Together we will beat cancer

Donate

Terrified 're 2nd breast biopsy

8 Jan 2019 21:29

Hello I'm 48 and was diagnosed at the end of October with triple negative breast cancer.

It started with an underarm lump and then a lump in the left breast.

I had a mammogram and a biopsy and had to wait the standard wait of 2 weeks for the results.

It is just confined to these two areas and I began chemo on 21st November and have had two treatments so far.

My 3rd treatment which should have been last week was cancelled due to me being neutropenic.

It was scheduled to take place next on January  10th but I had a call from my breast nurse today and she wants me to go for an appointment on Thursday for the results of another biopsy which was done before Christmas on my right breast as there was an area on the Mri scan that the radiographer wasn't sure about.

I'm a bag of nerves and finding it impossible to relax fearing the worst about things.

I've had my treatment cancelled now till 15th January which will make it 5 weeks since my last chemo.

I've had no surgery yet as my consultant wanted to shrink both lumps prior to surgery.

I've had ultra sound markets in my left breast and a recent scan revealed massive underarm shrinkage and a stable breast lump.

I've had to have my picc line removed because I developed a clot and it was in danger of becoming infected and I am now having to inject my stomach daily with fragmin which is an anti clotting medication.

I'm just wondering how much more I can cope with and am feeling so low about everything.

I have 3 children age 3, 5 , and 12 and this makes it even more difficult.

Karen

Terrified 're 2nd breast biopsy

9 Jan 2019 02:20 in response to mumof3angels

Oh bless ya Karen ...

Cancer sure sucks ... l can't imagine how your coping with 3 little ones ...  l hope you have a good support network behind you... if so, let them help as much as poss ... you can repay it later when your well ... but apart from, you've done amazing to get where you are now, and still there with boxing gloves at the ready ...

I'm a breast cancer lass too .. so I'll get my gloves back on... get in that ring... and we'll box it together ... always here if you want a chat ... hold on my hunny ... and let's hope you can start treatment again soon ..  sending you all my positive vibes ... and a big hug too boot ... Chrissie ❤x

Terrified 're 2nd breast biopsy

9 Jan 2019 04:34 in response to mumof3angels

 

Hi Karen,

I'm sorry to hear about your concerns.Waiting for the results of any test is always scary. Most of us would admit to it being one of the scariest parts of our cancer journey. It is always even more worrying when you have a young family. It is not pleasant having to inject yourself every day, but you don't have to do it forever. I remember being horrified when I was told that I'd need to do this, but it was no bother once I got used to it. It is certainly better than developing a clot.

I am delighted that you have already discovered massive shrinkage in your underarm and a stable breast lump after only 2 sessions of chemo. Chemo is a hard thing to get through. Don't give up hope. You will get through this and come out the other side.

I have had 2 bouts of breast cancer in the past 9 years, I had a lumpectomy first time around and a year later I had a double mastectomy. I lost my mum to secondary breast cancer 21 years ago. The treatment that I have received bears no resemblance to what she had. There are advancements being made all the time. Whereas people used to die of breast cancer, now people live with it.

I shall be thinking of you on Thursday and, hope that your results don't show up anything untoward in your other breast.

Please let us know how you get on. We are always here for you.

Kind regards,

Jolamine xx

 

.

Terrified 're 2nd breast biopsy

9 Jan 2019 13:29 in response to Jolamine
Thanks for your words of encouragement and positive vibes. It's so hard to focus on anything but I'm trying to think positive. I'm just not sure why my chemo would have been out back to fit tomorrow's appointment in. When I had this second biopsy on my right breast they just said from the ultrasound they saw something but whatever it was it was very small. The breast nurse said they want to put a clip in as they like to do this on an area they biopsy. I'm sorry about your loss. I lost my mum 21 years ago to ovarian cancer and it's something I've never got over but I know tremendous advancements have been made this time. Best wishes Karen x

Terrified 're 2nd breast biopsy

9 Jan 2019 13:41 in response to Chriss

Hi Chrissie

Thanks so much for your reply and positive vibes.

It is a hard journey especially fitting treatment and appointments around the kids.

I rely heavily on extended nursery care and after school clubs.

I'm thankful that the school have been very accommodating with short notice appointments etc.

As regards support network I don't have much of one as most people are just too far away.

I hope treatment can begin again next week as being neutropenic last week did kind of throw me into despair and my anxiety has been exceptionally bad wondering about biopsy results tomorrow.

Eating and sleeping are particularly difficult feeling so churned up.

 

Kind regards Karen x

Terrified 're 2nd breast biopsy

9 Jan 2019 13:58 in response to mumof3angels

Hi Karen

 

sending you a hug as it is a really scary time. I was diagnosed with triple negative last January which seems a life time ago now.

if the cancer is in your other breast I think it is dealt with as a local recurrance and not as secondary so try not to worry (easier said than done) it doesn’t nec mean it isn’t treatable. They will just need the results to make sure you are having the right chemo and treatment. It is great news that your lumps have responded so try to stay positive . 

Are you on EC or docetaxal? 

I am 40 and have two kids under ten. Just also wanted to ask if you had been tested for brca gene? I tested positive (with no family history) but it may be worth thinking/asking about if no one has suggested it already. 

Really hope the results are ok tomorrow - it is good they investigate every query so they have a full picture and can give you the best treatment. 

 

Thinking of you 

Rach xxx

 

Terrified 're 2nd breast biopsy

9 Jan 2019 14:14 in response to mumof3angels

 

Hi Karen,

Both of my cancers were primaries and, if it is cancerous in your other breast, I hope that it will be a primary too. They often put a marker in the breast so that the surgeon knows where the problem is.

I am so sorry to hear about your mum. Like you, I miss mine every day, even after all this time.

It cannot be easy juggling child care around your appointments, but having 3 young children must keep you busy. We always advise people to try and distract themselves from the wait by keeping busy, but I guess that this is no problem for you.

I hope that all goes well for you tomorrow. Can you take someone with you to your appointment tomorrow? This is always a good idea. It can also be helpful to write down a list of questions for your consultant.

Please remember that we are always here for you.

Kind regards,

Jolamine xx

 

Terrified 're 2nd breast biopsy

9 Jan 2019 16:49 in response to rach2018

Hi Rach,

Thanks for your reply and kind words.

I have one more EC to go and then 3 rounds of Docetaxel

I was told about the gene test you mentioned but at the present time I can't cope with getting it done and facing the results.

I told the genetics counsellor I would contact them again once I felt ready.

It was also mentioned before that if there was anything in the other breast the treatment wouldn't change but it may influence the surgery.

 

Kind regards Karen x

Terrified 're 2nd breast biopsy

9 Jan 2019 16:54 in response to Jolamine

Thanks Jolamine

I am taking someone with me to the appointment as too anxious to go alone.

I just hope whatever it is can be fully treated and my chemo gets underway again as soon as possible.

I've no problem keeping busy its the staying focussed which is difficult.

 

Best wishes Karen x

Terrified 're 2nd breast biopsy

9 Jan 2019 18:30 in response to mumof3angels

 

Hi Karen,

I am glad to hear that you are taking someone with you tomorrow. It is so easy to forget what was said, when you are so hyped up about your appointment.

I know that you are anxious to get back to your chemo, but you are better to get a full diagnosis first, as your treatment may need to change.

Fingers crossed for good news.

Kind regards,

Jolamine xx

Terrified 're 2nd breast biopsy

10 Jan 2019 17:36 in response to Jolamine

Hi Jolamine

I hardly slept a wink last night cos I had my appointment to get my biopsy results today.

The results showed that my right breast has a pea size triple negative cancer which is so small you can't even feel anything there.

My consultant said it hadn't been picked up before as it was so small and it was the area on my Mri a few weeks ago that brought it to their attention.

The consultant said my treatment is the same as what I have been having and he is confident of melting it all away and killing the cancer with a view to surgery in 4 - 5 months time but he thinks my prognosis is good if this happens.

He was reassuring in that he mentioned many women of whom he has successfully treated.

I am feeling abit more positive now and determined to beat this disease.

 

Kind regards Karen x

Terrified 're 2nd breast biopsy

10 Jan 2019 20:58 in response to mumof3angels

 

Hi Karen,

It is just as well that your MRI showed this up, so that it can be treated at the same time as everything else.

I am glad to hear that it doesn't change your treatment plan and, that you can continue with your chemo. Have you any idea when this will start again?

I am glad to hear that you are feeling more positive now and are ready to fight this.

Keep up the positivity.

Kind regards,

Jolamine xx

Terrified 're 2nd breast biopsy

10 Jan 2019 21:21 in response to Jolamine

Hi Jolamine

My chemo is set to start again on Tuesday 15th January but it will have to be through a vein in my hand as the picc line can't be put back in now for a few more weeks until my arm has healed.

I am grateful that the radiographer found this tiny spot on the right side as its so small you cant feel it at all.

There were questions I wanted to ask the consultant but I got myself in a state and was unable to ask too much for fear of a negative response.

I just hope like he said that the treatment shrinks everything down and then surgery to follow but I can think too far ahead right now.

I'm also having major child care issues for my 3 year old as her nursery can't have her for extended hours anymore as they have a new intake and it's not really appropriate to take her to chemo with me.

 

Kind regards. Karen x

Terrified 're 2nd breast biopsy

10 Jan 2019 22:31 in response to mumof3angels

Hi Karen

im sorry to hear about the biopsy result but pleased they have picked it up and that it is small. 

You sound a bit more positive - waiting is always the worst - when you know you just have to get on with things! Everybody’s story is different but my sister had tnbc 10 years ago and is doing great so it is possible to be ok after this diagnosis. 

It is scary and I always went to my appts with a  list of questions but was always too worked up to ask any of them as I only really wanted to ask one “am I going to be ok?” And of course only wanted the answer to be yes. I Just put my trust in the docs so don’t worry that you didn’t ask questions. It’s just head down and on with the treatment.

i hope you are managing ok with the chemo and hope you arm recovers soon. 

Its tough when you have kids and I hope you can get your childcare issues resolved. I didn’t tell many people but the people I did offered to do all sorts of things to help - would you be able to call ona friend to help at all? I know asking is easier said than done.

 

good luck for your next round of treatment xxxx

 

 

Terrified 're 2nd breast biopsy

10 Jan 2019 23:21 in response to mumof3angels

 

Hi Karen,

That's great - not too long to wait!

I am glad that your radiographer was on the ball and found thas tiny spot on the right side. It should be much easier to treat if it is so small.

What a pity that you didn't get to ask the questions you wanted to. Many of us lose the place at consultations and, forget to ask important questions. I always draw up a list before each appointment and then go to hospital armed with this plus a duplicate copy for my hubby. As I ask the questions, he writes down the replies. This ensures that we don't overlook any important questions. I have found that consultants are quite used to this an,d don't bat an eyelid when we do this.

I am so sorry to hear about the childcare problems that you're having with your 3 year old and, hope that you can find a way of circumventing this challenge.

I shall be looking out for your updates and, hope that you have no further difficulties with your chemo.

Kind regards,


Jolamine xx