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Update on Bladder Cancer

25 Nov 2013 02:26

Hi all, I am feeling kind of anxious tonight as I am having a cystoscopy on Tuesday.That alone is difficult enough, but I'm also worried about the outcome. I have had 6 BCG treatments with the last one about 6 weeks ago, and this cystoscopy is to determine if the treatments helped. If they did, then I understand I will have 3 treatments each week for 3 weeks and then this will be repeated every 3 months, till whenever? I guess I can accept that as long as I have reasonable wellness in between the treatment program. My concern is this - if the treatments I had didn't help, then what? Anybody have any ideas on this? I open to hear all options.

Thanks everyone. This forum is a godsend. Just being able to connect with people who are on this journey with me is so supportive.

Take care all.

Lorraine 

Re: Update on Bladder Cancer

25 Nov 2013 06:40 in response to LorraineD

Hi Lorraine

Just wanted to wish you all the best for tomorrow.  Hope you get reassuring news though I am sorry I can offer no medical insight into the 'what if' scenario but know that waiting for any results is an anxious time.Am hoping that the next time you share your journey with the forum you are smiling, firstly because the waiting will be over but mainly because the treatment so far has proved successful.  Sending virtual hugs.Jules x

Re: Update on Bladder Cancer

25 Nov 2013 07:49 in response to LorraineD

Hi Lorraine,

Just like Jules, I wanted to send my love and good luck wishes for tomorrow. You are going through so much and yet your posts also sound positive although I do sense your anxiety in this one; understandable in the circumstances.

I so hope the results show that the treatments have helped.

Please keep your buddies updated when you can. We're all right alongside you! Take care, lovely lady!

Love and hugs from the 'other side of the world' Jo xxxx

Re: Update on Bladder Cancer

25 Nov 2013 10:49 in response to LorraineD

Hi Lorraine,

I just wanted to join Jules and Jo in wishing you the best of luck for tomorrow.

You are obviously worried about what will happen if the treatments haven't been helping and I'm afraid I am in the same camp as Jules because I know very little about this myself so I just wanted you to know that I will keep everything crossed for a positive result from your tests.

Take care.

Garf.

Re: Update on Bladder Cancer

27 Nov 2013 00:44 in response to LorraineD

Hi everyone, I can breathe a sigh of relief, for now anyway. It looks like the BCG treatments are helping so that was really good news to hear today. However, my urologist cautioned me about being too confident at this point because this cancer will need to continue to be treated every three months for awhile, then perhaps the time between treatments can be extended to 5 or 6 months. Apparently, it will never go away completely, but as long as they can keep it in check with treatments, (and I don't think that means indefinitely) I likely can live for a few more years anyway. Right now, I'll take that. One day at a time. Perhaps I'll get a good night's sleep tonight.

Thanks everyone.

Lorraine

Re: Update on Bladder Cancer

27 Nov 2013 01:42 in response to LorraineD

Brilliant news Lorraine - I am really pleased to hear thing's are looking so good for you! Sleep well!!!!! Much love Max x

Re: Update on Bladder Cancer

27 Nov 2013 07:28 in response to LorraineD

Hi Lorriane,

Just wanted, like our lovely Max to say how pleased I am to hear to you have had good news and thanks for sharing it with us, for we all like good news. With regard to the future as they say never give up hope. You always sound so upbeat and offer support to so many on here.

Please take care, best wishes, Brian.

Re: Update on Bladder Cancer

27 Nov 2013 08:18 in response to LorraineD

Hi Lorraine,

Like Max and Brian before me, I just wanted to say what fantastic news that your treatments are helping!

We're just rising here (though I see Max was up in the wee small hours!) so I hope you're getting some well deserved, quality sleep!

Love and Hugs to you, and chat soon,

Jo xxxx

Re: Update on Bladder Cancer

27 Nov 2013 13:25 in response to LorraineD

That is good news for you Lorraine.  And knowing how precious life is with cancer the next few years will be so cherished and I'm sure you will make the most of every day.xxx

Re: Update on Bladder Cancer

27 Nov 2013 14:06 in response to LorraineD

That is great news Lorraine,

I know it's not exactly the "you are cancer free" news that you and others wish to hear but if your condition can be managed with treatments that can be reduced as time goes on then I am very happy for you.  It is nice to get good news on here so all the very best to you.  Don't forget we are here whenever you need us.

"Sleep well!"

Garf.

Re: Update on Bladder Cancer

27 Nov 2013 17:39 in response to GARF

Thanks so much everyone for your best wishes! I did sleep so much better last night. I didn't even realize myself how stressed I was about finding out how the treatments were working. I think someitmes we just can't go there in our minds until we hear the results, and there again, the not knowing takes its' toll. Perhaps its' like a protective shield that keeps our minds in a state of limbo until we get the information. I don't know; I'm speculating here. I just know that I am grateful for what I did hear. No, its' not the ideal, but it sure beats the alternative.

I can't say enough about how pleased I am to have found this forum. It is so supportive when on this cancer journey. I've told some of my friends about this forum and they say if they were dealing with cancer, they would find it too depressing to go on a forum where everyone was dealing with cancer at some level and they would find that too difficult, and make them feel worse. I guess its' like the old saying, "you have to walk in my shoes before you can fully understand how it feels".  I just know how much it helps me to be a part of such a great group of people like all of you.

Again, thanks so much and hugs to all of you.

Lorraine

Re: Update on Bladder Cancer

27 Nov 2013 20:37 in response to LorraineD

It so good to hear your news Lorraine. Your right it's not necesarily the best news but better than the alternative.

I have a friend who's mother has had this and she has had it for years and lives a good old life even now.

As for the forum you don't know until you need it, and thats why we are all here. We need others that have an empathy not just a sympathy.

We also need to talk to people who understand that it's often on your mind. There are so many out there that don't know or want to know about cancer.

They think if they don't speak about it , it doesn't exist. Wrong.!!!!!!!!!!

Anyway I am really glad that you have some time now for positive things.

Keep posting, you are one of the forums great helpers.

Hugs

Annabel. xx

Re: Update on Bladder Cancer

3 Dec 2013 00:53 in response to Annabel

Thanks Annabel, and sorry for taking so long to acknowledge your post of good wishes. It seems that doctor's apts. are a full-time job now and I don't seem to have time for anything anymore. I really do appreciate the people on this forum and I can't express that enough. I have friends and my spouse and they are really supportive, but they really don't understand, and of course, none of us can constantly talk about cancer all the time. My friends who have recently been diagnosed, are still in shock at hearing that news and they really are still in denial. They're also very busy with scans and radiation, etc. Also, their prognosis is not good, so that has to be hard for them. This disease is a terrible thing with so many people hit with it.

Thanks again for your support and best wishes.

Hugs to you too. xxxx

Lorraine

Re: Update on Bladder Cancer

8 Dec 2013 05:15 in response to LorraineD

Hi Lorraine,

Just wanted to drop by and say hello! I see your supportive messages on here all over place! As Annabel rightly says, you are one of the forum's great helpers!

Well, as you will see from the timing of this post, the steroids I'm taking are messing with my body clock! Having just lay awake for ages, I finally gave in, made a cup of tea and thought I'd catch up with some good friends on here!

(My cats were thrilled to see me up . . . Thought they'd get an early breakfast! They're now sulking in the kitchen!   )

Take care of yourself, Lorraine, and try to build in some 'me time' in the busy schedule of appointments!

Love and hugs to you, Jo xx

Re: Update on Bladder Cancer

9 Dec 2013 00:58 in response to Meerkat@65

Hi Jo, really good to hear from you. I had to smile when you talked about your cats expecting their breakfast! Our furry friends are pretty tuned in to what goes on aren't they? My pup, Toby, is right up with me when I get up, wanting to know what I'm doing and more importantly, what's in this for  him. LOL  As for my apts. well I have a reprieve  from them until Jan. 6th when I start my next round of BCG treatments. They're not fun, but less difficult than chemo for sure. I try to appreciate my small blessings.

I haven't had the pleasure of taking steroids as yet, and I use the term loosely. I recall when my brother was really ill and on steroids, he would be quite hyper and not able to sleep. I'm not in any hurry to get there; I'm the world's worst sleeper as it is. 

Jo I often see your posts on here too and you are always so supportive to others on here. I recall when I made my first post, I was amazed at how quickly others here responded and made me feel welcome right away. It meant so much to me. This journey is such a lonely one sometimes and certainly not that we wish for new people to get diagnosed. those who don't have cancer, can't possibly know how it feels. Having people here that understand, means so much. I appreciate having all of you in my corner for sure, and if I can give comfort and understanding to others, I will do my best.

You take care Jo and I always look forward to hearing from you. Give your kitty cats a nudge under the chin for me.

Hugs to you.

Lorraine  xxx