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Anal squamous cell cancer

5 Dec 2017 20:12

Is there anyone on here who has had anal squamous cell cancer x

Re: Anal squamous cell cancer

7 Dec 2017 14:45 in response to Janelucia

Hi Janelucia, 

I've had a look around the forum and found @JRose ‍ - who will hopefully stop by to say hello now and tell you more about their diagnosis now that I've tagged them in this post - as well as two discussions with members in a similar situation to yourself that you may like to get involved in which I've included here and here for you to have a look at.

I've also included a link to the section on our website about anal cancer so you can find out more about your diagnosis. If you have any questions don't hesitate to get in touch with our cancer nurses on 0808 800 4040, Monday - Friday between 9a.m - 5p.m who will do all they can to help.

Kind regards, 

Steph, Cancer Chat Moderator

Re: Anal squamous cell cancer

8 Dec 2017 11:37 in response to Janelucia

My partner is mid treatment.  Diagnosed in August.  

Re: Anal squamous cell cancer

8 Dec 2017 15:29 in response to Jon123

Thank you for the reply.  How's the treatment going.

Re: Anal squamous cell cancer

17 Dec 2017 23:43 in response to Janelucia

HI Janelucia

Yes, I was diagnosed at Stage 3B nearly 7 years ago.  Not around this site much now because I have been free of cancer for some time.  I had check ups for 5 years with one false alarm and no recurrances.The treatment is wearing but keep going because it works.  Even though I have been left with some side issues I now feel fabulously healthy and my fear that I would never be healthy again was unfounded.  What stage are you at? 

Re: Anal squamous cell cancer

21 Dec 2017 01:22 in response to Janelucia

Hi Janelucia

I was diagnosed with T2squamous cell anal carcinoma in July this year - I underwent 6 weeks of chemoradiation therapy - it was quite tough I found the tiredness really hard and my skin broke out quite badly. My specialist nurse was a god send she helped with pain relief and grat creams for my skin. 

I had my eight week follow up apt just over a week ago and although I’ve to get a scan in Feb next year my consultant was able to tell from an examination that there was no longer any abnormality. To be given this news was just amazing and although I still have to get the scan and will be monitored for three years there is light at the end of the tunnel.

I found it hard to find many people who had been diagnosed with this Type of cancer but I had fantastic support from the staff at the Beatson in Glasgow and I have been going to the Maggies centre and took part in done sessions got relaxation amongst other topics which I found really helpful. 

I wish you all the very best with your treatment and if there is anything else you’d like to ask please get in touch.

kind regards Sandra 

Re: Anal squamous cell cancer

21 Dec 2017 09:37 in response to SandsJ

Hello Sandra,  Thank you so so much for getting in contact.  I'm now two weeks in too treatment.  really really tired all the time but am making sure I sleep when I need to.

Re: Anal squamous cell cancer

22 Dec 2017 15:29 in response to Janelucia

Hi Janelucia I found as the weeks went on I did get more and more tired- I’ll be honest the couple of weeks after I finished were actually the worst for me. But do sleep when you can and don’t feel guilty about it - it’s the best way for your body to recover. Also if you do get sore let your nurses know as soon as possible as they can give you pain killers I persevered for  a bit too long - and as they told me you really don’t have to suffer pain.

I’m now 10 weeks post treatment and although I do feel I’m getting stronger I still get very tired but I’ve learnt to take it easy if I’ve had a busy few days and have “lazy” days! I found the driving for treatment every day took its toll so took all the help offered as someone said it lets your friends and family feel useful and able to help you in some way.

I wish you well over the next few weeks and let me know how you’re travelling- take care.

Sandra 

 

 

 

 

Re: Anal squamous cell cancer

28 Dec 2017 22:39 in response to janojan

Hello Janojan

Hope you don’t mind me messaging you - really good to r ad your post and delighted that you got a good outcome.

Im now about 11 weeks post treatment and doctor pleased with my progress can I just ask you - does the tiredness go away eventually? I find if I do too much one day I’m exhausted the next - hoping to start getting back into an exercise routines be in the new year which might actually help?

Thanks Sandra 

Re: Anal squamous cell cancer

29 Dec 2017 15:36 in response to Janelucia

Hi I hope you are doing ok I have been diagnosed and am waiting to start treatment in January I have my planning on the 10 th .its so difficult to find info on this type of cancer . The waiting is the worst!  

Re: Anal squamous cell cancer

29 Dec 2017 15:57 in response to gilliebean

Hello, im three weeks in to treatment now and just pray its working.  

Re: Anal squamous cell cancer

29 Dec 2017 16:34 in response to gilliebean

Hi Gilliebean

I agree the waiting is definitely the worst bit and I was the same when I got diagnosed couldn’t find anyone else who had been through it. As you’ll see from my post above I’m now 11 weeks post treatment and doing really well I’ve still to get a scan in February but from my last examination about three weeks weeks ago there was no sign of the tumour so I am staying positive. 

I don’t know where the y live but I’m in Glasgow and got amazing support from the Beatson and in particular my specialist nurse. I also went and still go to the Maggies centres they’re great. 

If there is anything you want to ask me please feel free to message me as I wish I had had someone to talk to when I was starting out. 

Wishing you well over the coming weeks

Kind regards Sandra

 

Re: Anal squamous cell cancer

29 Dec 2017 16:38 in response to Janelucia

Hi Janelucia

I had been thinking about you and hoping you are getting on ok - I know it’s not easy but try to stay positive and be kind to yourself rest when you  can and even though I’m sure there will be days that are hard you will get through it.

I had  a countdown calendar and found it good to score off every day after another treatment was completed. Anything to try and stay positive.

 Take care 

kind regards Sandra

 

Re: Anal squamous cell cancer

29 Dec 2017 16:42 in response to SandsJ

Sandra, do you know how big your tumour was at the start x

Re: Anal squamous cell cancer

29 Dec 2017 18:13 in response to Janelucia

Hi it was T2 and was bigger than 2 but less than 5cm’s I don’t know if that helps or not - have they told you about the size of yours? x