Hi Summer18

i wish I had some great solve it all type answers but I don’t think there are any. What you are doing is already a fabulous job. 

It doesn’t surprise me that he doesn’t want to watch tv etc etc  have you ever had fly and just wanted to sleep? I know it’s not the same but it does seem to happen that most people reach a point where they just want quiet  

Your daughter’s comment is incredibly poignant and tears at the heart strings but at least she will have less of a surprise should the worst happen.

Have you got Hospice staff visiting  for symptom control and advice?   Our hospice specialist nurse is full of exceedingly useful knowledge.

If hes mot moving much I’d get the District nurses to come in too.  They are the right people for skin care etc bed sores really want to be avoided.  

It’s always easiest to get angry at those closest to us and with  four month old, you’ve enough in your plate without all this  when you ca  just take moments for yourself .  You don’t want to burn yourself out