5years in and my husbands tumour has changed!

Hi all, 

i’ve not posted for a long time as we have been muddling along with stable scans for my husbands brain tumour, however, 2 weeks ago we went for his latest mri results (he has 6monthly scans!) we were told in addition to a minor change 6months ago that the is now a further change and as a result they now feel it’s time to treat the tumour! My husband was diagnosed 5 years ago and since then has been a ‘watch and wait’ patient, I thought during that time I had readied myself for the time that things may change, however I really haven’t! 

We’ve been told he will have surgery to obtain a biopsy (something until now they have never wanted to do!) and following that he will have 6.1/2 weeks of radiotherapy 5days a week in addition to chemotherapy!!! I’m in total shock and not sure how I should be feeling! My children don’t know anything and have luckily gone on holiday with my parents for 10 days (the best timing!) so hopefully I can sort my head out, my husband too!!! 

How am I supposed to feel? Relieved that they are finally treating the tumour or frightened that’s its active enough that they now need to treat it! 

Sorry for all the rambling, I guess I just needed to get it out in a safe place!

xxx

  • Hi there.  You just don't know what is going to happen next in life; ain't that the truth.  I admit I have no idea how you are supposed to feel but I imagine it is a mixture of things including worry and hope.  I hope you will be able to have a talk with the doctor treating your husband so that you can make a list of questions you want answered.  Questions that come to mind are "What has happened to make this advisable?"  "What is the likely outcome?"  Take a bit of time to talk it through with a good friend maybe so you are getting a bit of support yourself.  I am hoping that you will hear from other people on this forum who have experience of a similar situation; I just wanted to say hello and I hope this has a positive outcome for you both.  Annie