Advice about whether to move house or not

Hello all,

My dad was diagnosed with cancer just over 2 months ago. Started in his prostate and has spread to his bones. It's incurable, but we have not been given a prognosis for how long he has left (do they actually tell you that if you ask for it? Doctors have dodged answering when we ask them, but we don't push too hard as we're afraid of the answer I guess). He went from living a relatively normal life to not being able to walk more or less overnight. I was living abroad but moved back to look after him, so I don't have a home of my own here.

I'm staying with him right now but the house isn't ideal for either of us. It's a terraced house, and he sleeps on a hospital bed in the living room, it's quite cramped and difficult for him to reach things he needs. There is no downstairs bathroom and he can't manage the stairs, so a carer helps him wash and he uses a commode which he can get to using a walking frame. He usually feels quite well, it's just that he's not that mobile, but he is able to be independent to a certain extent, enjoys that, and would like to do more for himself, but the way the house is laid out makes it difficult to get around with a walking frame. As for me, I'm sleeping in a bedroom upstairs which leads to the bathroom, so the carers need to go through to access it. I'm struggling with not having the privacy or space to recharge (or in fact the space to even unpack). 

I'm considering a few options: 1) me moving nearby so I can still look after him most of the time but have my own space. But this doesn't solve the problem of him getting access to a proper toilet and shower which I know would make him so much more comfortable. Option 2) find him a bungalow or house with downstairs bathroom (private rented, he's a private renter at the moment) or Option 3) finding special adapted housing for older people/people with disabilities, like social housing? I've been looking into these housing options but there is hardly anything suitable and we don't want to move away from our support network. 

 

He's a bit resistant to 2 and 3 which I totally get as moving is a huge upheaval anyway, especially when you're ill though I would be happy to do all of it with help from friends and family. And he's not keen on 3 because I think he doesn't want to see himself as someone who would need this kind of special housing... like I say his life changed more or less overnight, it's a huge adjustment. I just think that it would be nice for him to have a better living environment and more independence while he can... but we don't know how long that will be before he deteriorates... I'm just not sure how much to push talking about this issue with him. He is going to start enzalutamide treatment soon which the doctor has told him people live for "years and years" on. 

 

I was just wondering if anyone who is either a carer or who had/has cancer themselves has faced a similar decision and might be able to offer me some advice about whether moving him would be a good idea or not? Would love to hear your thoughts.

 

Thank you! :) 

  • Hi depends on how much Room you have down stairs have you space for a small wet Room say just a shower and toilet,if he has got to Go upstairs for bathroom a stairlift might be an option, could you swap sleeping arrangements around so hes upstairs your down.dont know if anything I've put has helped, just thinking what we've done with our house.

    Hope you can sort something out what doesn't cause to much hassle.

    Good luck.

    I've got prostate cancer gone to lymph nodes spine ribs pelvis and a lung was diagnosed Feb 2016 still fairly mobile.

    Billy

  • hi Billy,

    Thank you very much for taking the time to write back to me :)  Unfortunately, we can't make any changes to the property like putting in a wet room/bathroom as it's a private rental... I don't think the landlord would want to do it. I would be more than happy to swap with him but he prefers being downstairs because he can do things he enjoys like cooking, and I'm able to take him out for drives and out in a wheelchair to parks and stuff, and it would be too hard for him to get downstairs every day if he was sleeping upstairs. He likes to keep active while he can, rather than being in a chair or bed most of the time. But thank you so much for your suggestions though :) I'll keep thinking of what we can do. I'm glad to hear that you are doing all right with your mobility since your diagnosis, good luck to you too :)
    Best wishes.

  • Hi sorry I missed about renting property having trouble head now and again medication problems.

    Been on enzalutamide for about 6 months now not bad with side effects apart from reacting with my other meds , be careful of rising blood pressure.    Shame he didn't have bought property .                                                    Billy