Patient involvement opportunities

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Join our network and we’ll send you our fortnightly newsletter which lists all the latest opportunities to get involved. we are looking forward to working with you.

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As a result of the COVID-19 (coronavirus) outbreak, and advice from the Government, all our face to face involvement activity has been put on hold. We are keeping people affected by cancer at the heart of what we do, so your involvement is still so important.

If you or a loved one has cancer, you might feel especially worried. The NHS and the Government have put together guidance on these issues which we have summarised and linked to from our information pages and you can speak to our nurses on 0808-800-4040 if you want to talk any of this through.

Here are the current patient involvement opportunities you can take part in 

Working with you gives us invaluable insights that can help develop our work, accelerate our progress and save lives. Whether you've got lots of time to spare or only a little, and whatever your experience of cancer, we hope you'll find an opportunity that interests you. We regularly update this page, so please come again to visit soon.

You'll need to be aged 18+ to take part in most of our opportunities. Any opportunities available for aged 16+ will be highlighted on the information page.

Lay member - help update the NICE guideline on Familial Ovarian Cancer


NICE are looking for people with experience of familial ovarian cancer to help look for recommendations for healthcare or research.  They are looking for someone who will bring a real-world perspective to the committee.

Survey - Help define how to best to describe people affected by cancer


There are no universally consistent terms used to describe people who have been affected by cancer. Multinational Association for Supportive Care in Cancer want you to help them define how to best describe their most important stakeholder, people living with or beyond cancer.

Join a committee to help update guidelines on metastatic spinal cord compression (MSCC)


Help update guidelines on metastatic spinal cord compression and make recommendations about the best types of treatment, support and services.

Help design a research study for breast cancer in the under 50s

lady on phone

Join this research reference group to help design research that explores how young women live with and beyond primary breast cancer and help identify avoidable barriers to participation and thereby improve the quality and the relevance of the research.

Taking control of breast cancer care with South Asian communities

South Asian woman on phone

Imperial College London are looking for South Asian community members living with and beyond breast cancer and/or their family members or carers to generate ideas for better access to breast cancer care.

Interview – Experiences of targeted therapies

man in waiting room

Do you have experience of being treated with targeted therapies? Researchers at Newcastle University are exploring the experiences of this treatment to understand the needs of patients and how they can be better supported.

Study – Help the ‘HEAL ABC’ project tailor resources on life after bowel cancer

booklets and leaflets

Researchers at The University of Manchester wish to learn about peoples' experience using their resources. This study will help tailor their resources to help make them effective in improving peoples' lifestyle, and accordingly standardise advice and support provided to people after bowel cancer.

What cancer science questions would you like answered?

Scientists talking

Our experts are dedicated to bringing you the latest findings, from the lab bench to clinical trials. But do you have a burning question that we haven’t answered? In our Science Surgery series, you can take our survey and submit the questions you'd like answered by our expert team. 

Become a Media Volunteer

Share your story to help people understand cancer better and raise awareness about our research and campaigns.

Become a Cancer Campaigns Ambassador

campaigners looking at Big Ben

Persuade politicians to support cancer research, prevention, early diagnosis, and treatments.

Get in touch

If you have questions about any of our opportunities, or feedback for us, you can contact us by emailing us at or call us on 0203 469 8777.  We're always happy to answer questions and receive feedback, so please don't hesitate to get in touch.