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Syringe Drivers - Did it speed up my mum passing away??

21 Nov 2016 17:31 in response to William-Jacqueline
i know how you feel my dad looked traumatised as well it was awful .I still cry everyday but I function a bit better now .I'm so sorry for you my darling ,I don't know how ill your dad was but I have always believed the driver killed my dad,the nhs have now took dads death to a different level it is under a bigger investigation now but I'm not allowed to talk about it.i have been called brave and that I should be proud of myself but I don't see me like that iv just followed my heart and doing whats right I will get justice for my dad and make sure that a bad decision like they did to dad in that little town hospital wont happen again.take care and god bless

Syringe Drivers - Did it speed up my mum passing away??

21 Nov 2016 17:42 in response to Luke

  just read your reply again and im so sorry to have to say this to you but you are so wrong and dont know how you can say that.i have read so many sad stories now about the driver .read my story about my dad again and think about what you have said .the driver works totally different than having morphine oraly i saw it for myself it was horendous i will never forget what i saw for the rest of my life.

Syringe Drivers - Did it speed up my mum passing away??

10 Dec 2016 09:08 in response to Nicolac978

I think it's got to be said that each case is different,

My Grandad died in may with thyroid cancer that had spread as fluid to his lungs. the fluid was originally drained and thryoid tumor removed but the fluid returned and by the time it was picked up it was all too late.

The driver was in place for 15 hours with my Grandad and it did help as it meant very little attention needed from nurses as he had began to become distressed. Even an hour before he passed away we had him up going to the toilet but he just took one last look around the room and slipped away.

 

I can still recall the last few weeks, and have alot of questions. But i think this device gave him the peacefull passing he deserved

Syringe Drivers - Did it speed up my mum passing away??

28 Dec 2016 16:36 in response to Nicolac978
Nicola. I am sorry to read about your mum''s passing and your personal struggle re the use of the syringe driver. My father passed 2 years ago today. He was diagnosed with terminal cancer on 15 Dec, came home on 21st had a syringe driver fitted on 23rd and died on 28th..it was a huge shock and 2 years later I still wonder what was in the syringe driver and if it made his passing sooner. I found this thread today because my mother was diagnosed with terminal cancer on 16 Dec this year came home on 23rd and given weeks to live so I was just looking up what syringe drivers do particularly and if they do expedite passing although I am.sure we will never know that. So far my mum does not have one but having read up about them and reasons for use I can see why. My mum is quite relaxed and sleeps a lot my dad was very agitated pulling his bed sheets and pyjamas off and vomiting really thick brown liquid which we later discovered was blood so to keep giving him oral drugs or injections would have caused him further distress. So after two.years and finding this post I think I can now finally put my doubts to rest and know that the syringe driver and whatever was in it helped to make my dad''s last few days more comfortable. I wish I'd read up on syringe drivers 2 years ago. I hope you are doing OK and remembering all the good times with your mum. Take care.

Syringe Drivers - Did it speed up my mum passing away??

30 Dec 2016 10:26 in response to Sam121

Your a top man and I personally want to thank you for your fundraising efforts. 

Happy New Year! 

Syringe Drivers - Did it speed up my mum passing away??

28 Jan 2017 13:49 in response to Nicolac978

Hi i l000 % agree with u it happened too my step mum in november my mum died 1 hour ago 28 January 2017 2half hours after being but on one of these I objected but was overruled they are not getting away with this she had a broken  wrist for 2 weeks before they believed me

Syringe Drivers - Did it speed up my mum passing away??

7 Apr 2017 10:54 in response to Nicolac978
Hello. I know exactly what you are feeling. and what is going on in your head. i had the same nightmares every night. My Husband had Lung cancer which had spread to the brain. he was told sept 2016. He died 18th Dec 2016. in my arms at home with a smile on his face. The syringe driver was put in place 16th Dec. so i thought the same. The GP had warned us if his Meds do not work this would happen. So i kept thinking what if.? I met a friend the other day whose Daughter died of the same thing. she was given a week! NO SYRINGE DRIVER. and lasted 3 weeks. but was in so much pain and agitation 24/7.She actually drowned and choked to death very slowly and my friend her Mum wished with all her heart. she had a syringe driver fitted. but of course we can not change anything. I now know without it My Darling Husband would of suffered greatly. They do not kill people they help a passing alot better for them. My Dad passed in July of 2016 his lungs filled up and he drowned it was awful..... I hope this helps Lots of Love.Michelle. Xx

Syringe Drivers - Did it speed up my mum passing away??

7 Apr 2017 22:49 in response to michy1

Hi Michelle,

This thread has been going on for some time and I may be repeating myself, but my Mum was given a syringe driver in her final week or so and it helped immensely. Like me, she had chemo veins and every injection caused her pain, the syringe driver meant she could receive pain relief without being hurt. I know exactly what was in her syringe driver, exactly the same pain relief that she had previously been given via syringes and canulas. She was well beyond the stage where Oromorph (oral morphine tablets) even came close to helping relieve her pain.

When I come to the end of my cancer journey, I want a pain free end too. If that means using a syringe driver, that's fine by me.

Regards

Dave

 

 

Syringe Drivers - Did it speed up my mum passing away??

8 Apr 2017 06:43 in response to davek
Hi Dave, I lost my mum last May 2016. She had a driver put in and died approx 36 hours after it was attached. The last 12 hours she was breathing very fast and laboured. She was at home, and I was sitting with her. She suddenly stopped breathing and then gulped about 4 times. It was very distressing for me to watch as it looked like mum was fighting for her breath. It has haunted me ever since that she was in distress. Is the gulping a normal part of dying? No one has been able to put my mind at ease. I go over and over the way she stopped breathing and then gulped for air. I hope she wasn't in distress

Syringe Drivers - Did it speed up my mum passing away??

8 Apr 2017 19:44 in response to Ashleyg

Hi Ashley,

So sorry to read about your Mum, I'm not an expert but what you describe sounds very much like what used to be called a death rattle and isn't unusual. There is a description on this page (under Physical Signs ...) which is very similar to your description. http://www.dyingmatters.org/page/being-someone-when-they-die

 

I hope this helps set your mind at rest.

Best wishes

Dave

Syringe Drivers - Did it speed up my mum passing away??

14 Apr 2017 08:46 in response to shirljon
Hi , I think this need to be looked into carefully , my mum went into the hospital for constipation pain resulting from her other medication, she had underlying cancer, she was alert able to walk and talk, since they started using the syringe driver and the whatever cocktail they put in there , she became bed bound , unable to walk and incoherent and now gone to stupor , I had to fight them to remove it , now they removed some of her muscle function came back and she was able to talk more coherently, I think they are over-medicating my mum and that is led to her worsening condition, the all round syringe driver that was used for almost 8 days definitely has a part in that , now they are giving her too much oxycodone/oxycotin and sedative(midazolam) now she cant talk despite trying and all she does is sleep

Syringe Drivers - Did it speed up my mum passing away??

17 Apr 2017 10:18 in response to javakidson

The drugs they put in the driver have done that to your mother you saw it for yourself but they will deny it I feel so sorry for you if never got over what they did to my dad I'm still fighting his case the first investigation found 13 mistakes in my dad's case, the good that's came out of this is that the hospital involved has a new head nurse and the other staff have have been sent for more training.really 2 of them should have been sacked for the lies and mistakes that took my fathers life,but all in good time the case is not finished yet.god bless you darlin and I'm praying for your mother go with your gut instincts because you are right in what you saw,in a lot of cases they are putting the driver in to soon.

Syringe Drivers - Did it speed up my mum passing away??

17 Apr 2017 10:24 in response to Darren21

I'm glad you believe me I am hearing so many stories about the driver it's disgusting how they use it in cases that don't need it . I'm still fighting my dad's case and il get justice for him.

Syringe Drivers - Did it speed up my mum passing away??

17 Apr 2017 10:31 in response to michy1

Every case is different my dad was eating drinking and communicating he had a brain tumer took a small headache on Wed afternoon the driver was put in on the Friday he was dead by the sunday. 

Syringe Drivers - Did it speed up my mum passing away??

18 Apr 2017 10:08 in response to isabella

thanks, unfortunately for me my mum too has passed away, early hours of yesterday, she couldn't recover from the coma/long sleep she went into, sadly she couldn't really say her goodbye or last word to any of us , while I could see she was trying hard to hang in there, it eventually overwhelmed her. I am not happy about this and really want them to have look.