Together we will beat cancer


A volunteer

21 Mar 2018 18:35

Hi Folks,

For those unaware, I should first note that due to meds, virtually no memory and my ongoing condition, I have what's known as cognitive impairment. I've no choice but to live in the moment. And though it mmight be insulting to some, it means that I simply don't care about having cancer or the fact that I wear two ostomy bags. And so to my post.

I had an appointment with my stoma nurse this morning and asked if she'd ever fancied having someone who was at ease with their bags, speak to new stoma patients, the reason being that I felt I could happily change my bags amidst a roomful of people.

It turns out that there are people who are due to get stomas, who are putting it off due to fear/apprehension and she'd often wanted somebody who had a stoma, who could speak to them in person. There's loads of videos on youtube but it's not the same as the personal touch.

I said if she could get a small group of people together, I'd quite happily go along and demonstrate bag changes and answer questions.

And having made the offer, I now await her organising either a group session or individual visits to new ostomates.

It'll get me out of the house and interacting with people as well as helping them hopefully.


Best Regards


A volunteer

21 Mar 2018 19:16 in response to Taff

What a good idea, Taff; hope it works out well.  Let us know how it goes ( if that is okay).  Not directly comparable but in a similar vein, I have a relation with mild learning difficulties.  He has a part-time job at the local hospital liaising with patients who also have learning difficulties.  I confess I was a bit dubious at first but it has worked very well and he shows great empathy and is good at relaying their concerns to the medical staff.  I hope you find your new venture satisfying.  Annie

A volunteer

21 Mar 2018 19:44 in response to Annieliz

I'll certainly post results should it come off.