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Worried

14 Feb 2020 05:37 in response to Jolamine

Hi Jolamine,

hope you have had a good week.

so whilst I wait for the final tests to be returned, I met with my surgeon yesterday. I have Breast Cancer, stage 2, the surgery is booked, unless the results come back on Monday for something else (in think triple neg/HER something - I don't know I couldn't take it all in yesterday) and if they come back positive it will be chemo first.

his given the overview for the year ahead, and both he and I have decided to brisk it down into 3 week chunks - that way I can face each three weeks with full knowledge of what I should do at that moment.

not much else to say, is there -  you've been there, and are strong and amazing, no doubt at times you didn't feel strong - so, be seeing you more often on here, probably.

take care, for now

stay amazing x

Worried

14 Feb 2020 13:49 in response to deefor

 

Hi Deefor,

I am so sorry to hear this. Welcome to the club that nobody wants to join. I presume that you meant that your cancer is grade 2? Staging isn't done unil after surgery. It is so difficult to take everything in along with the shock of a positive diagnosis.

HER 2 is a protein which stimulates the growth of cancer. About 1 in 5 breast cancers have a higher than normal level of HER2 on the cell surface. If your cancer is HER2 positive you will usually be advised to have chemo and a drug or drugs known as targeted therapies. If you are diagnosed as HER2 negative, then targeted therapies given to HER2 positive breast cancer will not be of any benefit.

Triple negative breast cancer occurs when breast cancer tests negative for progesterone, oestrogen and HER2 receptors. This means that targeted therapy and hormone therapy drugs will not be of any benefit. Triple negative cancer can be treated by surgery, radiotherapy, chemotherapy (either before or after surgery) and sometimes bisphosphonates. About 15% of people with invasive breast cancer have triple negative breast cancer. (Breast Care Cancer UK).

Next time you see your surgeon ask him about this. Did you take someone with you to your appointment? It is always a good idea to do this, particularly if you expect to get any test results. It can also be helpul to write down a list of any questions you have.

I expect that you will feel anxious about your treatment but relieved to at last have a diagnosis and happier now that you are moving forward with treatment. There were certainly times when I felt frightened and nervous and was an absolute mess. I have had 10 years to come to terms with this and, still have darker days, but it is so much easier to deal with when one has a more positive viewpoint.

Please keep in touch and let us know how you are getting on. Remember that we are always here for you.

Kind regards,

Jolamine xx

 

Worried

15 Feb 2020 05:24 in response to Jolamine

Hi Jolamine,

thank you for your reply, yes the club that nobody wants to join, but as many per many clubs, it is built on a common goal, aspiration, inspiration and friendship.

so much to take in, and I thought I'd just take a little time over this weekend to be 'normal' whilst it sinks in, it'll be a long road ahead.

we are all very fortunate to have also found you here....you understand the importance to know that someone is listening who completely understands the thoughts and feelings that are being experienced.

i guess I'll start a feed on the newly diagnosed section, hope to see you there x

deefor

Worried

15 Feb 2020 15:16 in response to deefor

 

Hi Deefor,

Yes, it will be a long road ahead, but you will find the strength to get through and, this time next year it will all be behind you.

This a good place to come for support from others who fully understand what you are gong through - no platitudes from friends and relations, telling you that all will be fine. If you want to know something, there is always someone here who has experienced whatever it is, so hang on in there. We are all right here to help you through this.

I'll certainly look out for you on the newly diagnosed section. There are a number of ladies here with triple negative, so you might get a better response if you include this in your new title.

I hope that you are managing to achieve 'normality' this weekend despite the foul weather.

Kind regards,

Jolamine xx

 

Worried

15 Feb 2020 23:29 in response to Jolamine

Hi Jolamine, thank you for your reply, waiting for this (current) last lot of tests is not as stressful, knowing that things will progress.

hope all is well with you in the weather too...only a couple of fence panels gone

See you soon 

 

Yvette x

Worried

18 Feb 2020 15:52 in response to deefor

Hi Deefor.

i too was diagnosed with triple negative breast cancer on the 28th jan. I am scheduled in for a lumpectomy on Thursday and removal of sentinel node. Then I will have to wait 3 weeks for more results from that and onto chemotherapy.do you have a treatment plan yet?

loumw

Worried

18 Feb 2020 21:07 in response to Loumw

Hi Loumw

ill be thinking of you on Thursday. Mine is on 19/03 - lump and removal of all lymph nodes on that same side...like yourself I am due for chemo and radio afterwards, although I'm very much taking this one step at a time...easier to manage in small chunks of about 4 weeks at a time...

ive got a pre-op on 3/3.

how are you doing in general? 

x

Worried

21 Feb 2020 09:08 in response to Loumw

 

Hi Loumw,

Thinking of you and hope that all went well yesterday.

Kind regards,

Jolamine xx

Worried

21 Feb 2020 10:55 in response to Jolamine

Hi Op went ok, had a bit of trouble to begin with as they had to put a guide wire into the cancer first so the surgeon could see exactly where he was going. That was very painful as the Dr who did it didn’t numb me enough and had to get another Dr to carry it out. Didn’t go down for op until 1:30. And was in recovery by 2:30. Been in a lot of pain this morning, so dr has prescribed me oramorph to help.
Hope your doing well

regards

lou xx 

Worried

21 Feb 2020 18:56 in response to Loumw

 

Hi Lou,

I had to have Oramorph for the first 2 days, but things settled down quite quickly after that. I'm sorry to hear about the difficulty with your guide wire. You seem to have got through your surgery quite quickly, which is good. I hope that the pathology results are good. Did they tell you when you'll get them back?

Kind regards,

Jolamine xx