Hi. My 2 year old little boy got diagnosed with a large Wilms Tumour 23rd May this year. He has had 4 weeks intensive Chemo and 12 days ago surgery to remove tumour and kidney. We are currently waiting on histology to come back and new Chemo plan. He also has a blip they want to take a further look at on his Lung. In 7.5 weeks we have been in and out of hospital 6 times. I feel like I'm on a never ending rollercoaster and can't get off, I try and keep up happy appearances to get my little boy through this but feel in turmoil inside. God knows how he must feel, unable to understand what's happening to him or why he can't just be at home.
There is light at the end of his tunnel and his prognosis is good but how can I get him there with as little emotional damage as possible?
Me and my partner (little ones dad) are struggling to hold it together. He's very outwardly emotional and talks about it to people but I feel like I'm the one left holding it together and actually doing the hard work. I do the hospital stays, meds and NG feeds etc, and he talks about it (that's how I feel). I want to get us through this as a u ites family but I'm not sure I can. Our boy needs us both but I only have the strength for him right now (hes the one that needs us) and don't really have the energy to care about anything/one else.
Just hoping for some understanding and similar stories.
