Whole brain radiation-hope or advice?

Hi 

Dad starts whole brain radiation Monday for 5 days. Mum and dad have been staying with me for the last week, it's been lovely having them, tho seeing how my dad is upsets me. He hasn't done much as gets tired and breathless- What could be the reason as lung tumour not grown much? His appetite has increased-think the steroids may help. Dads voice is also nearly gone again :( he had a vocal injection last year that bought it back, it meant to help for many years but seems less then a year later it is stopping. 

I get so sad watching my dad, I put myself in his place and imagine the thoughts that go through his mind- watching his only grandchild and thinking of not being able to see he grow up, seeing other people his age (55) and wishing he was as healthy as them, thinking of never being able to drive again, not being able to plan a holiday, also things like the fact he is going to lose his hair :( so many thoughts each one heartbreaking. 

Dad starts radiotherapy Monday and I was hoping people maybe able to give advice on what to expect, or any tips? Any positive stories of living past the scary survival stats would be good. 

I am sorry to post, I just feel a comfort in talking to people who can in someway relate. I also have trouble putting my feelings into words, I look to the future and it doesn't look good I don't look forward anymore but wish my life backwards- wish I was younger again with many years ahead with my precious daddy my best friend- a time machine would be great or to wake tomorrow to find a miracle cure to this devasting disease. 

  • Hi Kirstynic

    sorry to hear about your dad but your thoughts are normal! and you wishin him to be ok and the drivind/holiday/loss of hair ect ect is all normal im the same but each case is different

    im 49 in june married and finished work last yr (redundancy) and was planning holiday and lots of other things that as been put on hold because of my cancer and all what yoour worried about is what im worried about but we have not ginen up doing the things we wanted to do jusy defered them and after major surgery  25thit willbe onwards n upwards! yes we need to wait until after radiotherapy and any side effects but we start planning again no matter what news i get! lifes too short you/we need to get as much as possible from it!!!  Hope it helps you in some way    Andy.

  • Thank you Andy your reply is appreciated. I hope you continue to get healthy and get to have a well earned holiday. Love your positive attitude x