Read about organisations and websites that help and support children with cancer and their family and friends.
Cancer Research UK information and support
Cancer Research UK is the largest cancer research organisation in the world outside the USA. We fund research on all aspects of cancer from its causes to treatment and prevention.
We are committed to producing high quality information for people affected by cancer, health professionals and the general public. We also have a range of health awareness leaflets.
Nurse freephone helpline: 0808 800 4040, Monday to Friday, 9am to 5pm
Admin phone number: 020 7242 0200
Cancer Chat is our online forum where you can share experiences.
Cancer support and information organisations
The Children's Cancer and Leukaemia Group (CCLG) main work involves coordinating national and international clinical trials. They also provide information about cancer for children and their families.
Phone: 0116 252 5858
A children’s charity based in Scotland. It is run by parents whose children have cancer. Gives information and offers a telephone helpline and fun events, plus practical support such as transport to clinics and family holidays.
Tel: 0131 467 7420
No. 1 Farriers Yard, Assembly London
77–85 Fulham Palace Road
London W6 8JA
Phone: 0300 330 0803
Email: online enquiry form
Sargent Cancer Care and Cancer and Leukaemia in Childhood merged in 2005 to become CLIC Sargent. It is a charity that provides clinical, practical, financial and emotional support for children and young people and their families who are affected by cancer.
Telephone support and a range of other support services for children with cancer and their families. Bereavement support, befriending, and self help parent support groups. Crisis breaks via four mobile home sites in Wales, Disneyland Paris and Disney World Florida. Play therapy, holiday programmes, travel insurance.
Phone: 01792 480500
The Childhood Cancer Parents Alliance (CCPA) is made up of parent run organisations that work together to support children with cancer. They also offer support and information to the parents of children with cancer.
Offers free services to improve the lives of Jewish children with cancer. Provides family liaison officers and home support volunteers to help parents cope. Also offers exciting trips and experiences for the children, including special treats, outings, parties, family retreats and Camp Simcha USA.
Tel: 020 8202 9297
Macmillan Cancer Support provides practical, medical and financial support and campaigns for better cancer care. It provide booklets on cancer and treatments and runs a helpline providing cancer information and benefits advice.
Macmillan CancerLine: 0808 808 0000 (Mon to Fri, 9am to 8pm; information available in other languages)
Textphone: 0808 808 0121
Supply and fully fund wigs especially designed for children. Also provide personal fitting and styling to ensure the wig is as close as possible to the original hair.
To order a wig phone: 01432 760 060
For all other enquiries phone: 01432 352 359
Support and information for families with children with any serious illness
Provides information on support services for families whose children have life-threatening or terminal conditions, regardless of the disease involved. It is involved in encouraging the development of children’s palliative care services.
Helpline: 0808 8088100
A network of national groups that gives advice and information for parents with children going to hospital. Also provides counselling for parents. Leaflets and videos are available to support children going into hospital. If you can't download these from the website, contact the charity and they can send them to you.
Tel: 0800 0744519 (freephone)
Information for children and teenagers
Along with a comic book line, jumohealth produces other products such as podcasts, videos, and games. They are all designed to help children, their parents and carers learn more about their health condition.
Tel: 020 7612 0370
A national charity providing specialist units, support, education and information for teenagers with cancer and their families.
The Teenage Cancer Trust also funds research into young people's cancers. It holds annual conferences for teenagers with cancer and the health professionals who look after them.
Macmillan Cancer Support has a separate section on its website for teenagers and young adults with cancer. It offers advice and support on how to cope with cancer, and the chance to share experiences of cancer with other teenagers.
Provided by a charity called HopeLab, these games teach children about cancer. Research has shown that they can help children to cope with cancer and understand their treatment.
Information on specific childhood cancers
Bloodwise sponsors research into leukaemia, lymphoma and myeloma. They also provide patient information booklets and leaflets that you can download or order from their website.
Telephone: 020 7504 2200 (Monday to Friday, 9am to 5pm)
Leukaemia CARE is a national blood cancer support charity, committed to ensuring that anyone affected by blood cancer receives the right information, advice and support.
It provides a range of support services to patients and their carers, including a 24-hour CARE Line, information, support groups, patient and carer conferences, and nurse education days.
24 hour care line: 08088 010 444
Tel: 01905 755977
The Lymphoma Association gives emotional support and medical information on all aspects of Hodgkin and non-Hodgkin lymphoma. Their services are free to people with lymphoma and their family and friends.
They run local support groups for people with lymphoma around the country. They also have a buddy scheme for putting patients in touch with each other by phone. And they produce leaflets and a newsletter.
The Lymphoma Association online forum is is available 24 hours a day. It has designated chat times between 12 and 2pm, and 8 and 10pm, when you are likely to find the most people online.
Tel: 0808 808 5555 (9am to 6pm Monday to Thursday, 9am to 5pm Friday)
The Royal London Hospital
London E1 1BB
A UK charity for families and people affected by retinoblastoma. It offers support and information, funds research and raises public awareness of this rare cancer.
Tel: 020 7377 5578 (Monday to Friday, 9am to 5pm)
Royal Orthopaedic Hospital
Bristol Road South
Phone: 01584 856209
Provides support for patients with bone tumours and soft tissue tumours.
The Brain Tumour Charity is the world's largest dedicated brain tumour charity. It funds cutting-edge research, provides support and information services and raises awareness. It aims to reduce the harm brain tumours have on quality of life, and ultimately, to find a cure.
Support line: 0808 800 004
This organistaion provides information, support and counselling for people with primary bone cancer and their families. They promote reseach into the causes and treatment of primary bone cancer in particular osteosarcoma and Ewing's sarcoma.
Telephone: 0113 258 5934
A support group for children with brain or spinal tumours and their families. Also offers information about brain or spinal tumours and their treatment. Provides days out, contact with other families, small financial grants and holiday accommodation.
Tel: 01235 816310