Hi jenny, I'm not same as you (male,) as well as being non curable i know it'll get me sooner or later mines in prostate, lymph nodes, spine, ribs and pelvis and one lung I've had it over 3 years now like you i know it's not nice living with it, but we've not much choice, it's possible there are others (terminal) on the forum oh and welcome to the club nobody wants to join, if nobody else joins your welcome to talk to me (if you want to) have a good look around you could find others, some people stay on the one string others go all over the place to look around,. Whatever happens they'll be someone to talk to on here,. Best wishes.

Billy 

Hi jenny,

I am sorry to hear about your diagnosis but glad you are responding well to treatment. 

Do you know what type of cancer it is (beyond that it is in your spine) and what type of immunotherapy you are receiving?

All the best 

Hi there

Nice to hear from you, my cancer is stage 4, in my left lung and liver. The treatment I am on is Keytruda. No I cannot be cured only have my life prolonged, I do.not want to know what the prognosis is. Made a friend in hospital who was told in January she had 4 months to live, met her in April and she was.in bad way, thinking about death. So I do.not want to.know, I just live day by day trying to keep fit eating healthily, and enjoying my son,. Jen x

Hi Billy

Thanks for replying. You are dead right it will get us sooner or latet, so we just have to go on living best we can. I was told in beginning if they can get me through the 2 years of treatment, I should live a good few years after, do not know if true.or not but been going 9 months now and I feel fine. Hope you keep doing fine too. Jen x

Hi jen I'm stage 4, did specialist say terminal you sound more non curable same as me, i was given 5 years specialist said I'd need more cemo before first year was up I've not had any more yet, they don't always get it right also they are always causous of saying wrong things so you only get half truths I'm like you i feel fine apart from getting older and more aches and pains, good 1 for you i started getting bad pains in both legs went to GP straight away he said its my C, i saw specialist couple of weeks later told him about it he said straight away it's not C it's treatment I'm on, that was a big relief, it just shows don't always trust your doctor, best wishes,

Billy 

Hi there 

Thanks for responding. 

I understand it is not curable but as you said you may have many more years due to the treatment (which I hope very much). And it is good that you feel fine :)

Hi Jenny - you did the right thing posting here - lots of people understand what you're going thro'. The reason I'm responding is just to let you know that my cousin's son was diagnosed with terminal cancer over 4 years ago. He's still with us thank goodness & battling on. He never gives up despite some setbacks is living a life with his partner & teenage son. They want on holiday to Italy not long ago & enjoyed themselves. 

I just wanted to share a positive story with you & to wish you all success in your journey. Love to you xx

Good luck with the future and keep fighting we can win, if you want to keep in touch i or you can do a friend req if you want to,, and don't forget keep fighting. Best wishes. 

Billy 

Hi Jenny well here I am if ever you need to chat I am Marj. In 2012 I was diagnosed with lung cancer, I had not been experiencing any symptoms. It was only have knocked something in the back of my throat. Me being me kept coughing up blood for days days turned Into weeks, weeks tuned into months. Only 2 and a half  months. I got so sick of coughing up blood I went to see a out of hours doctor. I had gone Coventry to see my friend she needed out of hours doctor due to her asthma. While I was there I thought perhaps a doctor could put s couple of stitches in the back of my throat only when I told him how long it had been going on. He asked if I suspected anything. Truthfully I said no I had no need I haven’t got a chest infection or sinus one either. I said now you disagree with me if you can. Firstly having left it so long was because we all know unless I was going to sit there with my mouth open all day so the air could get to it to help it heal, we all know it takes a lot longer a internal but takes 3 times as long to heal, with myself coughing as it starting to heal I keep opening the cut up. He did agree it could very much be the case. But in examination he said he. Believed I was suffering from pneumonia of the right lung and wanted me to go university hospital of Coventry, I went he gave me a letter to take with me. I was seen almost straight away who this female doctor confirmed pneumonia. Then she went to get her consultant who I could not understand at all, they put me in a bay next minute s porter cane took me for a X-ray 10 mins went back came the portor to take me for another X-ray, it happened one more time so I had 3 xrays in all for this doctor who I could not understand so one of his registrars spoke for him apparently I had got a chest infection and needed antibiotics. They went off and brought me some penicillin. To which I asked if they where trying to kill me, and why ask so many questions if they where not prepared to take notice. It was in big letters on the front of my notes allergy penicillin anaphylactic shock syndrome. Just a standard question that’s asked when you go into hospital. I had a anaphylactic shock one time with penicillin so it’s highlighted with a red marker going through the answer. So I was told they would prescribe something else almost a hour later I was still their when I saw the doctor who I couldn’t understand, he did ask what I was still doing there. I actually managed to get that but told him still waiting for antibiotics, he said no you can go but do you have a number we can get you on someone else was talking to me because of me not fully understanding what he was saying, I gave my mobile number only to be told I would get a phone call within 48 hours because I needed a urgent CAT scan. Honest to god by Now I looked at my friend Zoe, I burst out laughing. Everyone was asking me what was a matter which made me laugh even more to a point I was laughing tears. No one had a bloody clue but my mate Zoe got it straight the way. I just said between laughing I am going then bye. When I eventually stopped laughing I said to Zoe what is this place. Here I was wanting a couple of stitches next minute I have pneumonia, for a registrar to agree then along comes a senior consultant, who I barley could understand I caught the odd few words. Had 3 xrays told I had a chest infection, give me penicillin, then suddenly told I didn’t really need them so you can go but to be asked for my mobile number because I need a urgent CT scan, I skied Zoe where in gods name had i landed. Everything that night was a comedy of errors.  Anyhow on my return back to Leicestershire I went to see my GP to get stitches in my throat first thing he did was to look in my throat yet he couldn’t see anything to say where the blood was coming from. He decided to make me a urgent appointment with the lung clinic I told him about my experience at Coventry, I also told him I thought I had landed on another planet. With the weird experience I had, had in Coventry. He said it sounds like they didn’t have a clue. Anyhow he told me this emergency appointment mean I would have a appointment within two weeks. 3 days later I got a phone call could I get to the hospital nest day, I said yes. On meeting the doctor he asked me a few but felt like a million questions. One he asked me was had anyone in the family  had king cancer this by the way was end of September. I said well it’s weird you should ask me that because if you would have asked me this question 6 months ago I could have said with 100% honesty no one even from generation ago no. However on the 1st of May this year my younger brother was brought in with what they thought was heart problems he was brought to this hospital because his organs was closing down they had no time for sedation they went straight in putting a chest drain in and told him a few other things, following further test my brother was diagnosed with stage 4 terminal cancer, he asked me again to clarify it was that hospital I said yes, I was sent for  aCt Scan only to be called before my appointment that was scheduled for the following week I went alone, I was not worried. I knew the minute they kept asking me if I was alone and I said yes, this nurse made a big issue that I wa alone. I just said whatever it s just spit it out, so she put up the scan telling me a pet scan was being arranged for Friday because you have cancer of both lungs. I literally said never mind these things happen in life. They asked me to se Macmillan who expected me to sit and talk about things for a hour or so, after 19 mins I got up and said is that it then I need to go shopping. Anyhow I went shopping went home told my husband etc went and had pet scan biopsy’s etc had my left lung removed told in remission a few months later. Meanwhile my younger brother passed away on the 12 of May 2013 September 2013 following a scan told I am terminal with a prognosis of 6/8 moths with palliative chemo 3/4 without. I had two sessions of the palliative Chemo for only the Chemo to almost kill me. I pulled through that only here I am 6 years later with everyone confused to why I am still alive. I am lucky enough to have one of the worlds leading cancer researchers as my oncologist. Who asked me if he could use my case and would I give extra bloods and biopsy’s for cancer research I agreed and baffled everyone because I genuinely should not be here. None of the researchers know why. So hopefully they will find something in my blood also I am in a PEACE TRIAL it’s just letting cancer research take any part of my organs when I die to help them find out why I have lived a lot longer than I should and they are hoping to find out to see if it can be replicated to give other people a longer life. I have had the immunotherapy started that back in May 2018 I had the new once that was released the week I went to see my oncologist, he had just got the go ahead the day before I saw him. I ended up pulling out after 7 months the side effects where really bad. Everything Chemo 2 different types immunotherapy none of it agrees with me. I do have major side effects. Although the immunotherapy did shrink it somewhat my diagnosis wasn’t changed as such but last September one of my daughters cane with me she’s a emergency transplant nurse. She couldn’t come with me before because she lived in Glasgow she moved to Yorkshire near my other daughter last year, she at Sheffield. So it’s only a hour away to the part of Leicestershire I live. He explained Everything to my daughter. He said your mum is technically terminal. Yet she’s palliative with metastatic primory lung cancer. It’s flowing through my body because it’s in the blood. She asked him why he couldn’t take the terminal away, he tried to explain because I had gone way beyond all expectations he showed her the scan from back in 2013 all the small tumours that had come along since I had my left lung removed. He was honest with my daughter told her the reason terminal stays because if my scans ever show as it was in 2013 he couldn’t change my prognosis. Just because for some reason my body decides  to react differently than the statistics say doesn’t mean it would happen again. So that’s where I am today still alive 6 years later. I am here if you want to chat, but I will warn you I have s weird sense of humour hence the laughing when that bizarre night happened at Coventry. I genuinely at that time apart from giving birth ectopic pregnancy I hadn’t had much experience with hospitals but Coventry was something out of this world. So so strange place to go, oops you maybe from Coventry area if so I do not envy you st all with such bizarre doctors, well it was in A&E I met them lol Marj 

Hi Jenny I have just sent you a message, but I must have accidentally clicked the wrong button because it said it’s a reply to Saiyanandcookie. So please accept my apologies and if you don’t mind look it under that one it went too. I am never sure if it’s to do with some treatments I have had that make me accident prone click on wrong button or what. I just noticed over the last few years my short term memory is not any good I have become accident prone and always making silly  mistakes or stupid can’t work out which some days Marj