Together we will beat cancer


Anal squamous cell cancer

21 Feb 2018 17:48 in response to Mandydk
So you have quite a drive as well then. No I don't know why I'll be on the picc line, I did try to ask but didn't get an answer, it was my nurse who told me I'd be on tablets in the first place. He asked if I knew how big my tumour was, all I'd been told was it was 2cm, but he told me it was actually 2.5cm x 2.5cm, so again not sure if that particularly big. I've been told once the line is in I must keep away from colds and such, and as I'm a lab technician for a diagnostic company probably not a good idea to go to work anyway. Sue x

Anal squamous cell cancer

21 Feb 2018 17:50 in response to Mandydk

Yes I was told about the palm and feet and sore mouth too.

Anal squamous cell cancer

28 Feb 2018 00:29 in response to Suzym

Hi Mandy,

Its been a while since we last chatted, how are you, how is the treatment going, hope your OK.

Sue xx

Anal squamous cell cancer

28 Feb 2018 08:25 in response to Mandydk

Hi, I seem to be having treatment at roughly the same time as you. I am 12 sessions of radiotherapy down so far and had the picc line for chemo. Was very sick from the chemo but they gave me anti sickness tablets-stronger ones that sorted that out. I have been reading many forums in preparation but this is the first time I have actually commented as felt too nervous to!! Like everyone else I am dreading the burns and am very worried. 

I went to have a standard heamerroidectamy and then they discovered cancer. Felt like my world just came crashing down. Trying to stay positive as most of tumour was removed but need to have full treatment Incase of any rogue cells remaining. 

Anal squamous cell cancer

28 Feb 2018 08:40 in response to L27

Hi L27,

Welcome to the forum and our little discussion about our bum cancers.

Your sounds very similar to mine, I went to go with piles too was sent for surgery and then discovered anal squamous cell cancer. I haven' actually started my treatment yet, still waiting for planning appointment.

Are you getting on ok with the treatment? I'e found this site a godsend , the girls on here are very supportive and you can ask them anything.

It' a very emotional time and it' nice to talk to people going thru the same thing. I found it very hard at first to tell people exactly where my cancer was, but I don't care now and I think people need to be more aware of anal cancer because it could so easily be missed.

Please keep in touch and keep us updated on how your getting on.

Sue x

Anal squamous cell cancer

28 Feb 2018 08:46 in response to L27
Hi I am into my second week of treatment 8th radio today. Feeling fine so far. No side effects and no burning but told this happens later on....the treatment for me has been chemo tablets and radiotherapy for 5 1/2 weeks excluding weekends. I didn’t have my cancer removed they hope to shrink it.....guessing if not gone they will remove but hope it will. It very much depends on how it reacts to the has been a horrible worrying time, like everyone on this site with anal cancer it’s hard to get your head around. I found it helpful to discover it wasn’t just me,,there are others out there with the same cancer and it’s been good getting opinions and feedback. How is the treatment? I don’t seem to be effected by the sickness yet but it could come would be good to keep,in touch and give each other support. I hope it all goes well for you. Best wishes. Mandy

Anal squamous cell cancer

28 Feb 2018 08:56 in response to Suzym

Hi Sue,

as I mentioned there is a lot of forums etc out there but this one seems most current. When I have read others with older posts from a few years ago I got really scared with the posts about the burns and side effects, however we must all remember we are all different. When speaking to my nurse/oncologist the machines etc are so much more advanced than even 5 years ago so the older posts aren’t always as relevant- which gave me piece of mind.

i must admit I did shed a tear when the first chemo drug went in knowing there is no going back and it was now real and starting. However apart from the one night of being sick - before new meds I haven’t had a problem with the chemo and coped with the bottle well. I got the strange taste in my mouth but no ulcers etc.We only have it for 4 days so it does go quickly. 

As for the radiotherapy I do get my appt sheet and scribble them out after each session. I’m going for number 13 today. I do have a little bit of a sore bum but nothing too bad. After having surgery in November my bum is used to discomfort. When I initially read forums about having piles removed I was very concerned but I seemed to cope better than others so trying to have positive mental attitude that I will get through this!! 

Where are you having your treatment? 

I’m at Clatterbridge 

Anal squamous cell cancer

28 Feb 2018 08:58 in response to Suzym

Hi sue

its going well thank you! Day 8 today!  Nothing much to report really. The radio is painless..just laying down and being zapped. It only takes a few minutes but I guess the more I have the signs of side effects may start to show. The 1hour prior to treatment and waiting to go in add to the visit which takes up a big chunk of the day. Have you any dates yet? I finish radio on 28th March and then see consultant 6 th May to see how it all went. Due to the size of my cancer I am concerned it will still be there at the end of my treatment and so not sure if surgery will be the next step...unless I am just being pessimistic. I have met some wonderful people just sat waiting for treatment and it makes you realise you aren’t the only one going through it and they are all as shocked as you are....nobody is except from this it’s really luck of the draw. Being positive and busy helps. I am still working half of the day....driving myself and going to rely on family towards the end should I require it. Let me know when you have news starting. Wishing you all the keep in touch. Best wishes. Mandy x


Anal squamous cell cancer

28 Feb 2018 09:04 in response to Mandydk

Hi Mandy,

My treatment is going well so far, only had sickness for one night and not really got any side effects of radiotherapy yet apart from my bum is a little sore but think it’s quite sensitive after op to remove piles. Not feeling particularly tired or nauseous either. As I understand it from asking in hospital things can start to get worse end of week 4 into week 5. Just trying to take it one day at a time. Hope things go as smoothly as possible for you. 

Best wishes

Anal squamous cell cancer

28 Feb 2018 09:11 in response to L27
Hi, My treatment will be at Glan Clwyd, I live on Anglesey. My sister went to Clatterbrige many years ago with breast cancer...shes fine now. I too will have chemo through a picc line, I'm ok with that..i think. I can't wait to get going now, I've been held up a bit cause Glan Clwyd were waiting for results from Bangor on something else. Sounds as though your getting on ok so far, hope I will too. Sue xx

Anal squamous cell cancer

28 Feb 2018 09:18 in response to Suzym

Hi sue, 

The picc line is nothing to worry about, I have had no issues with it. Even when they put it in it doesn’t really hurt as you have injections to numb the site. You have to have it flushed once a week but they do that at hospital. I can sleep properly without it causing any issues.

i hope all goes well for you, the waiting does make everything much harder. Once everything starts time goes quickly and just keep ticking those days off!! 


Anal squamous cell cancer

28 Feb 2018 09:32 in response to Mandydk

Hiya Mandy, 

I don' have dates yet. I rang my nurse on Monday she contacted the hospital and the delay was because they were waiting for the results of the endoscopy, which showed nothing amiss at all. 

I think your great carrying on with work and driving yourself and everything. I think you always make good friends in situations like these when your all in the same boat.

Look after yourself and keep us updated.

Sue xx

Anal squamous cell cancer

7 Mar 2018 08:19 in response to Mandydk
Hi Mandy Just wondering how you are getting on and how many sessions you are up to now? I’ve had 17 now and am getting sore but still coping. So glad I bought a portable bidet- just in case, but it makes things so much easier Take care, hope all is well xx

Anal squamous cell cancer

7 Mar 2018 09:17 in response to L27
Hi Everything going well, although a few minor hiccups. I have just been taken off my chemo tablets for one week because of my blood. Hopefully will resume next week. I have also had a very sore bottom. I Had one to start with but getting progressively worse but manageable. I am still managing to drive myself and working part time. I have a few helpers arranged to take me in the last couple of weeks. I have day 12 ticking them off. How is everything going for you? Mandy x

Anal squamous cell cancer

7 Mar 2018 09:42 in response to Mandydk

Same as you really, as a say a sore bum but I have found a gel that helps, it’s called StrataXRT, it’s quite pricey but when I use it, it sort of leaves a protective film on my skin that helps me be more comfortable and certainly helps with going to the loo. I just keep ticking the days off. I have my 2nd chemo bottle on Monday until Friday and then the picc line can be removed. Finding time going quite quickly but can’t wait until it’s all over!! Very impressed you are still driving yourself and working, hats off to you. Best wishes xx

Anal squamous cell cancer

7 Mar 2018 09:46 in response to L27
Hi Did the radiographers say this gel was ok to us. I was worried about using anything that they hadn't ok'ed.. I work with my husband and we only work next door to the house so its easier for me to be honest. My husband has even set up a computer link to the house so I cant get out of it Happy It does however keep my mind occupied and stops me from thinking about the whole thing too much. Good luck with your treatment. Regards Mandy x

Anal squamous cell cancer

7 Mar 2018 09:58 in response to Mandydk


yes they checked out the gel, the radiographers and my nurse and consultant. It helps me with the stinging around the bum. The skin really stings when it touches together but it gives me a little protection. 

We all need to stay positive and remember we can do this xxxx

Anal squamous cell cancer

8 Mar 2018 00:29 in response to Mandydk

Hi Mandy,

I had to ask for topical ointments.  There is a prescription lotion that helps the skin heal.  There is also a thick ointment that looks like vaseline (A & D ointment).  You can't put the ointment on before treatment (I think it might cause the skin to burn more), but it really helped otherwise.  It creates a barrier and makes it a lot less painful to go to the bathroom.

I'm sorry you have to delay the chemo, but they should be able to get you back to where you need to be real quick.

Take Care, Sheri

Anal squamous cell cancer

8 Mar 2018 13:25 in response to texasgirl
Hi Sheri Thank you for your suggestions......I am sure its going to get quite unbearable as its progressively more painful each day - even with the salt water baths. I will ask about the others your suggest. They hope that the chemo can resume once I get another blood test on Monday...I do hope so! How are you now? xx

Anal squamous cell cancer

8 Mar 2018 13:27 in response to L27



Thank you for your reply....I think its something that I am going to have to investigate....I am sitting lop sided at the moment due to the tenderness.... Sad  xx

Anal squamous cell cancer

8 Mar 2018 16:07 in response to Mandydk

Hi girls

i found the name of the stuff I was given it was polymemn non adhesive roll you just cut off what you needed dampened it with water and basically put it between your lady bits and bottom cheeks (sorry to be so basic!) it kept your skin from touching and had a soothing effect! 

I’m sorry to hear  you are all suffering it’s just not nice.

There is however light at the end of the tunnel - I saw the consultant today and got my MRI results - it’s gone and I am officially in remission! Have to get follow ups every three months for a year then if all good will go to 6 monthly check ups. I’m feeling so relieved and happy and can truly say when I was at the stages you are all at I never thought I’d get to this day.

Please all be kind to yourselves and know that you can and will get through the next few weeks months.

Sending warmest wishes to you all Sandra x

Anal squamous cell cancer

8 Mar 2018 16:11 in response to SandsJ
Hi Sandra Excellent news! I am so pleased for can now enjoy a good holiday with family and get back to some sort of normality. The check ups can only be good...wishing you all the best and I will get some of the non adhesive roll you recommend as I feel its needed! Warmest wishes to you and a bright future. Kind regards Mandy xx

Anal squamous cell cancer

8 Mar 2018 19:04 in response to SandsJ

Hiya ladies,

Haven' been on for a while.  I have finally been for my planning today. Picc line going in next Tuesday  then my treatment starts on the 19th.

Sandra that lovely news about your MRI results.

And I'm taking notes on all the advice on what to use for when things get sore. I'e got my hostel booked for the last 3 weeks of treatment. So I feel a lot happier now.

We are all getting there ladies, soon be thru it.

Sue xxxx

Anal squamous cell cancer

9 Mar 2018 07:55 in response to Suzym

Hi sue

glad that you ve got a date now ,  hope you sorted out the stirrup thing! I asked my radiologist and she said they never use them! So no need to worry about that! I ve just been prescribed morphine gell and it helps but I m sure that you won't need that until around week 4 . 

Best wishes 

Gilliebean xx

Anal squamous cell cancer

9 Mar 2018 08:04 in response to gilliebean

Hiya Gilliebean,

 Yes I sorted the stirrup thing, they were horrified I was told this information to the extent I almost didn' go for treatment. Everyone involved is aware now and the young Dr is going to be told.

Its' been drummed into me to tell them when things start getting painfull, I feel much happier about things now. Several of the staff have said to expect it to get really painful because of where it is, but that help will be there all along the way.

Will keep you updated,

Sue xx

Anal squamous cell cancer

9 Mar 2018 08:08 in response to Mandydk

Hi Mandy , 

sorry to hear you are suffering you should have a radiographer review person ,ask to see her and explain about your soreness etc they can prescribe many things and you don't have to pay because you should have a prescription exemption for 5 years because of cancer. Also you may find a cushion with a hole in the middle helps either from the Red Cross ior go on line and see if they are available . Sorry that your chemo has been stopped have they told you what to eat to get your platelets up? Eggs and banana s are good it worked for me !  Make sure the eggs are cooked not runny scrambled is good! It it does get worse of course but you will get through it and I m sure you ll have down days ,remember it's ok to cry sometimes as it's good to let it out! 

Thinking of you .

Gilliebean x



Anal squamous cell cancer

9 Mar 2018 14:23 in response to gilliebean
Hi Gilliebean I spoke to the radiographers today and they have said again only salt water. I can use something at week-ends but they have said because my skin is breaking up its prone to infection or best not to use anything during the treatment....I will definitely try the round cushion with a hole in the middle its worth trying! I haven't been told to eat anything different. She said its not uncommon at 2 week s into the treatment and likely will be ok on the blood test Monday and they will review again then to either resume or give lower dose. I am hoping will be ok. Its the platelets not the blood I would told today - white and red blood was fine. Anyone else had this problem? xx

Anal squamous cell cancer

10 Mar 2018 23:30 in response to Mandydk

Hi Mandy,

That seems so odd to me.  It seems like they would offer a topical that would help the skin to heal.  I know it's good to just let it air (giggle).  But there is a prescription hydrocortisone lotion/cream that helps the skin to heal.  Unfortunately, it doesn't dull the pain, but it speeds along the healing process.  You cannot use it prior to treatment that day.  Is there a way you can get a second opinion without stepping on anyones toes?  I'm not sure that the radiographers would know.  I think they are more on the technical end of the treatment.  Can you ask a nurse.  Both physician assistants that supported my docs gave me misinformation or prescripted the incorrect strength on a prescription.  My doc offered the cream, but I asked about the ointment which really shields the skin and makes a huge difference.  

I had issues with my white blood count (still slightly low) and the platelets.  My white blood cell count was 0.03 when I arrived at the hospital.  They were able to stay on top of it daily.  They gave me an injection for a couple of days due to the white blood cell count and also a blood transfusion.  I had just completed my last round of chemo at the time; however, I still continued with the last two radiation treatments while in the hospital.  They said it sometimes takes a year for the white blood cell count to get back to normal.  I carry surgical face masks in my bag and if I happen to get around anyone that's coughing or sniffling I put it on.  Flu season has been really bad this year so I'm paranoid of germs.  Don't worry.  They will fix you right up.  I had an especially difficult time because I started out so ill and underweight.  You will be able to fight it.

I was supposed to see my surgeon last week and would have had an update on the success of the treatment, but her office called and rescheduled 3 weeks out.  I've had tummy issues that hit about half way through my treatment.  I get really bad stomach cramps and nausea comes and goes.  I've been unable to gain more than a pound and really need to put some weight on.  Both of my oncologists said that I should not still be having these symptoms from the treatment.  They have prescribed several different medications and nothing has helped so they referred me to a gastro doc.  The doc I have been seeing is a colon/rectal specialist.  So many doctors!  I saw the new doc last Thursday after a 3 week wait to get in and she prescribed some antispasmodic medication.  If it doesn't work (and it hasn't worked thus far), I will have the scope test (hopefully next week).  They said it's quick and they will put me to sleep.  I know the chemo had a party in my tummy and apparently they had a lot of fun.  I'm ready to feel better!  This has gone on for months and months.  

Let us know how it goes Monday.   You guys are always in my thoughts.  Sheri


Anal squamous cell cancer

11 Mar 2018 14:08 in response to texasgirl
Hi Sheri Thank you for all your suggestions and I will ask to speak to someone tomorrow regarding the burns which are uncomfortable to say the least. Even if I can put some on weekends I am sure it would help. I hope the chemo will get sorted tomorrow and I catch up! You do seem to have suffered from the treatment which is taking its time to go. I hope the treatment they have prescribed works. What the scope test? You must be feeling exhausted with the continual problems. You mus also be anxious to get some results from the treatment you have had as well. I hope they sort this out for you soon and wish you all the best. Let me know how it goes. Thinking of you...Mandy xx

Anal squamous cell cancer

12 Mar 2018 07:28 in response to Mandydk

Hi I have just been diagnosed with Anal cancer on 6 March, all I know is that it is early stages, don’t know what type yet. I have a PET scan on Thursday and I meet the Oncologist on the 21 March I gues they will let me know then. Although trying to be positives about the outcome as it is early stage I’m stil very scared. I look the picture of Health can’t belive I’ve actually got this! Really embarrassing place to get it, is it best just to tell people straight? Obviously close friends and family know but I feel alone!

I have read this thread and decided to join, the treatment sounds scary to be honest I don’t know what to expect but I suppose when I meet the oncologist things will be explained?

i think you are all brave

Lynne x



Anal squamous cell cancer

12 Mar 2018 09:12 in response to Lyndylou67

Hi Lynne 

welcome to our wee support group.

i was the same as you went to the doc with a sore foot mentioned tummy was a bit iffy and before you know it was getting colonoscopy mri cat scan and diagnosed.

It is a really scary time and I think we would all agree it’s the waiting that’s hard. Like you say it is embarrassing but I just called it Botty cancer I don’t like the “a” word! 

I think for me it was the unknown once you get your diagnosis and then your planning session done and a start date for treatment I felt a bit better. 

Weve all had slightly different treatment plans on here - I had one intravenous chemo followed by daily chemo tablets and 28 radiotherapy sessions - compared to some of the girls I didn’t suffer too badly from the chemo but I think we’ve all suffered from the radiotherapy side effects but there’s lots you can do to help - for now just take it one day at a time, be kind to yourself, let others help you and stay as positive as you can. 

Im now 5 months post treatment and got my MRI results last week and was given the all clear - so there is light at the end of the tunnel.

For me this is a great wee forum as you’re able to talk to be people who know exactly what you’re going through definitely helped me feel less alone. 

Hope you’ll keep in touch and let us know how you’re getting on and if you’ve got any questions sure one of us will be able to help.

Take care 

Sandra x 



Anal squamous cell cancer

12 Mar 2018 10:07 in response to Lyndylou67

Hi, Welcome to the forum. I joined here for advice and support and I think it will really help you. I am currently having treatment, 20 sessions of radiotherapy out of the 28 done and will have my second round of chemo today. It is all very scary when you get diagnosed and my mind was going ten to the dozen. The side effects you read about are not the same for everybody, I found the chemo manageable, no mouth problems, I was sick mid cycle but they gave me new meds and that was sorted. Only now on my 5th week are my bits getting sore but it is “doable”. I must admit when the dates were set and I got started I just kept thinking each day was then another day closer to the end. Sending my best wishes xx

Anal squamous cell cancer

12 Mar 2018 10:19 in response to Lyndylou67
Hiya Lynne, Welcome to our group. You will find lots of help and support on here, these ladies have all helped me. I was diagnosed just before Xmas, after I went to Dr with piles and had surgery. My treatment starts next Monday, having a picc line inserted tomorrow. I found the embarrassment thing an issue, I still do to an extent but everyone I have seen so far have been wonderful, I tell them how I'm feeling and they do their best to put my mind at rest. My hospital did an open evening the day before my planning which we went to and found it very informative plus I got to meet some of the staff beforehand. Keep in touch , any questions don't hestitatte to ask, one of us will see it and answer as best we can. Sue x

Anal squamous cell cancer

12 Mar 2018 14:00 in response to Lyndylou67
Welcome to this small group Lynne, Don't worry! Having been on this site for the last couple of months I feel it has helped me enormously to come to terms to it....its also given me huge reassure and helped me understand that although this is a fairly rare cancer there are others out there and you aren't alone. I am half way through treatment and although everyone is different so far not too bad. Its all manageable. Once you have your dates to start the treatment is moves by quite quickly and you feel that something is being done and this in its self helps. I, like you, have told close family and friends - its one of those things that we all deal with differently. Its not that I was embarrassed - more like I didn't want to be looked at differently.. As it happens this isn't the case and everyone that now knows just wants to help you. Regarding the 'healthy look ' - well just like you I felt healthy, looked healthy and still do - apart from a sore bum! The chemo hasn't given me any side effects yet although only 1/2 way through could still give me something further down the line.. The assumption is that generally someone with cancer looks ill and feels ill. Unfortunately ..this isn't the case. I have made some good friends at the hospital that I sit with you prior to treatment and they all say the same...all shock with their news and are feeling well - apart from the diagnoses. I am sure once your treatment starts you will have had more time to come to terms with the shock. Do keep in touch and any questions please don't hesitate to ask. Wishing you well on your journey and lots of love. Mandy xx

Anal squamous cell cancer

12 Mar 2018 21:44 in response to Mandydk

Hi Lyndy Lou,

it is scary and the wait is grueling, but it should be smooth sailing with an early diagnosis.  Without my knowledge my hubby told our friends that I had colon cancer because he felt like it was a private matter.  So when I talked to the same friends about my cancer, they were very confused.  It is a bit embarrassing, but it shouldn't be.    

The radiation treatments are tyipcally quick 15 minute sessions.  Most people don't have any issues with treatment for the first two - two and a half weeks.  

I hope the time flies by for you and you have this behind you realy soon.



Anal squamous cell cancer

12 Mar 2018 21:47 in response to SandsJ

That's wonderful, Sandra!  I'm so happy for you!  Hugs, Sheri

Anal squamous cell cancer

16 Mar 2018 14:26 in response to texasgirl

Hi Girls 

I’ve been thinking of you all at your various stages of treatment and wanted to let you see there is really light at the end of the tunnel- last year when I was going through my treatment and even for a good few months after it finished I could never have imagined getting back to my favourite beach in Lagos Portugal - but her I am yesterday I felt really emotional as we walked into the beach as this was the picture of my “happy place” I imagined during those months.

so you all keep strong and know that you will get through it to and get back to a ne normality y.

sendng you all have warmest regards Sandra x

Anal squamous cell cancer

16 Mar 2018 14:32 in response to SandsJ
Hiya Sandra, Lovely to see you enjoying yourself, thanks for sharing with us, made me smile . Sue xx

Anal squamous cell cancer

16 Mar 2018 14:37 in response to SandsJ
Hi Sandra, What a lovely message! Its good you are enjoying Lagos and wishing us all well. Thank you so much...sometimes it feels like an up hill battle but keeping strong and knowing at there is light at the end of the tunnel really does help. Have a wonderful really do deserve it. Lagos is our favourite place in Portugal...maybe we'll go back once my treatment is over.....xx

Anal squamous cell cancer

17 Mar 2018 08:41 in response to SandsJ

Hi Sandra 

have just seen this have a great time you deserve it and thank s for being such a great support to us all 

love Gilliebean x

Anal squamous cell cancer

17 Mar 2018 11:04 in response to gilliebean
Hi Gilliebean Just wondered if you have finished your treatment yet? How it going for you. Wishing you well and thinking of you. Mandy xxx

Anal squamous cell cancer

18 Mar 2018 17:52 in response to Suzym
Hi Sue Good luck for tomorrow, it’s the begiining of the end. I have my first oncology appointment on Wednesday, hopefully will have my PET scan results and generally find out more. Lynne xx

Anal squamous cell cancer

18 Mar 2018 17:58 in response to Suzym
Hi sue Wishing you all the best tomorrow. xx

Anal squamous cell cancer

18 Mar 2018 22:20 in response to Mandydk
Thank you Mandy, Can't believe all the waiting is finally over. Hope you are ok. Sue xx

Anal squamous cell cancer

18 Mar 2018 22:29 in response to Lyndylou67

Hiya lyndylou, good luck for Wednesday, take someone with you if you can, they give you so much information it helps to have another pair of ears, although they gave me loads of pamphlets and things too. Write down any questions you have and refer to them. Shouldn' be long for planning and treatment after that.

Keep me updated.

I will let you know how I get on tomorrow.

Sue xx

Anal squamous cell cancer

24 Mar 2018 14:40 in response to Mandydk

Hi Mandy

yes I ve finished but wasn't prepared for how harsh it was once finishing they did tell me on the last day that it gets worse before it gets better and they certainly weren't lying ! However I have turned the corner now there is definitely light at the end of the tunnel! 

Sleep sleep and more sleep!  And don't be frightened to take the pain relief ask if you need more or a stronger dose. Thinking of you  take care xxx



Anal squamous cell cancer

24 Mar 2018 16:12 in response to gilliebean
Hi Gilliebean It’s lovely to hear from you. Sorry to hear that you have been suffering but pleased to hear that you have turned a corner. Have you broken down on the bottom and sore to pee? That’s how I am at the moment and I have 4 days to go. I feel a little tired today but not too bad at the moment. A little apprehensive when I finish as everyone says it will get worse and I am feeling it painful at the moment . When is your follow up wi5 the doctor? Have you had any appointments for the MRI yet? I have been thinking of you and wishing you all the best. Thinking of you. Mandy Xx

Anal squamous cell cancer

25 Mar 2018 07:52 in response to Mandydk

Hi everyone,

That' the first week of treatment over but I'm a bit concerned about how I'm feeling already. My chemo pump came off Friday  ( week1 done) but my mouth is really sore, even my throat. My stomach is playing up a bit, no diahorrea as such but I'm going to the toilet a lot and the wind is awful. Im' already felling very tired surely it' too early for all of this? Or perhaps I'm being a big baby. Not feeling positive at all at the moment.

Sue xx

Anal squamous cell cancer

25 Mar 2018 15:08 in response to Suzym

Hi Sue

a week down that’s great and I think his you’re feeling is quite “normal” there’s such a big relief that you’ve actually started but then the reality sets in.

I onlyhad one intravenous chemo then went into tablets but the first week my mouth was sore and it hen it settled down.

my hubby nicknamed me windy miller-  so I understand that as well - I definitely found the first week challenging then I sort of got into a routine and it was wee bit better although I’ll not say it gets easier I think you just have to accept that for the next few week you’re going to feel  ****. The tiredness is really draining so make sure you sleep whenever you can and let other people help you - it makes them feel better too feeling they are doing something for you.

i know it’s hard to stay positive and I did get very tearful some days - just keeping counting down the days I had a big countdown calendar and scored off ever day.


if anyone told me when I just stared I’d be out in Portugal just now I’d never have believed them - you’ll get through it.

take care and be kind to yourself you’re in my thoughtsts 

Sandra xx

Anal squamous cell cancer

25 Mar 2018 15:24 in response to SandsJ

Ohhh Sandra thanks for your reply, it certainly makes me feel a bit better. I couldn' remember any of you saying you felt so ill  so early. Everything you've mentioned is like me. I do actually feel a bit better today and even managed a little walk with my daughter and the dogs. The family are looking after me, they won' let me lift a finger. I am glad to be getting on with my treatment and now looking forward to getting to the end. 

Have a lovely holiday, wish I could join you.

Sue xx