Advice about Dad who has Brain Tumour and lives in Spain

My Dad is and expat living in Spain near Almeria. He is outside of the town and relatively isolated. He lives with his commonlaw wife. They moved out to Spain over 20 years ago and have lived quite independantly.

In December 2018 my dad collapsed and was diagnosed with a grade 4 Glioblastoma.

Part of the tumour was removed and he then underwent 6 weeks of radiotherapy. He was then sent home and consultants told him they were pleased with his response to the treatment.

He is struggling to come to terms with the severity of his diagnosis and most recently the tumour appears to have grown back rapidly and is affecting his speech and mobility. Neither him nor his partner have confronted the emotional side of this directly. It is a real concern. They have told me there is a 2 month waiting list to be able to benefit from a support worker to come and help around the home. I visited last week and they are clearly struggling, they do not have much disposable income and simple tasks around the home are now becoming overwhelming. He collapsed 2 days ago and couldn’t get up for several hours.

In the past few days his partner has told me that they have made contact with a Marie Curie Nurse who may be able to come out to speak to them. This finally seems like a step in the right direction.

Living in the UK i feel quite helpless in supporting them and wondered if anyone can give advice about support networks or have been in a similar situation.

 

 

  • Hello baxter74, 

    Thank you for sharing your dad's story. I am so sorry to hear that your dad has been diagnosed with grade 4 Glioblastoma. It must be really difficult for him on a daily basis - both on an emotional and practical level. It's a real shame that there is such a long waiting list to be able to get a support worker to come and help around the house and it does sound like they would need this kind of help at the moment. 

    It is definitely a step in the right direction that his partner has made contact with a Marie Curie Nurse and I hope this will give them the support they clearly need at the moment. It must be really hard for you with him being in another country to know who to get in touch with or what to do. 

    I would suggest you get in touch - or ask your dad's partner to do so if there is a language barrier - with the Asociación Española Contra el Cáncer | Spanish Association Against Cancer.  You can find their details on this page . They don't seem to have an English version of the site but you can get an idea of what it's about on its google translated version here. They may have some tips to help your dad get the practical help he needs at the moment and they may know of local support networks which might be available to your dad. 

    I hope this helps a little. I hope someone who has been in a similar situation or is familiar with the Spanish system will be along soon with some helpful suggestions.

    Best wishes, 

    Lucie, Cancer Chat Moderator 

  • Hi Baxter74

    I understand your difficulty, my dad lives in Portugal and me and my brother live in England. In January he was diagnosed with pancreatic cancer and now he’s going into the very late stages. I don’t know about the healthcare system in Spain but in Portugal it is very frustrating. Nothing has been communicated with us since the beginning, there’s been numerous strikes stopping my dad from getting appointments and scans which could have been vital in catching it earlier on. He to refuses to acknowledgment the severity of the situation and was unable to afford full time care. In the end my older brother (26) has been back and forth looking after him. 

     

    I agree with lucie that Marie curie should be able to provide care and advice to help you with what needs to be done. Macmillan are also extremely useful and they have greatly helped us with what would happen in the uk. They also helped us with workers rights in terms of compassionate leave as we have needed to fly out to see him. 

     

    I hope this this has been somewhat helpful. If you need to vent frustrations, please feel free

     

    kind regards Georgia