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The good and the bad

29 Mar 2018 20:17 in response to Nikki72

 

Hi Nikki,

I just wondered if your iron tablets are beginning to kick in yet?

Regards,

Jolamine xx

The good and the bad

30 Mar 2018 10:35 in response to Chriss

Thanks Chris:-)

bless hope yr lil one is feeling better soon too. Scarlet fever is doing the rounds here too at nursery nd school as is chicken pox. It’s awful when they r poorly isn’t it.

no bad today:-)

good:- it’s Easter weekend... happy Easter everyone. Hope that you enjoy it as best u can.

Family meet nd eat later... fish nd chips... good times x

The good and the bad

31 Mar 2018 11:05 in response to Sandra123

Morning peeps 

no bad today:-)

good:- Been swimming. Done shops. Cakes baked. Nd it’s only just after 11 am Happy heading t Toby Carvery for lunch the maybe a nana nap cos babysitting tonight Happy x

The good and the bad

31 Mar 2018 11:32 in response to Sandra123

Earl Grey tea rooms in York waiting for brekkie, full english. Special treat then home to finish decorating! Ying and Yang!

The good and the bad

31 Mar 2018 14:28 in response to rileyroo

Oh how fabulous - go u girl. You enjoy every min u deserve it Happy x

The good and the bad

31 Mar 2018 16:00 in response to Chriss

Hi Chrissy

How do you keep doing it again and again?

I had a dark day yesterday (sounds a bit dramatic as I'm stage 1). I sat and spoke with my partner about practicalities if things get worse over time. He was really not wanting the conversation but I am such a practical person that I can't settle without having plans in place to ensure he and my 8 year old will be ok. As such I'm thinking of moving some money around for a worse case scenario fund. Today I'm questioning myself as this doesnt feel like im being optimistic, positive and strong....which is what I want to be. What a ride this is huh!

The good and the bad

31 Mar 2018 17:08 in response to Cornishpastie

Hi cornishpastie

Sure @Chriss ‍ will b along soon.

In the mean while just wanted t say - No mistaking it you have been side swiped out of nowhere. Having a “bad” day is totally normal so don’t b so hard on yourself. 

Nothing wrong  with looking at all practicalities... some things just should b in place regardless. I’m grade 2 but when I was diagnosed didn’t have a will - I do now:-) let’s face it my will should have been in place anyway - u know the old “might get hit by a bus” scenario Happy 

I didn’t focus on the practicalities of my treatment... I literally obsessed on them. Bless the lasses who supported me on here throughout my obsessions were my rock ( thank you ladies- you know who u are).

The endless questions on what to take with me on op day ( I mean really it’s - slippers, dressing gown nd kindle) seriously the amount of me t you t me t u questions.... yup obsessed with the detail:-) again... thank u lasses.

Guess it was my way of dealing. Whatever your way is then what the hey you do whatever it takes.

x

 

 

 

 

The good and the bad

31 Mar 2018 17:23 in response to Sandra123

Thank you Sandra. It caught me by surprise as I've been quite positive all through so far and it shook my partner that I wanted to have that conversation. 

Yes I'm starting to obsess on the right pyjamas etc as will be in overnight. Any tips would be appreciated on this lol xxx

The good and the bad

31 Mar 2018 17:48 in response to Cornishpastie

Careful ... floodgates cornishpastie floodgates;-)

Reckon 2 things to remember 1. It’s a bit like being dropped on the edge of an abyss looking down ( being phased and scared is normal) 2. You will be stepping back from the edge to live your life with those you love and care for you. 

Now u have triggered my dormant obsession Happy Wear clothes, pyjamas nd underwear that you can get into easily ( just in case you are a bit tender). So pyjama top that goes on like a cardi nd front fastens. I got a couple of seamless, front fastening, wire free bras ( support without digging in nd easy to fasten). See the trend here- easy to put on nd comfy. 

Ask away on anything you are unsure of. We are all here t help:-) x

The good and the bad

31 Mar 2018 19:52 in response to Sandra123

Ha ha Sandra you made me laugh. Right pulling myself together again. 

I hadn't thought about front fastening bras!!!! Huge tip. Thank you....front fastening everything here I come!

The good and the bad

31 Mar 2018 20:06 in response to Cornishpastie

Just jump in here as well, if you have some bbq tongs around, keep them handy for when you get home. Useful for reaching out to grab stuff without overstretching your arm for the first few days. 

The good and the bad

31 Mar 2018 20:13 in response to rileyroo

Oh that is a good tip. Can I ask how long it took for you to recover. I've had to give work a rough timescale and I've said a week off. They know this is flexible and understand why and aren't putting pressure on me. But I have a stressful job (social worker) so am out driving to visits and carrying files, lots of note taking and typing up of assessments. Let alone the occassional angry person. I want to be realistic but also want to get back asap after for normality. 

The good and the bad

31 Mar 2018 21:43 in response to Cornishpastie

I went back to work after two and a half weeks. The docs at the hospital signed me off for two weeks straight away. I worked half days for two weeks, my boss insisted I didn’t overdo it and then back full time until radiotherapy mid point. I worked half days for the last part of treatment and then for me fatigue really kicked in. I was off for a month after treatment finished. 

The good and the bad

1 Apr 2018 07:12 in response to rileyroo

Thanks Rileyroo. I do wonder if I'm underestimating the time I will need off. To complicate things only my close colleagues know so being in here and there is likely to cause lots of questions. I think I will play it by ear and not put anything in my diary for a few weeks post surgery just in case.

The good and the bad

1 Apr 2018 10:15 in response to Cornishpastie

Hi there ... Bless ya , please don't feel bad ... I've often said on here if I'd still had my kids at home , I'd have been totally different ... I really don't think I'd have copied ... You are doing amazing , start believing in yourself and know those feelings are normal ... 

I had a melt down day when my baby (37)  was having tests and it could av been cancer ... I totally lost it ... Even when he phoned me to say he was o.k , I was sobbing on the phone ,. It was only our buds on here kept me going and held me up ... 

I wish I could send you a real hug, coz I think you need it right now ... And remember, if we all were strong this site wouldn't be needed ... But we've all needed a friend on here who knows what those feelings are like.... I wrote all my letters to loved ones at the beginning ... I even planned the music and service for my funeral ... I made my Emily (photo) a memory book that I'd started since she was two ... Everyone listened to me as I was sure I wouldn't come through op ... We'll that was 8 months ago... All those letters and plans and memory book is put safely away for a while yet ... So I did what you were thinking.. 

I'm so worried about you now ... Look how far you've come ... We helped each other through this, well all help you and down the road , you can join us in helping someone newly diagnosed and you can tell them how scary this journey can be ... Big big hug ... Hold on and when you feel scared look round and picture us standing right there beside you saying "yes you can" please keep in touch ... Our little cournish pastie xxx .