A new day

I first posted on here a few months ago having first found out my daughter has nets cancer it had spread widely starting from her pancreas and is now terminal, she is only 19 years old and it was the worst news I could have imagined, I have spent the last few months feeling so confused & angry and not knowing which way to turn, she has had one session of chemo which went as well as it could, her next session is due on Thurs. I had several responses to my original post which I was so grateful for to actually know we are not alone really does help. We are very lucky to have family, friends and people around who are so supportive but sometimes a stranger reaching out makes a big difference. Today I didn't wake up and feel total despair but a sense of what will be will be I cannot control things and am wasting precious time being angry and sad when I should be making memories and making the most of having my beautiful daughter around, I know there will be more resentful days and angry times but today isn't one of them. Sorry for the long post just felt like I needed to share this, and just say thank you again for making me realise that no matter how bad things are there is always someone else out there to talk to who is feeling the same or has been there too. 

  • Hi Oddone,

    By coincidence I was listening to this song in the car a few minutes ago whilst driving coming home from a blood test. A hailstorm had just gone by and the sun was coming out. It seemed appropriate.

    Best wishes

    Dave

    musicpleer.audio/

     

  • Hi Oddone, Yes, make the most of everyday you have with your precious daughter. People say they can't make plans, but you should, plans can always be changed. We have four holidays planned for this year, who knows if we'll get there, but it's good to plan and talk about what we're going to do. All my husband wants is to be treated as normal by friends and family, to do all the usual stuff. I'm sure your daughter wants to feel normal again too, so what can we do? We put on that brave face, make life as good as it can be for them, laugh and enjoy it together, make the memories, know we've tried our best.... then cry in the shower ! Make the most of Good days. xx
  • Thank you Chris, I am so sorry for your loss, and cannot imagine how you must feel to lose two people so precious to you. I genuinely am grateful for you taking time to reply to me it really does make a difference x 

  • Hi Denise, 

    I  agree completely, as much as we just want to hide away and can't face making plans we are trying to be normal, my 4 year old son who often seems to have more sense than most adults at times keeps telling me it's ok cause it can't rain all the time and it has to rain to make rainbows and help the flowers grow ha ha. My daughter is taking things in her stride & making the most of days she feels ok and meeting friends and doing usual teenage stuff as much as I want to keep her wrapped up in cotton wool and next to me I have had to let her do what she wants, if she can deal with it who am I to begin to complain and moan xx

  • You're absolutely right, we have to be led by them.Bless your little one, you can't help but smile when you hear things like that. 

    Hope all goes well with next treatment 

    Denise

  • Hi Oddone, Been thinking about you and your daughter, wondered how treatment going? Denise