Acinic cell ca

Hello, 

I was told on Monday the results of my histology. Confirmed as an acinic cell carcinoma of the Parotid gland. I was expecting the news but having it confirmed has stunned me. I feel I didn't ask enough questions at my follow up. I feel like it is dominating all my thoughts and that for everyone around me it is over because the surgery is done and my surgeon didn't feel I needed radiotherapy. But for me I feel like it is a sentence that is just beginning. I feel guilty also, because in many ways I have been lucky. So many mixed emotions. I'm struggling to think my life now is the worry of it coming back. I don't know if I can face that at 36. I am waiting for an ultrasound scan of the opposite side where I found a lump. I lost my mum to breast cancer, she was 45 and I was 17. My Dad still battles bladder cancer. I just wanted to talk to other people about their experiences and feelings. 

Thanks

  • Hi Victoria I too have had a parotid gland removed although with a different type of cancer. The fact that you have not been referred for radiotherapy is extremely good news. First because it means the cancer has been completely removed, which means you have a reallly good outlook secondly because radiotherapy side effects cause many permanent problems. Feeling guilty for your good luck and fear of cancer recurrence are the two most common emotions experienced by those who survive cancer. Waiting for further results also adds to your general stress levels. Just talking about your situation is good for you and over the next few months / years these feelings will begin to subside, in the near term if your feelings become overwhelming you could ask your GP to refer you for counselling. Meanwhile I guess you have to concentrate on working on getting over any nerve damage to your face and neck. I hope your recovery goes well. Kim
  • Hi Kim, 

    Thanks for your reply and words of encouragement. That is what my surgeon said, radiotherapy carries it's own risks. I have booked an appointment with my GP for Tuesday. My mood is low and I don't want things to deteriorate further. Do you mind me asking what cancer you developed? 

    Victoria 

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  • Hi Victoria You are bound to be feeling low, you have a lot to get your head around, but I promise you, life will improve by the week. Write down those questions you forgot to ask, your GP may be able to answer them. I have squamous cell cancer. Kim
  • Hi Victoria,

    I recently had left partial parotidectomy which was biopsied last year and I was told this was benign.  However, the pathologist report confirmed this had features of Acinic Cell Carinoma.  I was very shocked and upset.  I met with the oncologist who advised he wouldn't radiotherapy due to the risks.  I feel like he things this is definately going to come back.  My margins were close but they were clear.  I also feel like my life is over and that im dying or that I feel like if this comes back it will be terminal. My surgeon has always been up beat.  I am so scared, I dont know what to do.  Tracey