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Subungual Melanoma

6 Sep 2019 09:08 in response to Emmand

I'm glad you have an appointment through but sorry you have to wait so long. Try to distract yourself whilst waiting - keep busy and fill your time with hobbies, walks in the fresh air, pamper yourself with a massage. If you get anxious, try some breathing techniques or meditation, yoga or tai chi - all can be found on You Tube. 

Good luck and please let us know how you get on,

Angie

Subungual Melanoma

10 Sep 2019 21:15 in response to Emmand

Hi

All these things vary but to put some timeline on my treatment. After 8 months of noticing a dark mark on my thumb nail I it was dismissed as a nail infection. At twenty months when the nail had mainly fallen off I returned and got a referral that took 5 months.

There was another appointment and another month went by.

On the day the nail and a lesion was removed as well as surrounding tissue. (Don't drive to the appointment!)

Even when there is a lesion it is not always going to be a Melanoma it has to be analysed.

I saw the lesion removed and then researched what it would mean if it was the size I saw on the desk and panicked. The actual thickness was much les,s so you have to wait for that analysis it is very hard not knowing. So what was in my case apparently a very active tumor which had been there for over two years was 2mm thick. Once the lesion is removed and analysed the surrounding tissue is checked for safe margins to ensure all the cells are clear. In my case it took another 2 operations to clear all the cells.

I hope that helps in some way and wish you the best with the treatment.

The presription for pain killers was a little messed up in my case. I made the mistake of thinking I could get the prescription from a local store pharmacy but because the strength of the drug was set with a 0 instead of a 5 at the end there was no such strength and they wouldn't give it to me. Two pharmacists refused to do it and eventually when we found out why we sorted it out and took it to another place who supplied it. Best advice use the hospital pharmacy in case of such a mistake as it can be sorted out then and there. 

 RickyB

Subungual Melanoma

11 Sep 2019 07:34 in response to RickyB

Thanks for your reply RickyB

How are you keeping now?

I'm trying to stay busy until my app on 3 Oct and not to Google stuff as, like you, all research is leading to panic. It's my toe nail that is affected - a black and red thick band under the nail which has been there for at least five months following a years fungal infection.

Once I know exactly what I am dealing with I'll likely have a lot more questions. Thanks for taking the time to share your experience.

Emmand

Subungual Melanoma

17 Sep 2019 23:45 in response to RickyB

Just got a call today, that there has been a cancellation and I have an appointment for my op next Monday. Fingers crossed it will finally give me a diagnosis either way.

Feeling relieved .

Subungual Melanoma

28 Sep 2019 22:22 in response to Mossy7000

Hi Mossy7000

How did your op go? I do hope you get a positive outcome.

I have my dermatologist app on Thursday.

Emmand

Subungual Melanoma

29 Sep 2019 12:44 in response to Emmand

It was a bigger op than I thought it would be. There was definitely a cyst there and they have send off samples to make sure there is nothing else. Waiting for the results, just so pleased I will finally get some answers.

Good luck with your appointment. I will keep fingers crossed for you.