I waited several months and never got a full diagnosis. The doctors didn't know! They sent my specimen to pathology and after that it got reviewed by MDT after which I got a letter inviting me to an appointment because they wanted to discuss further op with me. But when I went to clinic (after about 10 weeks), Consultant decided margins were good enough and I should monitor the area, though it's not anywhere I can see. I found the experience extremely confusing. Hope you do get a diagnosis and that it doesn't take too long, but honestly these things can drag on sometimes. 

Thanks for your reply RoseStarBlue,

As time goes on you just think have I been forgotten? Has my biopsy been lost? It's all the things that go through your head and I am finding myself thinking why is it some people are getting their diagnosis in 14 days, which in others takes weeks and months? To be honest most people who have bothered to ask me if I have had my results back keep saying - ah you haven't heard yet - it must be OK. In truth it's not always that clear cut as you know yourself. 

I was just thinking I would have a really hard job monitoring my op site - I would need to be able to turn my head like an owl!  

Talking of owls drinking coffee and thinking deep thoughts at stupid o'clock is not a good idea when you have work the next day. I try to get through this with humour and rationality, but in reality I am truly 'bricking it'.

Hi [@Songbird68]‍ 

So sorry to see you're no closer to finding out what Lenny is/was!!!

Have been thinking of you :love:

Any news at all since your last post? 

Hi Plumlet,

 Thank you about thinking of me - you have so much going on yourself right now. I am still in no mans land - I found out on Wednesday that my biopsy had ended up in another lab for PXR testing - whatever that means - still no news at this moment. I have been told it is being 'processed'. I do have a contact at the hospital - I call up once  a  week for an update. Hopefully this week I willl find out more xxx

I hope that things are moving forward much quickly for you xxxx

Hi [@Songbird68]‍ 

Well if they can't work it out from that then I'd ask for it back and send it to Dr Pimple Popper!

Has the wound healed up OK though? 

I'm recovering from the lumpectomy and lymph node biopsy that I had on the 18th, not pleasant at all to be honest but had to be done and now a familiar 2-3 week wait for the results to stage the cancer and see if it's in the lymph nodes or not.

Message me when you know more, even if it's at silly O'clock :wink::love:

Hi [@Plumlet]‍ 

My wound is still quite tender. It's not weeping or anything like that, but it's raised and grainy. I am sure you are still feeling sore yourself! I presume you had a general anesthetic rather than a local for your lumpectomy. I said to my hubby that I hope I never have an operation with my eyes open again. The local for me just didn't work the way it should have. My friends who are both nurses were horrified when I'd told them I was crying with the pain. It wasn't the best day of my life!

 I am really on with badgering for my results. I actually think Dr Pimple Popper would have been a lot more helpful than the surgeon I got. Unfortunately general surgeons are better at fixing hernia's or taking out your gall bladder than small weird lumps. I did find out that the path lab at my local hospital had done some testing - then it's been sent on. I have been told that this is done very rarely. So my assumption is this is something that they rarely see and they have sent it out for this special extra testing. I think it could be that they need to grow things in dishes before any results are given, and knowing medics I probably won't find anything more until they have an MDT - as seems the norm.

I am hoping that your results will be a lot faster in coming through! I think hospitals labs are quite keyed into testing and treating breast tissues, and I am fairly sure your time scale will be as they said. I am not sure if my biopsy was fast tracked or not - being that originally they said it was benign. I was told on Wednesday that there is a backlog at the second lab where they are doing the extra tests, so it could be another 2-3 weeks. I am hoping I know what's going on before I go on holiday. Whatever they say I will be taking my holiday, but I would rather know what's going on.  

I should add that it seems Lenny may have had a friend - I have another lump seems to be forming away from the original site on the same side. Time will tell.

Please let me know how you are getting on - you have been such a star!!! I am still around at stupid o'clock on a regular basis. My cats think it's great! Sorry for the long post!

Btw - I had the hangover from hell this morning - I had to check I didn't send you a rubbish message last night! I was quite tipsy (and tearful) (after being a professor and silly) - works do (that's my excuse)

Hugs xxxx 

Hi [@Songbird68]‍ 

Awwww no , how awful...and I know exactly how it feels :sad: , the worst thing is when they don't listen and just keep ploughing forward...it's like torture, I hope you can ,in time, erase that traumatic memory!

I was thinking of suggesting ( before your last repy actually ) that it might be an idea to document iwth photos the healing of the wound and also look out for any new growth around the original area. How something grows is part of it's DNA so to speak ( or literally ) so that also might give some clues? 

I wouldn't normally encourage someone to regularly take photos of their derrière to show other people but this is purely for medical reasons :wink:

I'm totally on board with the long posts so never apologise for that.

No evidence of a rubbish message so you're all clear on that too :laugh:

:love:

Hi [@Plumlet]‍ ,

I have all kinds of unusual photo's on my phone, as the last 2/3 years have had strange rashes, bruises and stuff going on, my GP advised me to do this, so yes I do have one or two of that peachy area - fortunately none that would gross anyone out! I would hate to lose my phone though - they'd be thinking I'm a right weirdo! 

Hi [@Songbird68]‍ 

Haha yes same here...

The GP nurse took a photo of my breast scar earlier - I'm now hoping that was actually for medical reasons! :confused::laugh:

Update - Here I am again at stupid o'clock, sitting in semi-darkness with a cat sat next to me gently purring as if he understands my mood and wants to soothe me. I am now officially into week 8 of waiting for results. I called my surgeons secretary on Tuesday, who told me my results were still not back from the outside lab. She then said try ringing the path lab yourself as I asked what the turnaround time might be. As a patient they will not help if you are currently under a consultant. On Wenesday feeling really low (I've had a nightmare of a week with larygitis) I decided to see if PALS could help me. I sent them a really nice text, not complaining, just asking for an idea on times scales, and given the details I had been previously given, said I would appreciate knowing what I was being tested for, as noone has bothered telling me. I wish I hadn't. They didn't respond to the text, so I sent an e-mail the next day asking if the text service was still current/ being monitored. I got a phone call within a couple of hours, where I was asked everything I had already put into my messages. At which point I was basically put into my place and told that they didn't have any pathologists and everything has been sent out to a private lab and results are not getting back when they should. He made me feel very insignificant. However, this aside he said he would try to see if he could get anymore info. He called me an hour later and said yes there is some news for you - the secretary was just on her way out of the office, we will ring you back tomorrow (Friday). So I waited , and waited and waited. Nothing. No phone call. No text. No e-mail. Why do I bother? In all honesty I am through with this. I have been lied to. Given the wrong information just to appease me and frankly no one seems to care, so why should I.