everything feels so much better. Just remember 5 1/2 weeks isn't long and before you know it you'll be feel so much better. Good luck with treatment....we are all thinking of you! Love Mandy x

Anal squamous cell cancer

15 May 2018 09:19 in response to Lyndylou67

Sorry forgot to say......best of luck with your mum....thats all you need! hoping that she has a speedy recovery.....thinking of you. Mandy x

Anal squamous cell cancer

15 May 2018 09:42 in response to Lyndylou67
Hiya Lynne, I am 3 weeks post treatment finish now. All the broken skin has healed, the painfull wee only lasts about a week after treatment finished. The pooing is another matter, although my bum has more or less healed, I do not just go to the loo and can forget about it for the rest of the day, I can go about 5 times each morning, then my bum "aches" for a while which goes down the back of my legs, so I've got into the habit of taking a painkiller, then everything settles down and I can feel normal. The other thing is , is the fatigue, I have bouts of that hitting me where I have to lay down for a couple of hours, I'm expecting all this to get better over time. I'm sorry to hear about your mom, I hope she's ok and it's nothing too serious, I'm thinking of you all all the time. Sue xx

Anal squamous cell cancer

15 May 2018 10:13 in response to Suzym

Wow Lynne, nearly there and if it’s any consolation, I found the second chemo week to be easier than the first. 

I am nearly 2 weeks out of treatment now, skin has healed well although still delicate, my wee is still painful, but bareable, pooing.... no pain to go, but frequency and urgency still causing me a few probs, I have felt good the last couple of days and done some housework, bit of shopping and spent time with family and friends. I’ve not ventured far or for long, as I don’t want to be caught short whilst out, although I do have an emergency bag just in case. 

Good luck, countdown is on! 

I hope your mum is ok, keep us posted xxx

Lisa xxx

Anal squamous cell cancer

15 May 2018 21:02 in response to lisa1975

What a day arrived at the hospital this morning already for chemo, they did my blood pressure which was 92/54 and wouldn’t let chemo go ahead as BP too low. Have been there all day finally got home at 7pm have been filled with fluids and given Imodium it’s looks like the diarrhoea I had in the last 24 hours did for me.  They were going to keep me in but I was desperate to come home, they said ok providing I kept filling up with fluid and I have to go back in tomorrow morning to be re assessed. In bed now hoping all will go ahead as planned tomorrow.

lynne xx

Anal squamous cell cancer

15 May 2018 21:04 in response to Lyndylou67

PS didn’t get to see my Mum but hubby did, they are now looking at her bladder, bleeding does appear to be slowing down.

Anal squamous cell cancer

15 May 2018 21:05 in response to Lyndylou67

Sorry to hear this Lynne, it' all you need when your so close to finishing. Hope all goes better tomorrow, keep us postd, I'll be thinking of you.

Sue xx

Anal squamous cell cancer

15 May 2018 21:06 in response to Lyndylou67

Oh no! Poor you, I hope by resting tonight that you can go back tmw and get it started. 

Take care xx

Anal squamous cell cancer

15 May 2018 22:52 in response to Lyndylou67
Hi lynne, you poor thing. Hope all goes better tomorrow and all the best to your mum, Mandy xx

Anal squamous cell cancer

15 May 2018 23:41 in response to Mandydk

Hi Lyndy,

For several days or it could have been every once in a while (??) I had odd shaped, flat dark gray matter in the potty and wondered if it was part of the beast.  I am 7 months post treatment and my bum still hurts.  I have to eat a low fiber diet or it's painful to poo.  The poo pain did not ease up until a couple of weeks after treatment.  

I'm sorry you didn't get to start your last bit of treatment today.  You are almost there.  

Hope you and your mom feel better real soon.

Sheri xx

Anal squamous cell cancer

16 May 2018 12:51 in response to texasgirl

Sighs with relief, chemo has been given, although BP was still low it had improved so Dr gave the go ahead on the proviso that I rest with my feet raised, I think I can manage that!  Also had review today would you believe it I’ve got another haemorrhoid anyway can use preparation H to clear it.

Sheri, what I lost wasn’t grey matter it just looked like flaky clear skin. so sorry that you are still suffering do you still have Dr’s appointments there must be something they can do?

Also managed to see my Mum she looked quite well considering but they will be keeping her in for a while I think, the bleeding does appear to be a bladder problem.

take care all Lynne xx

Anal squamous cell cancer

17 May 2018 01:36 in response to Lyndylou67

Hey Lynne,

I never saw anything like you are describing.  I'm pretty sure I was seeing burned skin that was part of the tumor.  My tumor was quite large.

Thanks Lynne.  I have added a gastro doc to the team and a general surgeon.  Everything drags on so long.  It takes weeks to get a doc appointment and weeks to get a test scheduled.  I've had 2 tests and now they want to do a third one, but again....a 3 week wait.  Since I've cut most of the fat out of my diet the stomach cramps have become less severe.  If I continue to improve, I'm not going to have the next test.  

I'm glad your mum is getting better!

Hugs, Sheri

Anal squamous cell cancer

21 May 2018 08:06 in response to texasgirl

Hi Girls

the final countdown, only 4 more radiotherapy sessions to go. Managed to complete chemo my BP improved as the week went on. Very sore but as yet skin has managed to not break.

looking forward to getting back to normal!

take care Lynne xx

Anal squamous cell cancer

21 May 2018 09:12 in response to Lyndylou67
Well done Lynne! Nearly there and before you know it back to some normality...... 2 months ago I was in the same situation and I Have been enjoying long walks, lots of gardening and I have no pain and able to go to the toilet as normal........wishing you well and speedy recovery. lots of love Mandy x

Anal squamous cell cancer

21 May 2018 13:06 in response to Lyndylou67
Hiya Lynne, Lovely feeling isn't it, almost finished. Sounds as tho your doing ok with the side effects too. I'm almost 4 weeks post treatment now, no pain from sore skin, it's all healed. Still have my toilet moments although that's getting better every day. I too have managed walks, gardening and housework, although I do get bouts of fatigue still. You will soon be back to normal. How is your mom? Sue xx

Anal squamous cell cancer

21 May 2018 17:27 in response to Suzym

Hi Girls

so nice to hear that you doing normal things, looking at my garden the other day we are cultivating some rather nice weeds, but I can’t trust hubby to deal with as he would pull everything out!

Mum is doing ok, still in hospital, but they have the infection under control and hopefully she will be home soon. Sigh of relief.

its a shame but my hospital doesn’t have a bell, but when I finish on Thursday some of the others I have got friendly with do as well. I shall miss the chatter and laughter we have shared.

 

Lynne xx

Anal squamous cell cancer

21 May 2018 17:35 in response to Lyndylou67

Lynne, So good to hear about your mum....must be a great weight off your mind.. my hospital didn't have a bell either and everyone talking about it.....made me a little disappointed when I completed the course..... won't be long and you'll be head down and digging up them weeds! Happy Mandy x

Anal squamous cell cancer

21 May 2018 17:58 in response to Lyndylou67
I'm glad your mom is getting better, one less thing for you to worry about, your treatment is enough to contend with. Hopefully you will both get better together. I've tidied the garden today and done a bit of housework then I get my book and a drink then chill in my deck chair, I look as tho I've been on holiday lol. Sue xx

Anal squamous cell cancer

21 May 2018 18:12 in response to Suzym

Hello girls

Haven’t been on for a while it’s lovrly to hear you are all doing ok and Lynne bet you can’t believe the end is in sight.

Thats me 7 months post treatment got my next check up on 8/6 so fingers and toes crossed - it all seems a bit surreal now.

Im off for a weeks holiday with eight of my friends on Friday which I really didn’t think I’d be doing even a few months ago so there really is life after treatment finished.

 

Sending you love and hugs my fellow warriors 

Sands x

Anal squamous cell cancer

21 May 2018 18:41 in response to SandsJ

Have a lovely holiday Sandra, nice to hear your back to normal lol. I have my first follow up on the 11th June too. 

Sue x

Anal squamous cell cancer

22 May 2018 03:55 in response to Suzym

Hello Ladies,

It's great to hear that all of you seem to be doing okay (and mum's are getting better as well).  

Lynne, you and your friends should do a line dance out the door to celebrate.  Only a couple of more days and you are there!  Then the healing begins.

We did it, ladies!  This group has been a blessing.  Thank you for sharing your journey's which continue to help me get through this (some tears, some giggles).  

Hugs to all, Sheri

Anal squamous cell cancer

24 May 2018 13:24 in response to texasgirl

Hi girls

I’ve done it, treatement completed..........yayyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyyy!

Got a sore bum and just today it has started to split..........have been given lots of lotions and potions as I had my last review today.

cant stop crying, so relieved.

thank you girls for all your help, hints and tips.

Lynne xx

Anal squamous cell cancer

24 May 2018 13:35 in response to Lyndylou67
Well done Lynne, Give it a week and you will start to see improvements in your skin. It's a lovely feeling isn't it? Don't expect too much too soon. I thought I could quickly just get back to normal, it won't happen that easy. Enjoy your time now to get over it. Sue xx P.s how is your mom?

Anal squamous cell cancer

24 May 2018 13:43 in response to Lyndylou67

Best feeling isn’t it / but take it easy for the next few weeks Suzy is right takes a wee while to get back in track but that’s you done the hard bit - take care xxx

Anal squamous cell cancer

24 May 2018 13:43 in response to Lyndylou67
Well done Lynne, If you are anything like me you will recover very quickly. Everyone is different. There is no rush so take your time to feel better......you'll be surprised how quickly everything starts to repair... Thinking of you. Mandy x

Anal squamous cell cancer

24 May 2018 13:52 in response to texasgirl

Hi there Sheri, I am guessing we have all now had the radio and chemo treatment and all are on the road to recovery. Some quicker than others...... Its still something that we will all continue to think about and have concerns about but we have all managed to get through the process.  How are you now?  Have you managed to resolve the stomach cramps with the dairy free diet?  I have managed to eat exactly the same as before....not sure if thats good or not! Regular movements and not too bad with the urgency to get to the toilet - which only happens every now and then and generally first thing in the morning... My only side effect if you can call it that is the amount of wind I still have.  Do you or any of the other ladies still have this?  Having spoken to another patient with the same diagnoses on here - she said she is suffering with itching in that area but I don't have that at all.....anyone else have excess wind?  Let me know how you get on with the diet and if it causes your discomfort. Perhaps the diet I am on needs looking at..... thinking of you.  Mandy x   

Anal squamous cell cancer

24 May 2018 18:32 in response to Suzym

Hi Suzmy

Mumis improving, we are waiting for care package to be put in place then she can come home.

my joy has been short lived have had vomiting and diarrhoea this afternoon, which I think is the effects of the chemo. All seems to have calmed down now but if it re-occurs will contact acute oncology.

cant wait to be where you are now.

Lynne xx

Anal squamous cell cancer

24 May 2018 18:42 in response to Lyndylou67
Hiya Lynne, Glad to hear your mom will be home soon. Like I said, it's a lovely feeling to think you've got thru the treatment, but my worst time was the first week immediately after treatment finished! I eventually took to my bed and stayed there for about 5 days. Then I started to see improvements. Once my asking started to heal it healed quickly, the tiredness was crippling at times, I've noticed this week (4 weeks after treatment finished) that I'm not as tired and able to do more. My bowels do strange things, I have a day that I seem to spend on the toilet but then I get a few days now that I feel normal. The only pain I feel now is if I'm constantly on the loo. I don't get the runs, it's just a feeling that I need to go, occasionally I have to rush for the loo but not very often. I'm not on any meds now. Sue xx

Anal squamous cell cancer

25 May 2018 03:34 in response to Mandydk

Hi Mandy,

Can  you remind me?  Was yours caught early?   I think I'm having a hard time because by the time I got a third opinion and treatment started I was already pretty sick and underweight.  I wasn't where I needed to be to tackle the treatment.  Dairy doesn't bother me, but fatty foods make me nauseated and cause tummy aches.  I'm watching the fat content and trying to keep it at 3%.  It's hard to do and it doesn't put weight back on like I need so desperately.  I have a gastro doc appointment next Tuesday to go over what she will be looking for during the colonoscopy.  ugh  I spoke with the surgeon's PA today and she said it takes 2-4 weeks to recover from gallbladder surgery (diarrhea).  That's my biggest concern because I had such a hard time with it the last 2 weeks of treatment.  I've learned how to get it under control, but it apparently comes with the surgery and the body adjusting to it.  I prefer to just go ahead and get it out but the docs think it's better to rule out everything first.  

It has been much better as far as being able to make it to the potty.  Like Suzy, some days are better than others.  When I do have a lot of gas/wind, it's uncontrollable, super loud and unlike any gas I've experienced prior to this ordeal.  It's like a volcano in my stomach.  Thankfully I do not have that issue every day.  It is still painful to go to the potty.  It must have to do with the location of the ulcerated area.  I do not itch either.  I did during treatment but it wasn't too bad.  A good scratch while in the shower seemed to do the trick.  I think several of us are dealing with acid reflux due to the chemo.  

None of you ladies experienced hair loss, correct?  I didn't go bald, but I lost most of my hair.  I don't know how to explain it.  I only had a whispy thin layer over the top of everything that had fallen out so I cut it super short.  I think it will look better in a couple of months.  

Lynn, I'm sorry you are having a rough go of it.   I hope the days fly by for you and that you are feeling much better real soon. 

You ladies are always in my thoughts.

Sheri xx

Anal squamous cell cancer

25 May 2018 09:59 in response to texasgirl
Hi Sheri, Its good to hear from you. Although mine was I guess caught before it spread to any other part of the body it was advanced, ulcerated and 6.5cm long. I was although healthy and had no idea or side effects other than experienced what I thought was piles? Not that I had ever had them before. When I went to the Dr I was sent off straight away - diagnosed 10th Jan and treatment started 19th Feb. I finished 29th March and have had a follow up with Dr and will have MRI on 11th June. Like before treatment I feel fine. I went back to work pretty much straight away. I just had 4 days after the Easter hols to get over it. I feel lucky as I had no side effects from the chemo...no sickness (didn't take any sickness tablets given), ulcers in mouth or anything else. The only difference for me is wind. I was never a windy person before but not once I have eaten I know I will want to let rip! sorry for the description Wink I lost no hair - other than down below which is still missing - the odd hair or two but nothing else. I have had no reflux either....my worst experience was the breaking down of the skin week 5 and 6. After treatment wasn't worse for me it just gradually got better and as I said before I finished on 29th March and back into work on Monday 9th April buy finishing an hour earlier so that I could go back home for a rest ......I felt a little tired but now I am back as I was before (other than windy!). I wonder if its the position of the tumour that effects people in different way as mine was very large in comparison with some of the other girls on this site. Most were 2 or 3cm and mine was double this....It was ulcerated and I did have 3 lymph nodes possibly effected.... Sorry to hear about Lynn experiencing a rough time but I am sure within a week things will start to improve for her.... I constantly think of you and all the girls on this site. Its been a journey for all of us......including partners and family. Wishing you the best. Take care of yourself...Mandy x

Anal squamous cell cancer

25 May 2018 11:05 in response to Mandydk

Great news Lynne, well done for getting through it all.

I'm 3 weeks out of treatment and feel really good and well, just tiredness is the only thing stopping me now!

Rest up and look after yourself xx

To all the lovely ladies on here, what an amazing bunch we all are! Hope everyone has a lovely bank holiday xx

Anal squamous cell cancer

25 May 2018 11:25 in response to lisa1975
Hiya Girls, So we are all through our treatments now? Doesn't seem that long ago when we were waiting. Funny how the treatments have affected us all differently. Mandy you seem to have had the biggest tumour but got on better with the treatment than the rest of us. I didn't think mine was too bad especially as I'd had surgery first so my tumour had gone, but got all the chemo side effects you could think of. I'm so glad it's over now, I'm not back at work yet but I'm being told it's super busy there at the moment and I know once I go back I'll be run off my feet. So I'm taking my time, I never usually have time off and I've only got 2 years till I retire so I'm taking my time. We will have to all stay in touch and try to organise a reunion sometime next year. Sue xx

Anal squamous cell cancer

25 May 2018 12:02 in response to Suzym
Hi Sue and all the other lovely ladies....... Yes we'll have to get together......its been such a pleasure keeping in touch with you all....I feel that I know you all quite intimately now - my little bum buddies Happy wishing you all well xx

Anal squamous cell cancer

25 May 2018 21:12 in response to Mandydk

Hi Mandy,  Mercy!  Yours was huge!  You must have been in great condition before starting treatment.  I also wonder if the position of the tumor might make a difference on how fast it heals.  But doesn't all poop end up there and would irritate when passing through?  Such lovely things to think about.  Do you take probiotics?  My doc recommended them.

I wish I could find a cooking class for people with tummy issues.  Several people on a Facebook website swear by the alkaline diet.  But the American Institute for Cancer Research doesn't agree with it.  Medicare will not pay for a dietician, nutritionist or for psycological counseling.  I have discovered that if I eat what I want (ice cream, cream puffs, whipping cream, Mexican food, anything decadent) I have to go to the bathroom pretty immediately after eating and go often.  So I try to avoid high sugar and high fat foods.  The docs suggested a low fiber diet to avoid the painful exit.  

Suzy, you earned the time you are taking and you deserve it.  Give your body a chance to heal and have some fun before you go back to work. 

Lisa, I'm so glad you are doing well!  The worse is over.  

Gilliebean, whatcha been up to?  

I think of all of you ladies often.  Looking forward to hearing about Sandy's trip. 

Hugs to all, Sheri

 

Anal squamous cell cancer

30 May 2018 08:54 in response to texasgirl
Hi Sheri, yes your right it was a big one! I was shocked when told. I don’t know the position but I was extremely healthy and still feel the same. I have always had a good diet. I eat lots of fruit and veg and don’t even have a tablet in the house..I’ve never needed any. I guess I have been lucky and now it’s quite different. Isn’t this type of cancer prone to fair skin, freckly skin or moles...? It would be interesting to know from the other girls if they are in this category. I hope you manage to sort the diet that suits you .....do the other girls watch what they eat? Do they require a low fibre diet? I know the dr at the hospital suggested this when I was on tablets from them for fear of diareah but I never needed to change it. I don’t feel anything has changed for me other than more windy as I said before. I have my MRI on the 11th then the dr appointment the following week. I just hope due to its size it’s shrunk enough! Fingers crossed. Wishing you all well and Sheri I am sure it will settle down soon and you will begin to feel a lot better. Thinking of you always...Mandy x