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Update on my cancer diagnosis

20 Aug 2017 01:39

Hi,

As I said before, I had a biopsy on a lump in my neck and secondary cancer cells were found. I then had a MRI scan on my head, neck, mouth and face (with contrast) and a CT scan with contrast on my neck chest and abdomen a week later. I was then called the day after the scans to say that the CT scans of my neck, thorax, chest and abdomen were clear, but they think it is in the roof of my mouth and could I come in for a biopsy that day. 

I see the head of the ENT dept who examines the roof of my mouth and also put more cameras down my nose as the MRI scan showed abnormalities in my pallette.  The consultant could not see anything and thinks it is showing horrendous infection from my teeth as they are badly decomposed in my gums by the sight of the swelling on my neck.

The consultant has said that there are njo tumours present anywhere and he thinks it is a lesion about 0.5cm big that is a primary site somewhere in my mouth, possibly behind a rotten tooth.

Next week he is sending me for a PET scan to see if this reveals anything.

I am slightly worries that they might have missed something in my major organs or would that have already shown up?

Does all this sound quite positive if it is so small they cant find it?

 

 

Re: Update on my cancer diagnosis

21 Aug 2017 15:32 in response to micra52

Hello Micra52,

Thank you for posting another question and updating us on what has been happening. I can appreciate that this must be a stressful time.

MRI scans and CT scans are very useful in helping to diagnose many conditions including cancer, although they will not always pick up everything, they don’t miss much.  So, although it is easier said than done, try not to be overly worried about something being missed. Also, you mentioned that the MRI had shown an abnormality of your palate and that your specialist thinks that the cancer started in your mouth. This does fit in with you having a lump in the neck, because when mouth cancers spread it is often to the lymph nodes (glands) in the neck.  So, it looks  likely that this is your diagnosis, although I cannot say for sure.

Ideally doctors would like to diagnose mouth cancer, before it has spread to the lymph nodes. But it can still be treated with some success particularly  when if it has spread to only one gland lymph gland in the neck. So, although it is difficult to look on this as a positive thing it does look like your doctors are starting to pinpoint the problem.  If the PET scan confirms the findings then a treatment plan can be put in place and this is certainly positive.

I am not sure what is happening with your teeth, but  sometimes it is a good idea to get things like this sorted out before starting any cancer treatment.  So do ask about this if you have not already done so.

I hope this helps and that the PET scan gives your doctors some useful information. Do get back to us if we can help with anything else. If you would like to telephone our freephone number is 0808 8004040. We are here from Monday to Friday between the hours of 9am to 5pm.

All the best,

Jean