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Swollen lymph nodes in neck

16 Nov 2021 10:44

Hello, 

 

I've been following these forums for a while, but this is my first time posting. I found a swollen cervival lymph node approximately 6 months ago, on the left side of my neck. I kept an eye on it but I was too scared to go to the doctors, which I know is ridiculous, but I have anxiety and I suppose I just wanted to block it out. It's about the size of a pea at its biggest. It hasn't got any bigger, if anything it sometimes feels smaller and fluctuates in size, however a few more small one's have now popped up. Also the lymph nodes under my jaw are now quite swollen and tender. I did have covid about a month ago, and I've only noticed these new ones since then, however they are still there and now I'm worried sick. 

 

I've just seen the doctor, who had a feel and has referred me for an ultrasound and also a chest X-ray as a precaution. I knew he was going to do this, from reading all of your posts on here, however as soon as he did I broke down, as it made it feel so real. I know that's the only way to find out, but I have convinced myself that it's something serious and I can't ignore it anymore. I'm just so scared. I don't know what I'm looking for really, but I know many people on here have had similar experiences. If anyone would like to share their experience or if you're going through the same right now, then maybe we can support eachother. Thanks for reading. 

Swollen lymph nodes in neck

16 Nov 2021 15:08 in response to Sallx

Sometimes swollen lymph nodes can be from infection and other many causes, I have swollen lymph node right now and I'm in the same boat as you let me know how you get on

Swollen lymph nodes in neck

16 Nov 2021 15:15 in response to nataliexx20

Thanks for your reply Natalie. Sorry to hear you are going through the same. Yes, I really hope that it is just from an infection. If it was someone else, I'd think logically and say the chances of it being serious are really small, but when it's myself I automatically jump to the worst conclusion. Are you also waiting for tests? 

Swollen lymph nodes in neck

16 Nov 2021 15:19 in response to Sallx

Yup I always think the worst thing possible in every situation.. and I've had blood tests my CRP is high so I've had bloods done again today to see if they are high still. I've been referred to the breast clinic as I have a small lump in my breast I'm hoping it's just acne as I have body acne and get it under the skin, I've woke up with my left neck swollen lymph node CRP levels can be high due to infection which I think I have it's just horrible having a waiting game 

Take care xx

Swollen lymph nodes in neck

16 Nov 2021 16:08 in response to nataliexx20

Aww, I'm so sorry to hear you're going through that. The waiting game is horrible. I haven't had any blood tests, so no idea what is going on. I don't have a temperature or anything to indicate infection, but haven't felt 100% since I had covid. 

Yes, it seems very likely that yours could be down to infection or acne. My best friend had a lump in her breast and it was all absolutely fine. I was so good at reassuring her and I was certain it would be something minor like a cyst, which it was. I wish I could reassure myself like that too. Good luck and please keep me updated. Xx 

Swollen lymph nodes in neck

17 Nov 2021 10:47 in response to Sallx

Just an update in case anyone comes across this post. I will keep updating, as I know this forum has helped me so much and its always good to hear the final outcome, either way. 

So, I called the hospital and I'm booked in for a chest x-ray in a few weeks. However, the ultrasound of my neck is going to be at least 16 weeks! So I have called a private hospital and I'm going to have my scan done there to speed things up. 

I checked my notes from the GP on my online records and the GP is concerned and put the referral through as URGENT. However, there is also a comment stating 'doesn't appear to meet the 2ww criteria.' So although this is a good sign that the GP hasn't put it through as the two week referral, during my appointment he was concerned and said he wanted it done urgently. So on the one hand I'm thinking I should just wait as the GP can't be that concerned, but on the other hand, there is no way I can wait 16 weeks with this worry. So the cost of the scan will be worth it, even if just to save me 16 weeks of worry and give me some answers. Apparently I'll get the scan results there and then. X 

Swollen lymph nodes in neck

18 Nov 2021 18:09 in response to Sallx

Hi, I am also playing the waiting game for a swollen lymph node diagnoses. My lump is in the right side of my neck and has been present for around 6/7 moths but getting bigger.

I had a GP referral (non urgent) for an ultrasound which happened just over a week ago. The Dr took two biopsies and said that my results would be fastracked and the the hospital would be taking over my care. 

I have an appointment with the haematology consultant on the 24th and the wait is really starting to get me down. I'm trying to stay busy and distract myself but it's tricky at times.

Sending you strength and support xxx

Swollen lymph nodes in neck

18 Nov 2021 19:03 in response to RoseDreams

Hello, 

I'm so sorry that you're going through this too. The wait is so horrible. It is on my mind constantly 24/7. 

I'm glad you've had your scan and I really hope you get the all clear as soon as possible. 

I have my private scan on Tuesday, then my chest xray with the NHS the following Monday. Since I've gone private with my scan, if they do need to biopsy then it'll be referred back to the NHS. I'm hoping they won't need to, but can't help thinking the worst. 

Did they give you any indication of why they did a biopsy? Did it look abnormal or was it a precaution because it is growing? 

Please let me know how you get on and I wish you the best of luck. Always here if you need to talk as I know how scared you must be right now xxx 

Swollen lymph nodes in neck

18 Nov 2021 23:41 in response to Sallx

Hey Sallx,

I thought I was just going in for a scan but the doctor decided to take two biopsies on the spot. As it was all a bit of a shock I'm not sure I even asked why it was happening! Laugh

I remember her saying it was a very enlarged lymph node with no obvious reason of infection. Other than that I'm not really sure.

I wish I had asked! She was so lovely too and kept asking me if I had any questions but I just wasn't particularly focused at the time!

I really hope you get some good news on Tuesday and from the following Monday appointment too.

Please keep us posted and I'll keep everything crossed for you xxx

 

 

Swollen lymph nodes in neck

19 Nov 2021 08:13 in response to RoseDreams

Ahh that's completely understandable. It's easy to think of questions before and after, but at the time your mind goes blank. Let's hope it was just a precaution and you get some good news at your appointment soon. You've already been waiting over a week, it must feel like forever. 

Thank you so much. I will keep you updated and I've got my fingers crossed for you too. Xxx 

Swollen lymph nodes in neck

22 Nov 2021 16:14 in response to Sallx

Just wanted to say good luck for tomorrow - I hope all goes well xx

Swollen lymph nodes in neck

22 Nov 2021 16:25 in response to RoseDreams

Ahh thank you so much. I'm so nervous now  

How are you doing? Have you had your biopsy results or have you got to wait until your appointment this week? Keeping my fingers crossed for good news. Xxx 

Swollen lymph nodes in neck

22 Nov 2021 17:31 in response to Sallx

You will be fine, promise xx

I get my results Wednesday so still a little waiting left to do Plain

Keep us posted tomorrow xx

Swollen lymph nodes in neck

23 Nov 2021 16:13 in response to RoseDreams

I've just got back from my ultrasound which went really well. There were quite a few swollen lymph nodes, but the doctor said they look reactive and he isn't at all concerned.

This morning I felt more and quite near my collarbone aswell, so I really have spent the day convinced that it's bad and expecting the worst. I know I'll still be nervous about my chest xray next week, but hopefully that's clear too. 

Good luck tomorrow. I'll be thinking of you and hope you get some amazing news. Please let me know how it goes xxx 

Swollen lymph nodes in neck

23 Nov 2021 17:55 in response to Sallx

Ahh that's amazing news! I'm so happy for you  

I'm sure the xray is still playing on your mind but brilliant that this first hurdle is done and with a positive outcome  

My little girl has just tested positive for Covid this morning so I can't attend my appointment tomorrow  

I phoned the hospital number they gave me and they have said that the consultant and clinical specialist nurse will phone me tomorrow instead. I'm so relieved as I thought I'd have to wait another fortnight!

Fingers crossed  

Swollen lymph nodes in neck

23 Nov 2021 18:16 in response to RoseDreams

Ahh what a shame. I hope your little girl is okay. I'm glad you don't have to wait any longer though. I really hope it all goes well and will be keeping my fingers crossed for you. Xxx

Swollen lymph nodes in neck

24 Nov 2021 12:46 in response to Sallx

Hi ladies. 
just to say I'm in a really similar boat. 
found a lump behind my ear a couple of months ago. Dr did blood test and wasn't concerned but I pushed for a referral to a consultant, and managed to get this under the 2 week wait. 
since then, I have found a lump above my collarbone, which dr Google tells me is not good news. There may be more but I have stopped checking myself.. I almost can't cope with the knowledge. 
I was due my hospital appt on Monday but I got covid and had to push it back. It's been rescheduled to Friday 26/11 (in two days) and I could not be more frightened if I tried. I am so worried I have lymphoma. 
Like everyone, I'm hoping to be referred for an ultrasound and biopsy which will tell me once and for all. 
sending love to you, 

danielle x

Swollen lymph nodes in neck

24 Nov 2021 17:42 in response to Danzieeeee

Hey Danielle, sorry to hear you are worried. It's such a draining time isn't it? 

My consultant phoned today but unfortunately my biopsy results are still not ready yet so I will be waiting a little longer Plain

She is sending me some appointments for emergency scans but because I've tested positive for Covid I can't attend until the 3rd of Dec so it's another waiting game.

But, on a positive note, nothing has been confirmed so there's still a chance it's nothing malignant Grin

Hope you get some positive news soon xx

Swollen lymph nodes in neck

24 Nov 2021 19:08 in response to Danzieeeee

Hi Danielle, 

I'm so sorry you're going through this too. It's such a scary time. What I will say is that it's very unlikely for this to be Lymphoma or anything serious, and much more likely to be a reactive lymph node or something harmless. However, I know that probably won't help as it didn't help me to stop worrying. I feel like a hypocrite even giving you advice, as I've spent the last week constantly worrying, checking for lumps, googling and stressing myself out...constantly obsessing over it. I've even had dreams about it.

Like you, I felt absolutely certain that this was lymphoma or something really serious. Yesterday morning I found some lumps around my collarbone and that convinced me even more. However, I went for my ultrasound and the doctor was so calm and wasn't worried in the slightest. He said they look like reactive lymph nodes. When I arrived and said I was nervous, the doctors even said 'Oh no, in your mind you're dying from Lymphoma, aren't you?' I know that sounds odd when I type it on here, but it was said in a really nice, jokey way and they basically said that 9 times out of 10, the patient feels that way. And that even they worry as doctors and struggle not to assume the worst if they're unwell.

Even though I basically got told that there's nothing to worry about, I still don't feel 100% reassured. Part of me is relieved, but part of me wonders whether they could have missed something. I have my chest x-ray next week which I'm worried about, but hopefully if that's also okay, then I'll relax.

I've noticed that lots more lymph nodes have popped up since I first saw the Gp and was waiting for my ultrasound...and I'm wondering whether the stress or me constantly messing with them could have caused that. It seems very strange that more have suddenly appeared when I'm so worried about it. They are definitely there, but I don't don't trust myself anymore in case my anxiety is somehow making it worse. Today my neck feels a bit tight and my collarbones sore, but I've not messed with them to see how they go. 

Anyway, sorry for such a long reply. But if you ever want to talk I'm happy to listen. I'm sure everything will turn out OK and hopefully on Friday they can manage to put your mind at rest. But I completely understand how you feel and usually it is our own anxiety making things seem so much worse than it really is. But it's horrible feeling so alone and so scared. 

Sorry to hear you've had covid and I hope you're feeling better Xxx

Swollen lymph nodes in neck

24 Nov 2021 19:15 in response to RoseDreams

Aww I've been thinking of you today. I'm so sorry you haven't got the results today. I really hope they come back soon with some good news. The wait must be awful. 

Yes there's a really good chance that it's nothing to worry about and hopefully this will all be a distant memory soon. I hope you make a quick recovery and feel better soon. Xxx

Swollen lymph nodes in neck

25 Nov 2021 08:35 in response to Sallx

Oh thank you so much for that reply, firstly- the anxiety is so raw and you seem to understand perfectly, and secondly- you have had your ultrasound and have been given good news so it's great for me to hear this type of story.


I'm so pleased to hear that your Dr's have given you some type of reassurance. I know it's never enough for the anxious mind and we continue to terrorise ourselves with 'what if's'!! I'm sure you will get a handle on this in time. I have found limiting the amount of times I allow myself to touch my raised glands has helped me have calmer periods throughout the day. 
 

I am praying that tomorrow brings some sort of reassurance for me. It is an appointment with a consultant- I have no idea if I will get an ultrasound there and then or if he will just order one for the future and I'll be back to the waiting game. But I'll be one step closer to knowing what these pesky glands are all about. 
 

On the plus side, I managed to get a full 8 hours sleep last night without taking any sleep aids.. which is the most I've had for weeks, possibly months.

Thanks again for your lovely response, it has been so helpful. I'll pop back in tomorrow if I remember and let you know how it went at the hospital. 
 

Danielle xxxxx

Swollen lymph nodes in neck

25 Nov 2021 08:38 in response to RoseDreams

Rose- I totally feel your pain as I'm in this covid boat too!! So sorry you weren't able to get your results, but as you say, this isn't an indication of anything to worry about- it's merely an annoyance! 
Hope you and your daughter are feeling OK? My girls have it too (spreading like wildfire at the school) but thankfully we have all been alright. I haven't got much of an appetite right now anyway which means I haven't missed my tatsebuds too much! Xx

Swollen lymph nodes in neck

25 Nov 2021 09:29 in response to Danzieeeee

I'm so glad you had a good night's sleep. 

Yes I'm much calmer now I have stopped messing with them too, but I know how difficult it can be. It's like we automatically touch them without realising sometimes. Don't get me wrong, I am so happy that my ultrasound went well and it has stopped most of my worry. I just still have a little niggle, which I think is normal whilst waiting for more tests and since I've spent so long convinced that it's got to be serious. But I feel much better than I did. Like you said, our own mind terrorise us. We can be our own worst enemy sometimes. 

I really hope it goes well for you tomorrow. Yes I'm not sure what they'll do, as I was referred for the tests directly from my GP and I went private for the ultrasound to save such a long wait. But hopefully you get some reassurance, at least. 

I hope both your Daughter's and RoseDreams and your daughter are all feeling better soon. It's the worst timing, when you already have so much worry going on. Myself and my Daughters had Covid in October and they were absolutely fine. I was unwell but nothing major, thankfully. Don't forget that any more lymph nodes that pop up now, could be down to that if you've recently had covid.

Good luck tomorrow...I'll be keeping my fingers crossed for you xxx 

Swollen lymph nodes in neck

25 Nov 2021 12:04 in response to Sallx

Hi Danielle and Sallx, 

Just checking in to say hi and hope you're both doing ok?

Letting you know that you're both doing great and you will get through this and will soon be feeling lots better xxx

 

Swollen lymph nodes in neck

25 Nov 2021 12:15 in response to RoseDreams

Oh bless you, that's so lovely. I hope you and your daughter are feeling ok. 

I hope you're managing to take your mind off it all too whilst waiting for the results. It's all going to be ok and just pop on here anytime you need to talk. 

Sending lots of love xxx

Swollen lymph nodes in neck

26 Nov 2021 16:28 in response to Sallx

Hi Sallx and Rose,

Thanks for the lovely replies, hope you're both feeling well today? 

I had my hospital appt with the consultant. He was really lovely but as predicted, just referred me for an ultrasound of the raised glands, which will be in the next two weeks. So I have a further two weeks of fear  

On the plus side, he struggled to locate both the raised glands that I can feel and said he doesn't really feel anything (they're definitely there as the GP felt them). I said you have to press really hard to feel the one above my collarbone and he said- if I needed to worry about a gland I'd be able to feel it, I wouldn't need to press hard. 

I told him I'd also been having a low level dull pain in my abdomen but he wrote this off as anxiety. I'm still concerned it's more than that as it's been constant for two weeks. It's not sore to the touch but it's almost like a minor stitch. I'm hoping they will scan there too just to be sure. 

Have you had any news yet Rose? How's your anxiety been today Sallx? Xx

Swollen lymph nodes in neck

26 Nov 2021 17:22 in response to Danzieeeee

Hey Danielle,

I'm so glad your appointment went well - sounds like you had a good and thorough consultant. Sorry you have further waiting but great news that he's not overly concerned. 

No news here unfortunately but my consultant said approx a week which would take us to next Wed so fingers crossed it won't be too much longer. I'm also expecting a call from a clinical nurse specialist next week so I'll try to prep some questions ready over the weekend xxx

I hope you both enjoy the weekend and keep us posted xxx

Swollen lymph nodes in neck

27 Nov 2021 00:10 in response to Danzieeeee

Aww I'm glad your consultant was nice and that he has referred you for tests. Its good that he can't really feel the lymph nodes! I think they can sometimes feel bigger to us than they actually are. And I know that two weeks will feel like a lifetime, but try anything you can to take your mind off it and to take some reassurance from what the doctor has said. Sorry you've been having pain in your abdomen. Is it a particular side? It can be frustrating when they put things down to anxiety as sometimes it feels like they're just palming you off, but then anxiety can cause a lot of symptoms so it's hard to know. I know last week I was questioning myself loads as I just didn't know what was caused by anxiety and what wasn't. 

I'm okay thanks. I'm not thinking about it constantly now, so that's good. But I am still worried about the chest x-ray on Monday in case they find something. Tonight I was shampooing my hair and my head hurt, so I had a feel and found a lump on my head! I haven't bumped it or anything so I've no idea what it is. It's probably completely unrelated but I'm sick of finding lumps everywhere. 

Anyway, sorry for the moan. Rose, I'm so sorry you are still waiting for your results. It must be so difficult. Its good that you're going to prep some questions, as it's easy to forget them in the moment. You're both being amazingly strong and hopefully all of this worry will have been for nothing. Stay strong lovelies Xxx

Swollen lymph nodes in neck

27 Nov 2021 08:12 in response to Sallx

Morning lovely,

I'm the same, I feel like it's one thing after another! When you're conscious and anxious about your health, you seem to keep finding more things wrong! 
I thought I would feel more relaxed last night, but I've gone the opposite way and feel more tense. Didn't sleep well, am worrying about this pain in my side Sad which of course just makes it worse. 
I hope we all manage a decent weekend! I'll be thinking of you Monday- let us know how it goes. No doubt it'll be another example of feeling worried for nothing, but even so, I'm sending you the best of luck xx

Swollen lymph nodes in neck

30 Nov 2021 22:19 in response to Sallx

How did the xray go? Any news? 

Been hoping all is well xx

Swollen lymph nodes in neck

30 Nov 2021 23:10 in response to RoseDreams

Hi Rose and Danielle..ahh so sorry I haven't replied Danielle. I have only just seen your message. 

I hope you have both had a nice weekend. Have you received your results yet Rose? 

Unfortunately I had to miss my appointment due to the snow. My appointment was early in the morning so I had made arrangements for the school run and then due to the snow it all changed. So I asked them if I could rearrange but don't have a new date yet. Xxx

Swollen lymph nodes in neck

1 Dec 2021 16:37 in response to Sallx

Oh no, such a shame you had to rearrange!! Hopefully they will fit you in some time soon? 

I went to my GP about the pain in my side and I am having bloods and stool sample. So another lot of results to wait for On the plus side, the gland behind my ear has reduced and seems really small now. Still have the pea sized lump in my collarbone which worries me, but I take solace from the knowledge that yours was benign Sallx so sometimes these things happen. Have your glands started to go down yet, or are they still there? 

Hope that Rose has heard back from the consultant now?? Xx

Swollen lymph nodes in neck

1 Dec 2021 21:37 in response to Danzieeeee

Hey both! Sorry you've both still got some waiting ahead.

I still haven't heard anything and don't have a number to chase anything so, apart from an appointment next week with the consultant I have no idea what's going on!

I'm frustrated and so fed up of waiting on top of the anxiety of still not knowing the biopsy outcome.

Still, I'm sure all will he ok soon!

Stay strong both xxx

Update to say the hospital phoned today and I have a CT scan this Saturday at 9am and then a consultant appointment on Wednesday so hopefully I'll know something then xx

Swollen lymph nodes in neck

3 Dec 2021 00:46 in response to Danzieeeee

Hi Danielle, 

Aww I hope you get these tests sorted soon. The wait is horrible. But I'm glad your doctor is getting it all checked out for you. Where abouts is the pain in your side? 

Oh I'm so glad that the gland behind your ear has gone down. That's very reassuring! Well I've had a couple of mine for a while now so I'm not expecting them to disappear really. Although they do sometimes feel much smaller...they seem to fluctuate in size but they've never actually grown, if that makes sense.

The lump on my head has gone. Although I wasn't overly worried about it being connected, I'm very pleased that it has disappeared! I haven't actually been checking them much either. I am still worried, but it's much better now I'm not constantly checking them. 

I haven't heard anything about my chest x-ray yet, so hopefully I can get another appointment soon. 

I hope all goes well with your tests and you get some positive news soon. Xxx

Swollen lymph nodes in neck

3 Dec 2021 00:56 in response to RoseDreams

Hi Rose, 

Oh I'm so sorry to hear you are still waiting! I'm not surprised you're feeling fed up and frustrated with it all. I really feel for you and can't imagine how difficult it must be. 

I'm glad they've now been in touch and you have your appointments sorted. Did they have any idea whether your results have come back, or was it just the appointments department who called you? 

You are being unbelievably strong and must have so much patience. This horrible wait will be over soon and I'm sure all will be okay too. Please keep us updated...I'll be thinking of you. Stay strong xxx 

Swollen lymph nodes in neck

4 Dec 2021 12:51 in response to Sallx

Hey!

So, still nothing conclusive but today I had a CT scan to check my neck, chest, abdomen and pelvis.

My consultant has ordered an emergency referral to ENT as she has said the lymph node needs to be removed ASAP to be fully biopsied and also due to it's size.

I'm still hoping it's not lymphoma but pleased whatever it is will be removed soon!

I have a telephone consultation with my haematology consultant on Wednesday and will hopefully hear from the ENT consultant soon to book surgery.

Fingers crossed for a worry free Christmas time soon! 

Hope you are both OK and that things are settling down slowly? Xxx

Swollen lymph nodes in neck

4 Dec 2021 13:38 in response to RoseDreams

I'm so sorry to hear that! I was hoping you would get the results and that would be the end of it for you, but like you said, it's good that it's getting removed and checked out. Let's hope no news is good news. 

Yes I really hope this is all out of the way for you by Christmas. Honestly, you're being unbelievably strong and staying positive which is wonderful. 

I had a call yesterday to check why I didn't go for my chest x-ray, so it appears they didn't get my message, but there was no way to speak to anyone. So that should be re-booked soon hopefully. 

I hope you both have a lovely weekend xxx

Swollen lymph nodes in neck

6 Dec 2021 09:19 in response to RoseDreams

Morning ladies,

What a horrible wait you have Rose, but as you say, the Dr's are on top of it so that node will be gone soon and hopefully all will be fine. So pleased you are getting the tests you need and hopefully they give you reassurance. 
 

sallx- pleased that your glands haven't gotten any bigger and you feel more settled. Let us know once you've rearranged your appointment. 
 

Im a bit all over the shop at the moment. I had a letter from the ENT consultant on Friday, you know just the letter they send to the GP for their notes and they copy you in. It said he felt glands on both side of my neck during examination  (as well as the two I'd identified elsewhere) so that freaked me out as I didn't know that. But he also said that there were no concerning features of any of the glands and he was only referring me for an ultrasound for reassurance. So mixed news there. 
 

my stomach issues have been getting worse though Sad I'm having a lot of pain and change to my toilet habits. I have had a blood test to check for tumour markers for bowel cancer, I call up for the results in a couple of hours. I'm so so nervous. I don't know if these tummy issues have come about because I'm so nervous about my swollen glands, or if it's a separate issues altogether. My anxiety is causing havoc right now, it's so hard to separate it all out. 
 

anyway, sorry to go on, it's been very comforting talking to you both, thanks for taking the time xx

Swollen lymph nodes in neck

7 Dec 2021 19:48 in response to Danzieeeee

Oh dear Danielle, I hope your tummy settles soon. Any time frame on your ultrasound?

Sallx - gutted your message hadn't been received about the xray - have they given you any indication of when it could be done?

I saw the ENT consultant today who did a camera up the nose and down my throat - gross! He said my CT scan results were back and it was clear! Yay! Only showed the one lymph node and this was confirmed by the camera today - so that's great!

He also said that the ultrasound scan said 'probable lymphoma' and my biopsy result was 'probable lymphoma' - it was then sent to the lymphoma panel who said it was inconclusive as they didn't have enough tissue left to re-test.

I may have to have another biopsy Cry He said he's presenting my case to the whole cancer MDT next week to decide if it should be treated with radiotherapy before removal or if it should be taken straight out. So, more waiting! 

Again, I'm keeping positive that it is not yet confirmed as cancer and that, if it is cancer, it will be easily treated. Just hope I get a diagnosis soon Happy

This chat has been such a reassurance as I feel like I have to stay strong in front of the kids so it's nice to be able to offload to you both - thank you xxx

Swollen lymph nodes in neck

7 Dec 2021 22:31 in response to RoseDreams

Hi Rose,

blimey, they've been putting you through your paces, haven't they?! My partner keeps saying to me- it's not cancer until they tell you it's cancer, and that's what you have to remember. As you say, worst case scenario it is a lymphoma and sounds like they are already formulating a plan. As you probably know, lymphoma is highly treatable and in most cases, completely curable, particularly if you only have one as it's likely early stages. But no need to go there in your mind until they tell you more. The camera up the nose sounds icky, you absolute solider going through all these tests.. you're my hero right now!! 
 

My stomach has really settled. I've been drinking this powdered tea with vitamins in it for the last month or so (to compensate for the weight I'd been loosing through anxiety).. anyway, I decided not to drink it today to see if that helped and.. it really has.. so I actually think I might be intolerant to one of the ingredients! My tests for inflammation in the bowel all came back clear, so hopefully I've solved the problem. 
 

My ultrasound is in a weeks time on Dec 15th. Hoping for a good result. 
 

Please keep us updated Rose. I think you're dealing with this amazingly- us mums have no choice but to keep it moving hey?! It will all be OK in the end regardless xx

Swollen lymph nodes in neck

11 Dec 2021 00:01 in response to RoseDreams

Hello both of you, 

So sorry, I hadn't seen either of your updates. I came on here to ask how you were both doing and saw you'd both posted. 

Rose, I'm so sorry that your biopsy was inconclusive and they've stated 'probable lymphoma'. As you said, it's not confirmed so try to stay as positive as you can, although I know that will be incredibly difficult. I have seen posts where people have been told it's almost certainly lymphoma, for it to come back all clear. So there is still hope and I pray you get some good news soon. I honestly admire how strong you seem to be and I'm so happy we all have eachother to talk to. 

Danielle, you sound exactly the same as me. The doctor felt multiple swollen lymph nodes in mine and even on the ultrasound, but the doctor who did the ultrasound wasn't concerned as he felt they were reactive lymph nodes. As you know, it put my mind at rest massively, but then I occasionally still feel them and it starts my worry again. Like you, I also have stomach issues, which I haven't been connecting to this. I was diagnosed with IBS years ago, so I've been putting it down to that. Last week it was awful...I was in pain, constantly going to the toilet and it seems to have eased off again now. I really hope you also get some answers soon. It must be so difficult with all of these symptoms and the waiting. You're being amazingly strong too. 

And I know exactly what you mean about separating the anxiety. I don't know what to trust anymore. I know the symptoms are real, but I dont know whether I am over worrying or whether I'm noticing more just because if my anxiety. I still haven't heard anything about the chest xray yet. I definitely want to have it done but I'm also terrified as I'm convinced they'll find something wrong. Again, that may be my anxiety but it really does take over and convince you of the worst. 

Hope you both manage to have a lovely weekend xxx 

Swollen lymph nodes in neck

11 Dec 2021 11:13 in response to Sallx

Thank you both,

I really hope you both get clear results very soon - I'm keeping everything crossed for you. I'm so proud of how you're both coping with these uncertainties.

I have to have another biopsy on Tuesday where they've said,  if I can tolerate it, they want to take three samples to ensure an accurate diagnosis. The node is over 3.5cm so big enough to go into a different part than last time. In all honesty I'm dreading it as it is not the most comfortable thing and the node capsule is rock hard. Still, hopefully that will be the end of this whole thing.

In all honesty the hospital have been amazing! I've had so much support and help and even a booklet with the staff names, photos and phone numbers. I can't fault the service they've given me. It's given me confidence that if I do need them I'll be fine!

So my plan now is: if it's benign then it's straight to surgery (although they have pre-warned me it's a complex surgery because of where the node is) and if it's not they will treat with radiotherapy, drugs and then possibly surgery.

Hope to know soon what's coming soon.

Take lots of care both - sending you strength and light xxx

Swollen lymph nodes in neck

11 Dec 2021 23:16 in response to RoseDreams

Oh Rose, you're such a trooper. Whatever the outcome of the biopsies, this is all going to be over very soon. I can only imagine that the biopsy will be uncomfortable but hopefully it'll be super quick- and please make sure you line up a lovely treat for afterwards- your favourite dinner, a nice bottle of wine, a good movie.. something to look forward to as reward for being such a star!! 

Sallx- I really find I don't know where to untangle the anxiety from the facts sometimes. I have such a strong emotional reaction to everything. I'm quite a positive person generally but so catastrophic when it comes to my health! I think once you have this x-ray you will really be able to get some closure. Let us know when your appointment comes through. 
 

Have a great weekend ladies! One of my daughters is at a sleepover so me and my youngest had a little disco, played poker (!) watched a movie and now I'm in her bed having a 'sleepover' with the dog squished in between us haha! X

Swollen lymph nodes in neck

15 Dec 2021 17:41 in response to RoseDreams

Hi ladies,

I had my ultrasound today, it went ok, they said the glands looked like completely normal reactive nodes. I wish I could say I feel better but I've got myself so worked up I still feel highly anxious. But anyway, it is a great news and hopefully my nerves will settle soon. 
 

Good luck with your biopsy Rose, do let us know how you get on xxx

Swollen lymph nodes in neck

15 Dec 2021 18:02 in response to Danzieeeee

Oh I'm so thrilled for you Danielle - that's excellent news Happy

I completely understand that it will take you some time to unwind a bit for the good news to settle but it's such positive news before Christmas for you.

I had my second biopsy yesterday where they took 3 samples. It was a really difficult procedure as the node capsule is like stone and I had a doctor learning to do neck biopsies and my consultant doing it. 50 minutes of my neck being pushed really hard Cry Very sore and bruised now but it's done! Consultant was convinced they got 3 good samples so I'm keeping everything crossed that this will be the end of it! She also said I should know before Christmas what we are looking at but I remain convinced it's benign. 

Hopefully I'll get my good news like you Danielle very soon!

Well done for having your ultrasound and I hope you manage to start to relax very very soon xxxx

Swollen lymph nodes in neck

15 Dec 2021 18:41 in response to RoseDreams

Thank you Rose, I've just spoken to my family and had a bit of dinner so I feel a little bit more settled :-) 
Oh my gosh, well done for yesterday! It's done now, worst of it is over. Now you can get answers and a plan. Glad you are staying positive, there is every chance it is benign. Keep your chin up and enjoy Christmas, at least you and I have got Covid out of the way! Xxxx

 

Swollen lymph nodes in neck

16 Dec 2021 23:59 in response to Danzieeeee

That's fantastic Danielle! I'm so pleased for you. I'm sorry you still feel anxious, but hopefully that will ease in time. I felt exactly the same at first. I spent so long worrying and preparing myself for bad news, that when the doctor said they were reactive lymph nodes, I was so happy-but it also takes a while to take it in and switch your way of thinking. 

I find myself not thinking about it for days now, then my neck will hurt slightly/twinge, so naturally I have a feel and notice that there's still lots there, which restarts my worry all over again! My eldest daughter was very poorly when she was little and she had lots of swollen lymph nodes in her neck. She is now 11 and they're still there, so I know first hand that it can be normal. 

I hope your stomach issues are better now too.

Hopefully you can have a lovely, worry-free Christmas now. Xxx 

Swollen lymph nodes in neck

17 Dec 2021 00:20 in response to RoseDreams

Hi Rose, 

Aww I'm so sorry you had to go through that. Well done for getting through it-another hurdle crossed. I hope you're managing to have a very well deserved rest now to recover. 

I'm so glad you're remaining so positive. It really is the best way to be! Just look at me, absolutely worrying myself sick and convincing myself its the worst possible outcome...I think its a defence mechanism in a way! If I prepare for the worst, then nothing can catch me off guard. But really, I end up worrying myself and being miserable for days/weeks, when there is no need! You just end up hurting yourself with that attitude. Whereas your attitude is amazing Rose, and I think we all need to take a leaf out of your book! 

I am hoping, praying and keeping everything crossed that you get some amazing news any day now. Keep smiling and stay strong xxx 

Swollen lymph nodes in neck

22 Dec 2021 18:49 in response to Sallx

Good evening both - how are you doing?

I was due to get my results this morning via telephone consultation with my consultant. Long story short - the results are not ready and there's apparently no sign of them being available imminently Cry

I had my whole heart set on getting the all clear today, just in time for Christmas but, unfortunately, I still have some waiting to do. I'm absolutely gutted. I am sorry for moaning and I do understand there's bigger things going on in the world right now. I just wanted so badly to be able to have Christmas without this hanging over me.

Still, tomorrow will be better and I'm sure I'll be feeling less sorry for myself in the morning!!

Sending you both light and strength and again, sorry for moaning! Xxx

Swollen lymph nodes in neck

22 Dec 2021 19:22 in response to RoseDreams

Hi Rose, 

Aww I'm so sorry to hear that! It's ridiculous how long you've had to wait. It must be absolutely awful for you, especially after being told the results should be today and getting let down. 

Please don't apologise - thats what we're here for if you ever need a chat or someone to talk to. I hope they manage to get the results quicker than currently expected. But if not, then I really hope you manage to have a nice Christmas. Its easy to say try not to think about it, but I know that's pretty much impossible. So try to stay strong and positive as you have been throughout, and hopefully you'll have some amazing news to take into the new year with you. Xxx